"We Are the Product"

Fiesler, Casey; Hallinan, Blake

doi:10.1145/3173574.3173627

Cited by 54 publications

(21 citation statements)

References 36 publications

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“…Online comments have previously been used to understand public health views [27,40], to study public discussion [24,65], and in HCI research to develop design recommendations [59]. Conducting Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr 7 research with stigmatised populations that are often hard to reach has led researchers in the social sciences to utilise online platforms and data sources [44].…”

Section: Use Of Online Commentsmentioning

confidence: 99%

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr

Warner

Gutmann

Sasse

et al. 2018

Proc. ACM Hum.-Comput. Interact.

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mHealth applications ("apps") must be searched for and downloaded prior to use, creating a potential barrier to uptake. Integrating health interventions into existing online social environments removes this barrier. However, little is known about the effects of linking sensitive health information to existing online identities. Our qualitative analysis of online comments (n=192) explores the user views of an HIV intervention integrated into the geosocial hookup app Grindr. We find some HIV positive users report keeping their status private to reduce their stigma exposure, whilst others report publicly disclosing their status to avoid being stigmatised by others. Where users keep their status private, we find concerns that social assumptions may develop around these non-disclosures, creating a privacy unraveling effect which restricts disclosure choice. Using Peppet's four proposed limits to privacy unraveling, we develop a set of descriptive conceptual designs to explore the privacy respecting potential of these limits within this context and propose further research to address this privacy challenge. CCS Concepts: • Human-centered computing → Empirical studies in collaborative and social computing; Social networks; • Security and privacy → Social aspects of security and privacy;

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Section: Use Of Online Commentsmentioning

confidence: 99%

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr

Warner

Gutmann

Sasse

et al. 2018

Proc. ACM Hum.-Comput. Interact.

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“…In line with previous adoptions of this approach for analysis [37,66,81], two authors independently and inductively coded all comments at the comment level for both semantic and latent meaning. These authors then iteratively refined this list of codes together into themes connecting across the comments, then shared these themes with the other authors for finalization.…”

Section: Methodsmentioning

confidence: 99%

"I Hope This Is Helpful"

Simons

Gurari

Fleischmann

2020

Proc. ACM Hum.-Comput. Interact.

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AI image captioning challenges encourage broad participation in designing algorithms that automatically create captions for a variety of images and users. To create large datasets necessary for these challenges, researchers typically employ a shared crowdsourcing task design for image captioning. This paper discusses findings from our thematic analysis of 1,064 comments left by Amazon Mechanical Turk workers using this task design to create captions for images taken by people who are blind. Workers discussed difficulties in understanding how to complete this task, provided suggestions of how to improve the task, gave explanations or clarifications about their work, and described why they found this particular task rewarding or interesting. Our analysis provides insights both into this particular genre of task as well as broader considerations for how to employ crowdsourcing to generate large datasets for developing AI algorithms.

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“…People are often surprised by the type of data that platforms collect about them, and feel that the amount of data collected is unnecessary [55]. Yet even when participants are made aware and respond negatively, they continue to use the apps or disclose more information than they indicated they would be willing to, in what is referred to as the 'privacy paradox' [18,47,55,65,68]; people are often very pragmatic and are willing to trade some amount of privacy for convenience [18]. Many are also unaware that the information they put online may be shared with or sold to other platforms or companies [2,9,66], often assuming that the main source of income is from advertising [22].…”

Section: Adults' Perceptions Of Personal Data Onlinementioning

confidence: 99%

“…Feelings of apathy [55], uncertainty [1], 'creepiness' [55], and a lack of security [36] have also been found. Many accept that it happens but experience powerlessness, dejection, and resignation [18,55,66]. Marreiros et al categorise users as the 'scared', who are worried about their privacy, the 'naive', who do not understand how information is collected, and the 'meh' who understand but are not worried about their privacy [42].…”

Section: Adults' Perceptions Of Personal Data Onlinementioning

confidence: 99%

“…Marreiros et al categorise users as the 'scared', who are worried about their privacy, the 'naive', who do not understand how information is collected, and the 'meh' who understand but are not worried about their privacy [42]. There is also recognition of personal accountability for what data users share online, although often in combination with feeling that platforms do not take enough responsibility and make user agreements deliberately obscure in order to hide what they are collecting [18]. Younger adults also feel the need to balance their desire for privacy with their desire for 'publicity' [60].…”

Section: Adults' Perceptions Of Personal Data Onlinementioning

confidence: 99%

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"It's your private information. it's your life."

Dowthwaite

Creswick

Portillo

et al. 2020

Proceedings of the Interaction Design and Children Conference

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Children and young people make extensive and varied use of digital and online technologies, yet issues about how their personal data may be collected and used by online platforms are rarely discussed. Additionally, despite calls to increase awareness, schools often do not cover these topics, instead focusing on online safety issues, such as being approached by strangers, cyberbullying or access to inappropriate content. This paper presents the results of one of the activities run as part of eleven workshops with 13-18 year olds, using co-designed activities to encourage critical thinking. Sets of 'data cards' were used to stimulate discussion about sharing and selling of personal data by online technology companies. Results highlight the desire and need for increased awareness about the potential uses of personal data amongst this age group, and the paper makes recommendations for embedding this into school curriculums as well as incorporating it into interaction design, to allow young people to make informed decisions about their online lives.

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"We Are the Product"

Cited by 54 publications

References 36 publications

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr

"I Hope This Is Helpful"

"It's your private information. it's your life."

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