Vers une extension du registre REIN aux patients avec une maladie rénale chronique au stade 5 non traités par dialyse ou greffe ? Étude pilote

Vigneau, Cécile; Ayav, Carole; Noël, Natacha; Gomis, S.; Glaudet, Florence; Siebert, Maximilian; Kessler, Michèle; Nogier, Marie-Béatrice; Villar, Emmanuel; Allot, Vincent; Edet, Stéphane; Guilhot, François; Baudoin, V.; Allain-Launay, Emma; Dunand, Olivier; Moranne, Olivier; Hogan, Julien; Couchoud, Cécile; Rein, registre

doi:10.1016/j.nephro.2018.11.010

Cited by 4 publications

(2 citation statements)

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“…The REIN plans to extend data collection to Stage 4 and 5 CKD patients ( 30 ). A better understanding of CKD care and patients’ trajectories will enlighten nephrologists about the characteristics of the population selected to start renal replacement therapy.…”

Section: Resultsmentioning

confidence: 99%

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What does the French REIN registry tell us about Stage 4-5 CKD care in older adults?

Moranne

Hamroun²,

Couchoud³

2023

Front. Nephrol.

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The aim of this paper is to illustrate all the clinical epidemiology searches made within the French network REIN to improve CKD stage 4-5 care in older adults. We summarize various studies describing clinical practice, care organization, prognosis and health economics evaluation in order to develop personalized care plans and decision-making tools. In France, for 20 years now, various databases have been mobilized including the national REIN registry which includes all patients receiving dialysis or transplantation. REIN data are indirectly linked to the French administrative healthcare database. They are also pooled with data from the PSPA cohort, a multicenter prospective cohort study of patients aged 75 or over with advanced CKD, monitored for 5 years, and the CKD-REIN clinical-based prospective cohort which included 3033 patients with CKD stage 3-4 from 2013 to 2016. During our various research work, we identified heterogeneous trajectories specific to this growing older population, raising ethical, organizational and economic issues. Renal registries will help clinicians, health providers and policy-makers if suitable decision- making tools are developed and validated.

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Section: Resultsmentioning

confidence: 99%

“…Patients are informed on the purpose of the registry and the possible data linkage and data use via publicly available information (poster and welcome booklet in nephrology centers). Since 2019, the intention has been to expand it to patients with Stage 4 and 5 CKD not treated with RRT ( 30 ).…”

Section: Data Sourcesmentioning

confidence: 99%