Vulnerability, social value and the equitable sharing of benefits from research: beyond the placebo and access debates
Chieko Kurihara,
Dirceu Greco,
Ames Dhai
et al.
Abstract:The vulnerability of research participants is a critical topic for the 2024 revision of the Declaration of Helsinki, with the proposal to include “social value. ” However, this proposal has been withdrawn and the relationship between the two concepts has not been clarified. This paper attempts to clarify: (1) the recent reform for the ethical inclusion of vulnerable study participants to promote diversity; (2) the social value, prerequisite for everyone, especially for those who are vulnerable and the most in … Show more
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