‘Walk a mile in my shoes:’ African American caregiver perceptions of caregiving and self-care

Cothran, Fawn A.; Paun, Olimpia; Strayhorn, Shaila M.; Barnes, Lisa L.

doi:10.1080/13557858.2020.1734777

Cited by 24 publications

(20 citation statements)

References 50 publications

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“…The researchers ensured that all caregivers were established with a healthcare provider, and the number to a 24-h crisis hotline was provided. These findings were similar to those of prior studies [ 4 , 32 ] that described caregiver symptoms as outcomes of depression and anxiety.…”

Section: Discussionsupporting

confidence: 91%

“…Additionally, African American caregivers are more likely to have lower incomes and be unmarried [ 2 ]. Although the non-refereed literature is abundant with findings regarding the increasing role of male caregivers in our aging society, the contributions of African American male caregivers have been underrepresented in peer-reviewed publications [ 4 , 5 ]. Gaps may exist due to the lack of African American male caregivers’ awareness of being family caregivers.…”

Section: Introductionmentioning

confidence: 99%

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The Experiences of African American Male Caregivers

et al. 2022

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Aging of the population has led to an increasing number of caregivers. While research has been conducted on caregiver experiences, less is known about the experiences of African American males in the U.S. This qualitative descriptive study describes the experiences of 13 African American men who acted as caregivers to adult chronically ill or debilitated loved ones, the majority of whom provided care during the COVID-19 pandemic. The revised Sociocultural Stress and Coping Model (R-SSCM) guided this study. Individual interviews were conducted via the Zoom application. Content analysis revealed four themes: (1) “My time to take the reins”, (2) “It’s a male thang”, (3) “Caring amid a pandemic”, and (4) “Effects of the caregiver’s journey”. This study’s findings in relation to the literature provide overdue attention to the African American male caregiving experience, especially in relation to the COVID-19 pandemic. The implications of our findings include the need for more culturally congruent support services for African American male caregivers, as well as increased efforts to encourage trust in the healthcare system—especially in relation to vaccination for the SARS-CoV-2 virus.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

The Experiences of African American Male Caregivers

et al. 2022

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“…In a recent meta-analysis of racial and ethnic dementia family caregiver interventions, African American dementia family caregivers possessed better psychological well-being on average in comparison to White caregivers (Liu et al, 2020). Further, subjective stress perceptions derived from African American caregivers’ qualitative interviews describe varied forms of caregiving hardship or negative aspects, juxtaposed with seemingly discordant quantitative survey responses indicating low burden or higher quality of life (Brewster et al, 2020a; Cothran et al, 2020). These important differences in subjective responses further demonstrate misalignment and a need for further investigation in research.…”

Section: Stress African American Caregivers and Health Outcomesmentioning

confidence: 99%

A Landscape of Subjective and Objective Stress in African-American Dementia Family Caregivers

et al. 2021

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Stress is a significant part of daily life, and systemic social inequities, such as racism and discrimination, are well-established contributors of chronic stress for African Americans. Added exposure to the stress of caregiving may exacerbate adverse health outcomes. This secondary analysis describes subjective and objective stress in African American family caregivers, and relationships of subjective and objective stress to health outcomes. Baseline data from 142 African American dementia family caregivers from the “Great Village” study were described using means and frequencies; regression models and Pearson’s correlation were used to examine associations between demographics, social determinants of health, and health outcomes. Mixed models were used to examine change and change variation in cortisol. Most caregivers had moderate degrees of stress. Stress was associated with sleep disruption and depressive symptoms, and discrimination appeared to be an independent contributor to depressive symptoms. This work provides a foundation for interpreting subjective and objective indicators of stress to tailor existing multicomponent interventions.

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“…Patients' and families' ethno-cultural backgrounds are known to play a role outside the hospital. Ethno-cultural groups differ in their norms, values, and attitudes to supporting older adults [13][14][15][16][17]. Studies in home care settings suggest these differences are manifested in the scope and diversity of family caregivers' networks, the amount of time they provide care, their resources and level of burden [18][19][20].…”

Section: Introductionmentioning

confidence: 99%

Patterns of Informal Family Care During Acute Hospitalization of Older Adults from Different Ethno-Cultural Groups in Israel.

Shulyaev

Gur‐Yaish

Shadmi

et al. 2020

Preprint

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Introduction Informal caregiving during hospitalization of older adults is significantly related to hospital processes and patient outcomes. Studies in the home settings demonstrate that ethno-cultural background is related to various aspects of informal caregiving; however, this association in the hospital setting was insufficiently researched.Objectives Our study looked for differences between ethno-cultural groups in the amount and kind of informal support they provided for older adults during hospitalization.Methods This study is a secondary data analysis of two cohort studies conducted in Israeli hospitals. Hospitalized older adults were divided into three groups: Israeli-born and veteran immigrant Jews, Arabs, and Jewish immigrants from the Former Soviet Union (FSU).Results Informal caregivers of “FSU immigrants” stayed less hours during the day in both cohorts, were less present during the night in study 1, and provided less supervision of medical care in study 2, in comparison to the two other groups. Findings from study 1 also suggested that informal caregivers of “Arab” older adults were more likely to stay during the night in comparison to the two other groups.Conclusion Ethno cultural groups differ in terms of the patterns of caregiving older adults during hospitalization. Health care professionals should be aware of these patterns and the cultural norms that are related to caregiving practices for better cooperation between informal and formal caregivers of older adults.

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‘Walk a mile in my shoes:’ African American caregiver perceptions of caregiving and self-care

Cited by 24 publications

References 50 publications

The Experiences of African American Male Caregivers

The Experiences of African American Male Caregivers

A Landscape of Subjective and Objective Stress in African-American Dementia Family Caregivers

Patterns of Informal Family Care During Acute Hospitalization of Older Adults from Different Ethno-Cultural Groups in Israel.

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