Walking interviews as a research method with people living with dementia in their local community

Kullberg, Agneta; Odzakovic, Elzana

doi:10.4324/9781315517490-3

Cited by 11 publications

(19 citation statements)

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“…The study employed a mix of qualitative data collection methods (Morse and Niehaus, 2009) aimed at supporting the participation of people with dementia, and was framed by a social constructionist paradigm (Berger and Luckmann, 1966). We used walking interviews (Carpiano, 2009;Clark and Emmel, 2010;Clark, 2017;Kullberg and Odzakovic, 2017), social network mapping (Emmel and Clark, 2009;Clark, 2017;Campbell et al, 2019) and home tours, which drew upon Pink's (2009) 'walking with video method', and where possible the network maps and walking interviews were repeated after a period of 8-12 months. In the English and Scottish field sites, we started with interviews outside the home, using walking interviews (Carpiano, 2009; Clark and Emmel, 2010; Clark, 2017; Kullberg and Odzakovic, 2017) before moving on to home-based interviews using social network mapping and/or home tours (Emmel and Clark, 2009;Pink, 2009;Clark, 2017;Campbell et al, 2019).…”

Section: Methodsmentioning

confidence: 99%

‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia

et al. 2019

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The extent of social isolation experienced by people living with dementia who reside in the community has been well acknowledged, yet little is known about how people living alone with dementia maintain neighbourhood-based connections. The purpose of this study is to examine the experiences of people with dementia who live alone, focusing upon how they establish social networks and relationships in a neighbourhood context, and how they are supported to maintain this social context within everyday life. Multiple data collection methods were used including, semi-structured interviews, walking interviews, guided home tours and social network mapping, which were conducted with 14 community-dwelling people living alone with dementia (11 women and three men) situated across the three international study sites in England, Scotland and Sweden. Data were analysed using thematic analysis. The analysis revealed four main themes: (a) making the effort to stay connected; (b) befriending by organisations and facilitated friendships; (c) the quiet neighbourhood atmosphere; and (d) changing social connections. The analysis suggests that people with dementia who live alone were active agents who took control to find and maintain relationships and social networks in the neighbourhood. Our findings indicate the need to raise awareness about this specific group in both policy and practice, and to find creative ways to help people connect through everyday activities and by spontaneous encounters in the neighbourhood.

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Section: Methodsmentioning

confidence: 99%

‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia

et al. 2019

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“…The data in this thesis were based on a cross-sectional quantitative study and a mix of qualitative data collection methods (Morse & Niehaus, 2009). The following qualitative data collection methods were used: walking interviews (Carpiano, 2009;Clark, 2017;Clark & Emmel, 2010;Kullberg & Odzakovic, 2017); semi-structured individual and group interviews (Polit & Beck, 2016); mapping social networks (Campbell et al, 2019;Clark, 2017;Emmel & Clark, 2009); home tours "walking with video" (Pink, 2009); and shadowing (McDonald, 2005). Each of these methods is described in detail in relation to the different studies.…”

Section: Methodsmentioning

confidence: 99%

“…In study III, the walking interviews in all three field sites were used where the participants living alone with dementia took the researcher on a tour through their neighbourhood. Movement through the neighbourhood creates a connection and dialogue between the participants and the researcher (Carpiano, 2009;Clark & Emmel, 2010;Kullberg & Odzakovic, 2017). Data were gathered between 2013 and 2016.…”

Section: Multiple Data Collection Methods (Study Iii)mentioning

confidence: 99%

“…During data collection, the researchers asked the participants to lead the walk (Kusenbach, 2012) in line with the walking interview methodology (Clark, 2017;Clark & Emmel, 2010) and despite their cognitive impairment (Kullberg & Odzakovic, 2017). Almost all participants led and took control of the walk.…”

Section: The Principle Of Non-maleficencementioning

confidence: 99%

“…The researchers then led the walk home to ensure that the participant was safe and unharmed. In addition, the researchers took responsibility for the health of the participants by ensuring that the participants were well enough to walk on the chosen day and whether they displayed any signs of sickness or tiredness (Kullberg & Odzakovic, 2017), in which case the interviews did not take place to avoid any potential harm on the participants. Instead, the researchers would suggest coming back another day.…”

Section: The Principle Of Non-maleficencementioning

confidence: 99%

See 2 more Smart Citations

Neighbourhood nursing : connection, place and meaning in the everyday experience of dementia

Odzakovic

2020

Linköping University Medical Dissertations

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What matters most: Exploring the everyday lives of people with dementia

Huizenga

Scheffelaar

Bleijenberg

et al. 2023

Int J Geriat Psychiatry

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ObjectivesResearch on what matters most to people with dementia is crucial for developing tailored interventions and support. This study explored how people with dementia experience their everyday lives, providing insight into what is important to them to live the best they can at home.MethodsInspired by a phenomenological approach, open interviews were conducted with 15 people with dementia, supplemented by home tours and walking interviews. Data collection included one to three sessions per participant. Data were analysed using descriptive content analysis and followed the phases of open, axial, and selective coding. A co‐researcher group of seven people with dementia was consulted during the analysis to help interpret the emergent findings.FindingsSix dimensions of what matters most in everyday life were identified: 1) Engaging in meaningful activities, which included routines, household chores, leisure, day activities, and volunteering or work; 2) Keeping a sense of connection, in relationships within the home, with family, friends, groups, and the neighbourhood; 3) Having a sense of belonging, which included attachments inside and outside the home, and to cherished objects; 4) Connecting to self, which included the ability to reflect on past experiences, live in the present moment and anticipate the future; 5) Adjusting to ongoing changes, which included alterations in sensory perceptions, perceptions of the physical environment, and navigating shifts in interpersonal dynamics; 6) Being open to help and support, from professionals, community and society.ConclusionsFor people with dementia, everyday life is a continuous balancing act between what matters most and what can be achieved daily. This is not only related to dementia but is also embedded in the wider perspective of life history, relational networks, and the physical environment. This study highlights the importance of identifying what matters most to people with dementia to provide person‐centred support.

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Walking interviews as a research method with people living with dementia in their local community

Cited by 11 publications

References 1 publication

‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia

‘It's our pleasure, we count cars here’: an exploration of the ‘neighbourhood-based connections’ for people living alone with dementia

Neighbourhood nursing : connection, place and meaning in the everyday experience of dementia

What matters most: Exploring the everyday lives of people with dementia

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