Walls, wisdom, worries, and wishes: Engaging communities in discussion about death, dying, loss, and care using Café Conversation

McLoughlin, Kathleen; McGilloway, Sinéad; Lloyd, RE; O’Connor, Margaret; Rhatigan, Jim; Shanahan, Melanie; Richardson, M.; Keevey, A.

doi:10.1179/1743291x15y.0000000011

Cited by 11 publications

(6 citation statements)

References 4 publications

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“…Respondents were older than the UK population as a whole (46% were over the age of 65 compared with 22% of adults over 20 in England [26]); were more often female (76% compared with approximately 51%); and experienced lower levels of neighbourhood deprivation. The preponderance of females mirrors the experience of a project in Ireland, which used ‘Cafe Conversation’ events to stimulate discussion about similar issues [27]. This suggests that these type of events might be of more interest to, or more accessible by, women compared with men.…”

Section: Discussionmentioning

confidence: 90%

“…In published literature, other interventions that were well-regarded by participants, and were able to generate discussion, include a collaboration between academics and older people to develop an information booklet and peer education programme [32]; a series of public information ‘roadshows’ held in town centres [33] and publicly advertised ‘Café Conversation’ events [27]. All of these interventions, like the CLWDW events, were participatory or interactive in nature, covered subjects of universal relevance (such as planning funerals and coping with bereavement), and ensured that participation was both informed and optional.…”

Section: Discussionmentioning

confidence: 99%

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Discussing end of life wishes – the impact of community interventions?

2019

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Background Many people do not discuss end of life preferences with those closest to them, although this can be beneficial to the individual and wider population. This study evaluated a community intervention to promote end of life preparation and discussion among people who are currently well. Methods A series of presentations and workshops (the intervention) were delivered to community groups and people working within health and social care. Participants were invited to complete a three-stage follow-up survey at Baseline, Post intervention and at three months' follow-up. Results Baseline questionnaires were completed by 498 individuals. Overall, 51% reported talking with close family or friends about their end of life care and 58% reported talking about what they would like to happen after their death. There was a significant positive relationship between increasing age group and having talked about end of life wishes. The majority of participants were already comfortable in talking about end of life (overall mean score 8.28/10). Post intervention, 73% stated that they planned to take action including 61% who planned a specific conversation and 55% who planned another action. At follow-up 64% reported that they had taken some action due to the intervention, including 43% who had talked about their own end of life preferences and 39% who had taken some other action. Conclusions Well-designed community-based interventions can be successful in prompting people to consider and discuss their end of life preferences. Electronic supplementary material The online version of this article (10.1186/s12904-019-0407-8) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 90%

Section: Discussionmentioning

confidence: 99%

Discussing end of life wishes – the impact of community interventions?

2019

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“…Beyond the home, other social platforms were understood to provide structure to the processes of rippling out and communication flow. The Café Conversations’ activities described by McLoughlin and colleagues 57,58 and the use of arts and social media described by Mills and colleagues 60 are examples of how social spaces can be built whereas places of worship, cinemas, parks and even hospitals contain existing spaces that can be recreated in such a fashion when viewed through the appropriate lens. 82,27…”

Section: Structuresmentioning

confidence: 99%

New public health approaches to palliative care, a brave new horizon or an impractical ideal? An Integrative literature review with thematic synthesis

et al. 2021

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Access to palliative care for marginalized communities is frequently problematized as a major challenge facing palliative care services. The traditional response of asking what services can do for the disadvantaged has been invigorated by a new wave of public health measures that embrace death and dying as social processes and ask, what can be done together with such communities as partners working in palliative care. Such work has generated a significant amount of academic, social and political interests over the last 20 years; however, we are yet to see a consistent and sustained change in approach from providers. We argue that this is due to inherent tensions that arise when modelling death, dying and loss as a unified and shared social process. Unresolved tensions destabilize the theoretical foundations and risk misrepresentation of core philosophies. In this integrative review of 75 articles, we present previously undiscussed areas of contention drawing from a pan-disciplinary field of theoretical and empirical evidence. We conclude that new public health approaches lack a consistent and unified theoretical approach. From philosophical, ontological and existential ideas relating to how different stakeholders conceptualize death, to the processes by which communities are motivated and their constituent members empowered through responsibilized notions of duty and reciprocity, there is little acknowledgement of the complex tensions at hand. Increasing academic and political initiative alone is not enough to progress this movement in a manner that achieves its full potential. Instead, we must pay greater attention to the tensions described. This article aims to work with such tensions to better define the landscape of collective moral responsibility in end-of-life care. We believe that this is crucial if palliative care is to avoid becoming a technical speciality with community and communitization reduced to a mere technical solution to more profound questions.

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“…The Life Issue Café is different from the Death Café in previous studies [ 21 ] because it does not directly touch the issue of death but instead rationalizes the importance of compassion firstly through discussion and engagement. It is inspired by the Milford Care Centre (MCC)’s Compassionate Communities Project that uses Café Conversation to engage their communities in discussion about death, dying, loss, and care [ 22 ]. The method explores collaborative creativity and thought through flexible small group talks.…”

Section: Experience and Preliminary Outcomementioning

confidence: 99%

Implementation of Compassionate Communities: The Taipei Experience

2022

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A worldwide movement to empower communities to support their members to care for each other at the end of life (EoL) has emerged since Kellehear published the Compassionate City Charter. This current report discusses the implementation experiences and preliminary outcomes of Compassionate Communities (CC) in Taipei City. Using the guidance of the Charter and international experiences, we have developed and multiplied a culturally sensitive, sustainable, and holistic CC program that composes municipal hospital, social, and other services, partnering with community leaders, non-governmental organizations, university students, and volunteers. Innovative campaigns, such as workshops, conferences, and the Life Issue Café, have been delivered to facilitate engagement, public education, and leadership with reverence to folk beliefs and the use of existing social networks. We have identified a model with strong collaborative leadership, high participation rates, and ongoing commitment. The gaps between asking/accepting and providing help were bridged when social connectedness was strengthened. We also integrated home-based medical care, home-based palliative care, and advance care planning to help the vulnerable who live alone, with poor status, or with limited resource access, and continue to support the community throughout the COVID-19 pandemic.

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Walls, wisdom, worries, and wishes: Engaging communities in discussion about death, dying, loss, and care using Café Conversation

Cited by 11 publications

References 4 publications

Discussing end of life wishes – the impact of community interventions?

Discussing end of life wishes – the impact of community interventions?

New public health approaches to palliative care, a brave new horizon or an impractical ideal? An Integrative literature review with thematic synthesis

Implementation of Compassionate Communities: The Taipei Experience

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