Website design: Technical, social and medical issues for self-reporting by elderly patients

Taylor, Mark; Stables, Rod; Matata, Bashir M.; Lisboa, Paulo J. G.; Laws, Andy; Almond, Peter R.

doi:10.1177/1460458213488382

Cited by 5 publications

(3 citation statements)

References 21 publications

(50 reference statements)

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“…Whilst not all required data ARE available from the patient EMR, studies have found varying results with as much as 69% of data required being found and used to prepopulate trial eCRFs . Discussions around the design and theoretical modelling of EMRs, eCRFs and ECD were prevalent within the included papers . The electronic systems reported vary in quality, with some being used in mock environments and others being purely theoretical.…”

Section: Resultsmentioning

confidence: 99%

Electronic case report forms and electronic data capture within clinical trials and pharmacoepidemiology

Rorie

Flynn

Grieve

et al. 2017

Brit J Clinical Pharma

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AimsResearchers in clinical and pharmacoepidemiology fields have adopted information technology (IT) and electronic data capture, but these remain underused despite the benefits. This review discusses electronic case report forms and electronic data capture, specifically within pharmacoepidemiology and clinical research.MethodsThe review used PubMed and the Institute of Electrical and Electronic Engineers library. Search terms used were agreed by the authors and documented. PubMed is medical and health based, whereas Institute of Electrical and Electronic Engineers is technology based. The review focuses on electronic case report forms and electronic data capture, but briefly considers other relevant topics; consent, ethics and security.ResultsThere were 1126 papers found using the search terms. Manual filtering and reviewing of abstracts further condensed this number to 136 relevant manuscripts. The papers were further categorized: 17 contained study data; 40 observational data; 27 anecdotal data; 47 covering methodology or design of systems; one case study; one literature review; two feasibility studies; and one cost analysis.ConclusionElectronic case report forms, electronic data capture and IT in general are viewed with enthusiasm and are seen as a cost‐effective means of improving research efficiency, educating participants and improving trial recruitment, provided concerns about how data will be protected from misuse can be addressed. Clear operational guidelines and best practises are key for healthcare providers, and researchers adopting IT, and further work is needed on improving integration of new technologies with current systems. A robust method of evaluation for technical innovation is required.

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Section: Resultsmentioning

confidence: 99%

Electronic case report forms and electronic data capture within clinical trials and pharmacoepidemiology

Rorie

Flynn

Grieve

et al. 2017

Brit J Clinical Pharma

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“…18,19 The most common usability issues in our study were navigation, design and learnability which are consistent with the literature. 20,21…”

Section: Discussionmentioning

confidence: 99%

“…18,19 The most common usability issues in our study were navigation, design and learnability which are consistent with the literature. 20,21 Navigation is important to manoeuvre through multifaceted information on a website with accessing support groups and psychological well-being an easy task for participants. Although, locating further information content such as contact details was challenging.…”

Section: Discussionmentioning

confidence: 99%

A web-based comprehensive head and neck cancer patient education and support needs program: Usability testing

Jabbour

Dhillon

Shepherd

et al. 2022

Health Informatics J

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Background: With increasing accessibility of the World Wide Web, patients are using it to obtain patient education materials (PEM). With this in mind, our group (surgeons, radiation oncologists, medical oncologists, nursing, allied health professionals and academic researchers) developed a comprehensive information resource for patients with head and neck cancer (HNC), the Head and Neck Cancer Australia, formerly Beyond Five website. The aim of this study was to determine patient usability of the Head and Neck Cancer Australia website. Methods: Usability testing (Cognitive walkthrough & Think-Aloud) in 18 patients treated for HNC was undertaken at a Cancer centre (anonymous for reviewers). Results: The tasks rated easiest by patients were finding information on psychological well-being (mean time spent: 66 s, range: 10–565), health and well-being effecting quality of life (mean time spent: 36 s, range 9–117) and carer information (mean time spent: 10 s, range 3–35). Patients indicated the website contained a lot of information, covers most topics, was a trusted source of information and a springboard to other information. Conclusions: The Head and Neck Cancer Australia website provides a wide range of information and support in multiple formats available to HNC patients. Further refinements in design, navigation and website instructions are needed to allow effective patient interaction.

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Challenges and recommendations for eHealth usability evaluation with elderly users: systematic review and case study

Sinabell

Ammenwerth

2022

Univ Access Inf Soc

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Previous research has shown that there are a variety of eHealth usability evaluation methods suitable for agile, easily applicable, and useful eHealth usability evaluations. However, it is unclear whether such eHealth usability evaluation methods are also applicable with elderly users. This study aims to examine the challenges in applying eHealth usability evaluation methods with elderly users and how these challenges can be overcome. We chose three established eHealth usability evaluation methods to evaluate an eHealth intervention: (1) Co-Discovery Evaluation, (2) Cooperative Usability Testing, and (3) Remote User Testing combined with Think Aloud. The case study was conducted with seven Austrian elderly users. We supplemented the case study (March, 2021) with a systematic review (March, 2022) to identify (1) applied eHealth usability evaluation methods to elderly and (2) challenges of eHealth usability evaluations with elderly. Our results showed that Remote User Testing combined with Think Aloud could successfully be applied to evaluate the eHealth intervention with elderly users. However, Cooperative Usability Testing and Co-Discovery Evaluation were not suitable. The results of the systematic review showed that user-based eHealth usability evaluation methods are mostly applied to conduct eHealth usability evaluations with elderly users. Overall, the results showed that not all established eHealth usability evaluation methods are applicable with elderly users. Based on the case study and the systematic review, we developed 24 recommendations on how to deal with challenges during eHealth usability evaluations. The recommendations contribute to improving the accessibility, acceptability, and usability of eHealth interventions by the elderly.

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Website design: Technical, social and medical issues for self-reporting by elderly patients

Cited by 5 publications

References 21 publications

Electronic case report forms and electronic data capture within clinical trials and pharmacoepidemiology

Electronic case report forms and electronic data capture within clinical trials and pharmacoepidemiology

A web-based comprehensive head and neck cancer patient education and support needs program: Usability testing

Challenges and recommendations for eHealth usability evaluation with elderly users: systematic review and case study

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