Walls and Barriers. Polish Achievements and the Challenges of Transformation: Building a Hospice Movement in Poland

Krakowiak, Piotr; Skrzypińska, Katarzyna; Damps-Konstańska, Iwona; Jassem, Ewa

doi:10.1016/j.jpainsymman.2016.07.009

Cited by 7 publications

(7 citation statements)

References 6 publications

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“…However, most available literature discussed issues pertinent to the practical and conceptual introduction of EoLC, and there is a notable lack of discussion on the theoretical underpinning of EoLC initiatives. Taking into consideration the overall lack of systematic examination EoLC as a social movement, and targeting this knowledge gap [12][13][14][16][17][18][19][20][21][22][23][24][25][26][27], a social movement theory, the Framing Perspective, is used to examine data to analyse the emergence and stagnation of EoLC in Macao. Such a perspective enables a systemic and theoretical examination of the EoLC in the Chinese socio-cultural environment of Macao.…”

Section: Background Page 3/13mentioning

confidence: 99%

Case study analysis of end of life care development: A social movement perspective

Tam

Haycock-Stuart

Rhynas

2021

Preprint

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Background The modern hospice movement is often recognised as a social movement. However, such understanding is primarily based on historic reflection and this approach has lacked theoretical exploration. The modern hospice movement has not been examined by way of any social movement theory. Aim This study addressed the theoretical gap in understanding the end of life care (EoLC) development in Macao China. Focusing on the Chinese socio-cultural context, this study explored the EoLC movement through the social movement theory, the Framing Perspective, as proposed by Snow and Benford in 1988. Methods A case study approach was conducted. Semi-structured interviews were held between 2012 and 2013, with pioneers (n = 11) of the EoLC in Macao. Thematic analysis was adopted to analyse the interviews. Results The EoLC development in Macao can be understood as a social movement. The Framing Perspective analysis illuminated that there was both growth and stagnation of the EoLC movement. Three themes emerged: 1) the suffering of people at the end of their lives was considered as a social problem needed to be addressed urgently, 2) the incoherent EoLC strategies developed by pioneers indicated the lack of internal ideological cohesion within the movement, 3) external constraints contributed to the stagnation of the movement. Conclusions The Framing Perspective provided a theoretical way to understand the emergence of EoLC; offering a novel perspective to conceptualise the modern hospice movement. This sociological and theoretical lens opened up new ways for future research to study the emergence of EoLC in different socio-cultural contexts.

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Section: Background Page 3/13mentioning

confidence: 99%

Case study analysis of end of life care development: A social movement perspective

Tam

Haycock-Stuart

Rhynas

2021

Preprint

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“…5 Recent papers regarding HPC in Poland have acknowledged British influence, and Dame Cicely Saunder's personal friendship towards Poland, 23 while others have shown the problems of walls and barriers to the care system in Poland and Eastern Europe. 24 According to the European Association of Palliative Care (EAPC) Atlas 2019, Poland was one of the first Eastern European countries to have a national Palliative Care (PC) programme. With its 587 PC services in the country and 1.5 services per 100,000 inhabitants, Poland scores highest in Eastern Europe and is one of the best PC providers in the whole of Europe.…”

Section: Successes In Eolc Provision For Cancer Patients By Hpc In Pomentioning

confidence: 99%

“…5 Recent papers regarding HPC in Poland have acknowledged British influence, and Dame Cicely Saunder’s personal friendship towards Poland, 23 while others have shown the problems of walls and barriers to the care system in Poland and Eastern Europe. 24 …”

Section: Successes In Eolc Provision For Cancer Patients By Hpc In Pomentioning

confidence: 99%

“…Poland with those just initiated actions could again be the leader of changes, as it was over 30 years ago with beginnings of HPC and solidarity of care. 24 …”

Section: Learning From the Uk Experience To Empower And Include Familmentioning

confidence: 99%

“…Poland with those just initiated actions could again be the leader of changes, as it was over 30 years ago with beginnings of HPC and solidarity of care. 24 The need for integration of EOLC and inclusion of family carers: CC and development of EOLC social work in Poland Is it possible to work together with those who are dying and their families in Poland? Together with the medical aspects of care, there is an urgent need for better psychological and spiritual care, as well as for social care.…”

Section: Gaps and Lack Of Cooperation In Eolc In Poland And Ceementioning

confidence: 99%

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Gaps in end-of-life care and lack of support for family carers in Poland and Central Eastern Europe

Krakowiak

2020

Palliat�Care

Self Cite

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The growth of life expectancy in Central Eastern Europe and increase in the number of older people in that region are the consequences of changes in the 1990s period, connected to transition from the communism into a market economy. Central Eastern Europe is already facing consequences of fast ageing and insufficient development of state health care and social services. Those result in gaps in the provision of end-of-life care and overburden of family caregivers. This essay addresses gaps in end-of-life care, showing the development of hospice-palliative care on one side, and highlighting main problems with long-term care on the other. There is scarce support for informal caregivers and lack of cooperation between health and social care. End-of-life care is over medicalized in hospice-palliative care and hardly existing in long-term care. Dying is more a social than medical event, and as such, it should be cared for by compassionate communities, encouraging cooperation of professionals with family caregivers and society. Unfortunately, to date, there is no adequate cooperation in social dimension of end-of-life care in most of Central Eastern Europe. The social dimension of end-of-life care has to be recognized and empowered with the health promoting palliative care and introduction of compassionate communities in Central Eastern Europe.

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End-of-life and hospice care for neurologic illness

Daly¹,

Ramanathan

2022

Handbook of Clinical Neurology

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Walls and Barriers. Polish Achievements and the Challenges of Transformation: Building a Hospice Movement in Poland

Cited by 7 publications

References 6 publications

Case study analysis of end of life care development: A social movement perspective

Case study analysis of end of life care development: A social movement perspective

Gaps in end-of-life care and lack of support for family carers in Poland and Central Eastern Europe

End-of-life and hospice care for neurologic illness

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