Views and Beliefs of Vitiligo Patients in Online Discussion Forums: A Qualitative Study

Gadarowski, Mary Beth

doi:10.12788/cutis.0432

Cited by 2 publications

(2 citation statements)

References 27 publications

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“…Figure 1 shows the PRISMA flow diagram of the selection criteria. A total of 1398 studies were screened, and 249 studies (17.8%) were ultimately included in the database …”

Section: Resultsmentioning

confidence: 99%

Publication Trends of Qualitative Research in Dermatology

2023

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ImportanceQualitative studies serve as a tool for dermatologists and researchers in dermatology to engage with and understand perspectives of populations with different cultures and backgrounds.ObjectiveTo assess (1) current approaches to qualitative dermatologic research and (2) the publication trends of these studies with the aim to inform researchers regarding qualitative research and its significance and applicability in the field of dermatology.Evidence ReviewA scoping review was conducted in which PubMed and CINAHL Plus were searched using dermatology AND qualitative, dermatology, and 7 qualitative methods terms. Studies were selected for inclusion using 3 levels of screening. Level 1 excluded articles published in a language other than English. Level 2 excluded articles of studies involving mixed methods, quantitative methods, systematic review, and meta-analysis. Level 3 excluded articles that were not specific to general dermatology, medical dermatology, pediatric dermatology, dermatologic surgery, dermatopathology, or education and training associated with dermatology. Finally, all duplicates were removed. The searches were conducted from July 23 to 28, 2022. All articles obtained from PubMed and CINAHL Plus searches were recorded in REDCap.FindingsA total of 1398 articles were reviewed, and of these, 249 (17.8%) were qualitative dermatology studies. Common qualitative methods included content analysis (58 [23.3%]) and grounded theory/constant comparison (35 [14.1%]). Individual interviews were the most common data collection method (198 [79.5%]), and patients (174 [69.9%]) were the most common participant type. Patient experience (137 [55.0%]) was the most common investigated topic. Overall, 131 qualitative studies (52.6%) in dermatology were published in dermatology journals, and 120 qualitative studies (48.2%) in dermatology were published between 2020 and 2022.Conclusions and RelevanceQualitative research in dermatology is becoming more prevalent. There is value in qualitative research, and we encourage researchers in dermatology to incorporate qualitative methods in their studies.

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“…Figure 1 shows the PRISMA flow diagram of the selection criteria. A total of 1398 studies were screened, and 249 studies (17.8%) were ultimately included in the database …”

Section: Resultsmentioning

confidence: 99%

Publication Trends of Qualitative Research in Dermatology

2023

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“…The US Food and Drug Administration (FDA) PRO Guidance and draft Patient-Focused Drug Development (PFDD) Guidance provide standards for sponsors to achieve when selecting, developing or validating PRO measures for use in pharmaceutical clinical trials [6,7]. Considering the known and considerable psychological burden [8], distress [9], stigmatization [9], uncertainty around disease progression [10,11] and impairment of quality of life [8] associated with vitiligo, it is important to have valid, reliable and responsive PRO measures to evaluate patient-relevant experiences in clinical trials and allow patients to report directly on their wellbeing. Ultimately, PRO data can facilitate our understanding of the efficacy of investigational treatments and inform clinical decision making.…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study to Develop and Evaluate the Content Validity of the Vitiligo Patient Priority Outcome (ViPPO) Measures

Kitchen

Gandhi

Carmichael

et al. 2022

Dermatol Ther (Heidelb)

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Introduction: Vitiligo can be associated with a psychological burden, stigmatization and impaired quality of life. Tools to assess the impact of vitiligo exist; however, none were developed in line with the FDA's patient-reported outcome (PRO) Guidance for Industry. This study aimed to explore the content validity of two newly developed PRO measures to assess the impact of facial and total body vitiligo on how patients feel and function. Methods: Draft PRO measures were developed from existing literature and input from PRO experts, a patient advocate and a clinical expert.

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Views and Beliefs of Vitiligo Patients in Online Discussion Forums: A Qualitative Study

Cited by 2 publications

References 27 publications

Publication Trends of Qualitative Research in Dermatology

Publication Trends of Qualitative Research in Dermatology

A Qualitative Study to Develop and Evaluate the Content Validity of the Vitiligo Patient Priority Outcome (ViPPO) Measures

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