Abstract:Nursing scientists have long been interested in complex, context-dependent questions addressing individual- and population-level challenges in health and illness. These critical questions require multilevel data (e.g., genetic, physiologic, biologic, behavioral, affective, and social). Advances in data-gathering methods have resulted in the collection of large sets of complex, multifaceted, and often non-comparable data. Scientific visualization is a powerful methodological tool for facilitating understanding … Show more
“…Researchers have shared strategies for analyzing family-level data, such as conducting within- and across-case analysis in phenomenological family studies (Ayres et al, 2003), and case summaries, matrices, and other visual methods of analyzing large amounts of data from various categories of participants, including parents, physicians, nurses, and social workers (Docherty et al, 2017; K. A. Knafl & Ayres, 1996).…”
Section: Application Of Case Study Methods To Existing Family Research Techniquesmentioning
Research on how and why family processes influence phenomena is essential to advancing many areas of science. Case study methods offer an approach that overcomes some of the sampling and analysis obstacles researchers face when studying families. This article aims to illustrate the benefits of case study methods for studying complex family processes using an example from treatment decision-making in sickle cell disease. Using survey, observation, and interview data from various family members within multiple family units, we detail our application of the following analytic strategies: (a) proposition-building, (b) pattern-matching, and (c) cross-case synthesis. Incorporating propositions from a conceptual framework assisted us in study development, data collection, and analysis. Development of graphs and matrices to create thematic family profiles uncovered how and why treatment decision-making occurred as a family process in a pediatric chronic illness. Case study methods are an established, but innovative approach to investigating various phenomena in families.
“…Researchers have shared strategies for analyzing family-level data, such as conducting within- and across-case analysis in phenomenological family studies (Ayres et al, 2003), and case summaries, matrices, and other visual methods of analyzing large amounts of data from various categories of participants, including parents, physicians, nurses, and social workers (Docherty et al, 2017; K. A. Knafl & Ayres, 1996).…”
Section: Application Of Case Study Methods To Existing Family Research Techniquesmentioning
Research on how and why family processes influence phenomena is essential to advancing many areas of science. Case study methods offer an approach that overcomes some of the sampling and analysis obstacles researchers face when studying families. This article aims to illustrate the benefits of case study methods for studying complex family processes using an example from treatment decision-making in sickle cell disease. Using survey, observation, and interview data from various family members within multiple family units, we detail our application of the following analytic strategies: (a) proposition-building, (b) pattern-matching, and (c) cross-case synthesis. Incorporating propositions from a conceptual framework assisted us in study development, data collection, and analysis. Development of graphs and matrices to create thematic family profiles uncovered how and why treatment decision-making occurred as a family process in a pediatric chronic illness. Case study methods are an established, but innovative approach to investigating various phenomena in families.
“…The multiple data types (surveys and biological indicators) will be plotted across time (days since transplant) and examined for trends. Plotting will be done by using a case‐oriented visual analysis to describe trends in the person reported data over the 8–12 weeks post‐transplant informed by qualitative themes by graphically assembling the multiple types of quantitative data along a timeline and then visually searching for patterns (Docherty et al., 2016). Themes from the interview data will provide contextual grounding for the cases and insights into factors influencing caregiver stress, psychological states and QOL.…”
Aims
This protocol directs a study that aims to: (a) describe the caregiver's experience over 8–12 weeks after an index adult patient's allogeneic bone marrow transplant (BMT) for advanced cancer using a case‐oriented approach and mixed methods, with qualitative methods in the foreground; and (b) explore networks of relationships among psycho‐neurological symptoms, positive psychological states and caregiver health.
Design
Case‐oriented longitudinal design using multiple data types and analytic approaches.
Methods
Data will be collected from 10–12 caregivers. The sample will be recruited from a large public hospital in the southeastern United States using maximum variation sampling (e.g., caregiver race/ethnicity, relationship to patient, age, education, and number of caregiving roles). Participants will be asked to complete weekly surveys, have their blood drawn bi‐weekly and participate in an interview each month during the study period (~100 days). Aim 1 analysis will include directed content analysis and case‐oriented visual analysis. Aim 2 analysis will include symptom network estimation of psycho‐neurological symptoms, positive psychological states, and caregiver health. Institutional review board approval was obtained August 2018.
Discussion
Results will provide an in‐depth description of caregivers’ experiences in the 100 days after BMT. Findings will inform generation of hypotheses and identification of targets for interventions to improve caregiver's experiences after BMT.
Impact
This in‐depth multi‐method longitudinal study to describe caregivers of adult patients receiving an allogeneic BMT is an essential step in understanding caregivers’ complex responses to chronic stress and the role of positive psychological states. The results from this study will inform future research on chronic stress processes, intense caregiving, and intervention development.
“…Placement of the data in juxtaposition to each other allows data comparison, contrast, or extension in relation to each other (Sandelowski, 2014). In the conversion type of mix, sources of data are collected, but then are integrated prior to analysis through conversion or assimilated of the data sources into a new data-type (e.g., Britt & Evans, 2007;Caiola, Barroso, & Docherty, 2017;Docherty, Vorderstrasse, Brandon, & Johnson, 2017).…”
Precision health can provide an avenue to bridge and integrate ways of knowing for research and practice. Nurse scientists have a long-standing interest in using multiple sources of information to address research questions of significance to the profession and discipline of nursing, which can lead to much needed contributions to precision health care. In this paper, nursing scientists discuss emerging research methods including omics, electronic sensors, and geospatial data, and mixed methods that further develop nursing science and contribute to precision health initiatives. The authors provide exemplars of the types of knowledge and ways of knowing that, using these and other advanced data and analytic strategies, may advance precision health within the context of nursing science.
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