Video-Conference Interviews: Ethical and Methodological Concerns in the Context of Health Research

Brown, Nicole

doi:10.4135/9781526441812

Cited by 21 publications

(25 citation statements)

References 159 publications

(205 reference statements)

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“…In our research projects about academic identity, we ask academics to reflect on the impact that chronic and temporary illnesses or disabilities may have. These research projects are reported elsewhere (Brown 2017(Brown , 2018; Brown and Leigh forthcoming; Leigh forthcoming a, forthcoming b), but suffice it to say that 'the emotional ties to academic labour are binding' (Chubb, Watermeyer, and Wakeling 2017, 556). Academics with disabilities or illnesses work hard to hold onto their academic work and identity whilst compromising other aspects of their life.…”

Section: Disability Illness and Academic Identitymentioning

confidence: 98%

Ableism in academia: where are the disabled and ill academics?

Brown¹,

Leigh

2018

Disability & Society

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232

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Recent coverage in higher education newspapers and social media platforms implies that chronic conditions, illnesses and disabilities are becoming more prominent amongst academics. Changes to funding structures, increased globalisation, marketisation and bureaucratisation of higher education have resulted in a performance-driven working environment where teaching workload and pressures to publish are further intensified due to excellence exercises in teaching and research. The result is low morale and an everrising number of reported mental health issues, burnout and stress-related illnesses within academia. This article explores some of these issues in the context of higher education institutions in the United Kingdom. We draw on our research and our experiences as speakers regarding ableism in academia to provide food for thought, stimulate a debate and raise awareness of those academics experiencing chronic illness, disability or neurodiversity, whose voices are not heard.

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Section: Disability Illness and Academic Identitymentioning

confidence: 98%

Ableism in academia: where are the disabled and ill academics?

Brown¹,

Leigh

2018

Disability & Society

Self Cite

232

120

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“…Considering the vagueness and incorrectness of language, the embodied human understanding in relation to fibromyalgia, as well as the role of reflective practice in identity formation together with the fluidity of identity and the changeability of fibromyalgia, my research approach needed to allow for flexibility, variability and expressiveness, whilst maintaining the options for research participants to expand and elaborate. This led to the development of identity boxes (Brown, 2017;Brown, 2018a;Brown, 2018b) as a method in order to achieve representations of the holistic, embodied, lived experiences of identity and fibromyalgia.…”

Section: Research Context and Approachmentioning

confidence: 99%

“…Indeed, many planned meetings had to be rescheduled due to sudden onset of new or more severe symptoms or the aggravation of the symptoms. As methodological and ethical considerations in relation to this study have been reported elsewhere (Brown, 2018a), I would like to focus on the meaningand sense-making processes through the use of the identity boxes.…”

Section: Identity Boxes As a Stepping Stone To Analysismentioning

confidence: 99%

“…In this article, I draw on my research into the construction of identity under the influence of fibromyalgia to explore a more material, embodied approach to research to elicit experiences and understand how participants make sense of these experiences. I present my particular approach to generating and analysing data in relation to participants' experiences through the implementation of an identity box project (Brown, 2017;Brown, 2018a;Brown, 2018b). I provide an overview of the research context and the approach taken to the research in order to provide the necessary background for the specific approach through identity boxes.…”

Section: Introductionmentioning

confidence: 99%

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Identity boxes: using materials and metaphors to elicit experiences

Brown

2019

International Journal of Social Research Methodology

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This paper considers the use of identity boxes as a data collection method to elicit experiences. Participants were asked to respond to questions using objects to represent their answers. The rationale for using identity boxes was to allow for a more embodied, less textual approach. The identity boxes were then also used to create an artistic installation as one form of data analysis. The reflection section in this paper shows that the approach posed potential risks around the emotional vulnerability of participants, with participants experiencing the project as cathartic and therapeutic. Some participants struggled with the process of thinking through objects as difficult. Although using a less conventional approach to research led to deeper, richer reflections and thus relevant, interesting data, concerns were raised around relevance, generalisability, and more generally the evaluation of the research. The paper concludes with a reconsideration of the identity boxes as a method.

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“…Their pain is not simply pain (Scarry, 1985): It can be throbbing, pulsating, burning, stinging, flashing, and the like. Therefore, in order to get as close as possible to the participants' experiences and to help participants express what is difficult to put in words, I use metaphorical representations and objects that are collected in identity boxes (Brown, 2017;Brown, 2018a;Brown, 2018b). What sets my method apart from many other creative research methods is that I view the outputs and creations, the objects and the identity boxes themselves as data.…”

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confidence: 99%

Emerging Researcher Perspectives: Finding Your People: My Challenge of Developing a Creative Research Methods Network

Brown¹

2019

International Journal of Qualitative Methods

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Research is not a solitary process. Yes, we work as individuals through our specific research foci trying to answer our personal research questions. However, research does not happen in a vacuum. To build on these existing ideas and develop them further, we rely on what has been done before and what others are doing at the same time. The importance of having a network of colleagues was a particular focus in the keynote speeches of the Qualitative Methods Conference 2018 in Banff organized by the International Institute for Qualitative Methodology. Many speakers referred to the process of "finding your people." Indeed, the principle of having a close network of colleagues working on and through similar issues and concerns chimes with me. But as yet, I still feel isolated within the world of qualitative research. My focus is on using creative methods within research, which I approach as an all-encompassing term that includes artistic and arts-based work but also the broader sense of creating, making, and doing. Of course, there are academics and researchers who focus on embodied aspects of research (Chadwick, 2017), on performative and artistic creations and research as arts and arts as research (

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Video-Conference Interviews: Ethical and Methodological Concerns in the Context of Health Research

Cited by 21 publications

References 159 publications

Ableism in academia: where are the disabled and ill academics?

Ableism in academia: where are the disabled and ill academics?

Identity boxes: using materials and metaphors to elicit experiences

Emerging Researcher Perspectives: Finding Your People: My Challenge of Developing a Creative Research Methods Network

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