Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis

Disalvo, Domenica; Agar, Meera; Caplan, Gideon A.; Murtagh, Fliss E.M.; Luckett, Tim; Heneka, Nicole; Hickman, Louise; Kinchin, Irina; Trethewie, Susan; Sheehan, Caitlin; Urban, Kat; Cohen, Joshua G.; Harlum, Janeane; Long, B. A.; Parker, Tricia; Schaefer, Isabelle; Phillips, Jane

doi:10.1177/02692163211024451

Cited by 26 publications

(19 citation statements)

References 71 publications

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“…Decision makers should ensure that technology is relevant to the needs of palliative care users, as these requirements will influence the design, use, and function of systems [ 119 , 120 ]. For example, health care professionals may generally use technology to access patient data and communicate with other professionals, whereas patients may wish to access their own health data and contact health care services.…”

Section: Discussionmentioning

confidence: 99%

Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

Nwosu¹,

McGlinchey²,

Sanders³

et al. 2022

JMIR Aging

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Background Developments in digital health have the potential to transform the delivery of health and social care to help citizens manage their health. Currently, there is a lack of consensus about digital health research priorities in palliative care and a lack of theories about how these technologies might improve care outcomes. Therefore, it is important for health care leaders to identify innovations to ensure that an increasingly frail population has appropriate access to palliative care services. Consequently, it is important to articulate research priorities as the first step in determining how finite resources should be allocated to a field saturated with rapidly developing innovation. Objective The aim of this study is to identify research priority areas for digital health in palliative care. Methods We selected digital health trends, most relevant to palliative care, from a list of emerging trends reported by a leading institute of quantitative futurists. We conducted 2 rounds of the Delphi questionnaire, followed by a consensus meeting and public engagement workshop to establish a final consensus on research priorities for digital technology in palliative care. We used the views of public representatives to gain their perspectives on the agreed priorities. Results A total of 103 experts (representing 11 countries) participated in the first Delphi round. Of the 103 experts, 55 (53.3%) participated in the second round. The final consensus meetings were attended by 10.7% (11/103) of the experts. We identified 16 priority areas, which involved many applications of technologies, including care for patients and caregivers, self-management and reporting of diseases, education and training, communication, care coordination, and research methodology. We summarized the priority areas into eight topics: big data, mobile devices, telehealth and telemedicine, virtual reality, artificial intelligence, smart home, biotechnology, and digital legacy. Conclusions The priorities identified in this study represent a wide range of important emerging areas in the fields of digital health, personalized medicine, and data science. Human-centered design and robust governance systems should be considered in future research. It is important that the risks of using these technologies in palliative care are properly addressed to ensure that these tools are used meaningfully, wisely, and safely and do not cause unintentional harm.

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Section: Discussionmentioning

confidence: 99%

Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

Nwosu¹,

McGlinchey²,

Sanders³

et al. 2022

JMIR Aging

View full text Add to dashboard Cite

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“…It reportedly reduced visits by clinicians [ 12 ]. In addition, the software used in telehealth needs to be simple, effective, reliable, and safe with the highest level of security for confidentiality [ 39 ].…”

Section: Discussionmentioning

confidence: 99%

“…However, the current scoping review reported that in remote areas mobile phone coverage, reception and connectivity can be an issue. In addition, older people and digitally inexperienced patients needed to be supported to build their level of confidence and preparedness to engage with virtual care [ 39 ]. Nevertheless, the success and sustainability of telehealth are dependent on factors such as reliable and secure equipment, connectivity and clinician support, and flexibility [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

The use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review

et al. 2022

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Background Accessing quality palliative care, especially at the end of life is vital in reducing physical and emotional distress and optimising quality of life. For people living in rural and remote Australia, telehealth services can be effective in providing access to after-hours palliative care. Objective To review and map the available evidence on the use of telehealth in providing after-hours palliative care services in rural and remote Australia. Method Scoping review using Arksey and O’Malley methodological framework. Findings are reported in accordance with the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Scopus, Web of Science, CINAHL Complete, Embase via Ovid, Emcare via Ovid, and Medline via Ovid databases were searched. Peer-reviewed studies and grey literature published in English from 2000 to May 2021 were included. Results Twelve studies were included in the review. Four main themes were identified: 1) Stakeholder perceptions of service; 2) benefits to services and users; 3) service challenges; and 4) recommendations for service improvement. Conclusion Telehealth can connect patients and families with healthcare professionals and enable patients to continue receiving care at home. However, challenges relating to patients, service, staff skills, and experience need to be overcome to ensure the success and sustainability of this service. Improved communication and care coordination, better access to patient records, and ongoing healthcare professional education are required. Implications Protocols, comprehensive policy documents and standardized operating procedures to guide healthcare professionals to provide after-hours palliative care is needed. Ongoing education and training for staff is crucial in managing patients’ symptoms. Existing service gaps need to be explored and alternative models of after-hours palliative care need to be tested.

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“…Recent systematic reviews revealed that telehealth has been used to connect patients and their caregivers to medical professionals remotely. Examples of telehealth services are telephone consultation, telephone advice and support lines, video consultation, remote patient monitoring [19][20][21][22]. Telehealth has shown to be extremely useful resource for palliative care providers working in rural communities.…”

Section: Plos Onementioning

confidence: 99%

Use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review protocol

et al. 2022

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Introduction After-hours services are essential in ensuring patients with life limiting illness and their caregivers are supported to enable continuity of care. Telehealth is a valuable approach to meeting after-hours support needs of people living with life-limiting illness, their families, and caregivers in rural and remote communities. It is important to explore the provision of after-hours palliative care services using telehealth to understand the reach of these services in rural and remote Australia. A preliminary search of databases failed to reveal any scoping or systematic reviews of telehealth in after-hours palliative care services in rural or remote Australia. Aim To review and map the available evidence about the use of telehealth in providing after-hours palliative care services in Australian rural and remote communities. Methods The proposed scoping review will be conducted using the Arksey and O’Malley methodological framework and in accordance with the Joanna Briggs Institute methodology for scoping reviews. The reporting of the scoping review will be guided by the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). This review will consider research and evaluation of after-hours services using telehealth for palliative care stakeholders in rural and remote Australia. Peer reviewed studies and grey literature published in English from 2000 to May 2021 will be included. Scopus, Web of Science, CINAHL Complete, Embase via Ovid, PsycINFO via Ovid, Emcare via Ovid, Medline via Ovid, and grey literature will be searched for relevant articles. Titles and abstracts will be screened by two independent reviewers for assessment against the inclusion criteria. Data will be extracted and analysed by two reviewers using an adapted data extraction tool and thematic analysis techniques. Diagrams, tables, and summary narratives will be used to map, summarise and thematically group the characteristics of palliative care telehealth services in rural and remote Australia, including stakeholders’ perceptions and benefits and challenges of the services.

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Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis

Cited by 26 publications

References 71 publications

Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

The use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review

Use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review protocol

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