Vision-Related quality of life in children with glaucoma

Abstract

Although reporting vision-related quality of life (VRQoL) outcomes has become increasingly common in adult glaucoma studies, little is known about the influence of disease severity, medication burden, and surgical experience on the quality of life of children with glaucoma. We tested the feasibility of administering a self-reported VRQoL instrument and describe the VRQoL in children with glaucoma. Better VRQoL was correlated with higher visual acuity in the better-seeing eye but not the number of surgeries the child had undergone or the number of prescribed eyedrops.

Changes in vision related quality of life in patients with diabetic macular edema: Ranibizumab or laser treatment?

“…The VFQ-25 has been used to measure VR-QoL in several chronic ocular diseases, such as glaucoma, keratoconus, adult macular degeneration, uveitis and DME (Aydin Kurna et al, 2014;Cahill, Banks, Stinnett, & Toth, 2005;Freedman et al, 2014;Jivraj, Jivraj, Tennant, & Rudnisky, 2013;Kaleemunnisha et al, 2014;Lightman et al, 2013;Miskala et al, 2004;Sakai et al, 2013). The RESTORE trial (Mitchell et al, 2013) is the first to assess the impact of ranibizumab treatment on health related quality of life (HR-QoL) using the VFQ-25.…”

“…The survey measures the influence of visual disability and visual symptoms on health-related quality of life such as emotional well-being and social functioning in patients with severe eye conditions (Aydin Kurna, Altun, Gencaga, Akkaya, & Sengor, 2014;Freedman, Jones, Lin, Stinnett, & Muir, 2014;Kaleemunnisha, Sudharshan, & Biswas, 2014;Lightman et al, 2013;Miskala, Bressler, & Meinert, 2004;Sakai et al, 2013). The purpose of this study was to compare the changes in vision related quality of life (VR-QoL) in patients with DME undergoing IVR injection or focal/grid laser.…”

Quality of life and functional vision in children treated for cataract—a cross-sectional study

“…However, during enrolment we did not encounter any family who could not communicate in English. Similarly, the number of general anaesthetics (including EUAs, as these are often arranged on the understanding that should findings indicate a need for additional surgery, this will be carried out under the same anaesthetic) has been used as a proxy for episodes of emotional upset and anxiety 20 . However, our study was not powered to explore associations between QoL and putative risks factors for a reduction in QoL.…”

Primary congenital glaucoma in Denmark, 1977–2016

“…Diagnosis and treatment of childhood glaucoma may be challenging, and life‐long follow‐up is necessary and often demanding and it may reduce the quality of life of patients, relatives and caregivers (Freedman et al. ; Gothwal et al. , ; Dahlmann‐Noor et al.…”

“…Primary congenital glaucoma (PCG) is a rare disease. Diagnosis and treatment of childhood glaucoma may be challenging, and life-long follow-up is necessary and often demanding and it may reduce the quality of life of patients, relatives and caregivers (Freedman et al 2014;Gothwal et al 2016Gothwal et al , 2018Dahlmann-Noor et al 2017). Primary congenital glaucoma (PCG) is potentially a visually disabling disease due to optic nerve atrophy, amblyopia, corneal affection, high refractive errors and it carries a risk of secondary complications that may lead to numerous surgeries.…”