Valuing the Quality-of-Life Aged Care Consumers (QOL-ACC) Instrument for Quality Assessment and Economic Evaluation

Ratcliffe, Julie; Bourke, Siobhan; Li, Jinhu; Mulhern, Brendan; Hutchinson, Claire; Khadka, Jyoti; Milte, Rachel; Lancsar, Emily

doi:10.1007/s40273-022-01158-2

Cited by 13 publications

(18 citation statements)

References 33 publications

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“…Community expectations of village models of care for people living with dementia were largely positive. While the expectations were similar to that of aged care in general (Ratcliffe et al, 2021), there was a different emphasis in relation to the village approach. The Australian community values aged care residents having choice, control, individuality and maintaining their social connections (Ratcliffe et al, 2021).…”

Section: Discussionmentioning

confidence: 71%

“…While the expectations were similar to that of aged care in general (Ratcliffe et al, 2021), there was a different emphasis in relation to the village approach. The Australian community values aged care residents having choice, control, individuality and maintaining their social connections (Ratcliffe et al, 2021). However, this was seen as secondary to a safe environment and residents being treated with dignity and respect (Ratcliffe et al, 2021).…”

Section: Discussionmentioning

confidence: 71%

“…This village aims to be more strongly integrated into the community; hence, community perceptions are important. The attributes of care prioritised by the Australian community include the older person feeling safe and comfortable in their environment and being treated with respect and dignity (Ratcliffe et al, 2021). The community recognise that this requires a high level of specialised skills and training for the staff involved in this care.…”

Section: Introductionmentioning

confidence: 99%

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Community expectations of a village for people living with dementia

Tierney

Doherty

Breen

et al. 2022

Health Social Care Comm

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Small‐scale models of dementia care are a progressive approach to improve care for people living with dementia. These models intend to provide a home‐like environment with a small number of residents in each living unit, easy access to services and facilities, a dedicated team of staff and flexible routines. This study was undertaken during the construction phase of a new village and provided a unique opportunity to explore expectations of the village among the local community. Twelve community members participated in two sequential online focus groups over a 2‐month period. Focus group discussions were recorded, transcribed and analysed using a reflexive thematic analysis approach. Knowledge of the village varied and was informed by familiarity with other village developments and local marketing about the new village. The findings indicate that the community expect the village to provide residents with optimum dementia care, a safe and enabling physical environment and a vibrant daily life where they are engaged in ‘normal’ activities. While participants expected the village to be self‐contained, they also anticipated strong connections with the wider community. Participants acknowledged that the community need dementia education to ensure these interactions are positive. Community expectations of a new village development for people living with dementia are largely positive and often idealistic. Organisations need to consider these expectations when developing new small‐scale facilities and be mindful of how they market these developments to foster realistic expectations. While community enthusiasm about dementia care is encouraging, education is needed to ensure the success of the model.

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Section: Discussionmentioning

confidence: 71%

Section: Discussionmentioning

confidence: 71%

Section: Introductionmentioning

confidence: 99%

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Community expectations of a village for people living with dementia

Tierney

Doherty

Breen

et al. 2022

Health Social Care Comm

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“…Most studies (n = 60) sampled the general population, and stratified the respondents by gender, age, educational level and region. Other studies collected data from adolescents [52], parents [44], diabetic macular oedema patients [28], elderly group [35,65] or people with haemophilia [57]. The sample size varied among the studies.…”

Section: Sample Size and Pbm Measuresmentioning

confidence: 99%

Discrete Choice Experiments in Health State Valuation: A Systematic Review of Progress and New Trends

Wang

Rowen

Brazier

et al. 2023

Appl Health Econ Health Policy

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Background Discrete choice experiments (DCEs) are increasingly used in health state valuation studies. Objective This systematic review updates the progress and new findings of DCE studies in the health state valuation, covering the period since the review of June 2018 to November 2022. The review reports the methods that are currently being used in DCE studies to value health and study design characteristics, and, for the first time, reviews DCE health state valuation studies published in the Chinese language. Methods English language databases PubMed and Cochrane, and Chinese language databases Wanfang and CNKI were searched using the self-developed search terms. Health state valuation or methodology study papers were included if the study used DCE data to generate a value set for a preference-based measure. Key information extracted included DCE study design strategies applied, methods for anchoring the latent coefficient on to a 0-1 QALY scale and data analysis methods. Results Sixty-five studies were included; one Chinese language publication and 64 English language publications. The number of health state valuation studies using DCE has rapidly increased in recent years and these have been conducted in more countries than prior to 2018. Wide usage of DCE with duration attributes, D-efficient design and models accounting for heterogeneity has continued in recent years. Although more methodological consensus has been found than in studies conducted prior to 2018, this consensus may be driven by valuation studies for common measures with an international protocol (the 'model' valuation research). Valuing long measures with well-being attributes attracted attention and more realistic design strategies (e.g., inconstant time preference, efficient design and implausible states design) were identified. However, more qualitative and quantitative methodology study is still necessary to evaluate the effect of those new methods. Conclusions The use of DCEs in health state valuation continues to grow dramatically and the methodology progress makes the method more reliable and pragmatic. However, study design is driven by international protocols and method selection is not always justified. There is no gold standard for DCE design, presentation format or anchoring method. More qualitative and quantitative methodology study is recommended to evaluate the effect of new methods before researchers make methodology decisions.

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“…In recent years, our team has developed a new quality-of-life instrument with older adults accessing aged care services in residential aged care and in the community—the Quality-of-Life Aged Care Consumers (QOL-ACC) [ 10 , 12 , 15 , 16 , 17 ]. Although CALD older adults were included in the various stages of development, due to budget constraints only older adults who were able to understand and communicate in the English language were included.…”

Section: Introductionmentioning

confidence: 99%

What Quality-of-Life Dimensions Are Most Important to Older Adults from Culturally and Linguistically Diverse Backgrounds Receiving Aged Care Services? An Exploratory Study

et al. 2022

Self Cite

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There is little research on what aspects of quality of life (QoL) are most important to culturally and linguistically diverse (CALD) older adults. This study aimed to identify what QoL dimensions were most important to CALD older adults receiving aged care services, and therefore, how relevant a new six dimensions QoL instrument developed for use in aged care is to this population. A three-stage, mixed-methods study was undertaken. Stage 1: n = 3 focus groups with aged care providers. Stage 2: n = 30 semi-structured interviews with Italian-born older adults in ethno-specific residential aged care. Stage 3: survey of n = 63 older adults from mixed CALD backgrounds receiving community aged care services. Overall, older adults asserted the importance of the six dimensions of the new QoL instrument. The importance of ‘identity’ and ‘purpose and meaning’ were identified via the focus groups; however, the community-based CALD older adults identified these aspects of quality of life as more important than older Italians in residential care. Being in ethno-specific residential aged care where needs relating to language, food, and religion were met and they continued to live with others from their community may have meant that the meeting of cultural needs was more taken for granted.

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Valuing the Quality-of-Life Aged Care Consumers (QOL-ACC) Instrument for Quality Assessment and Economic Evaluation

Cited by 13 publications

References 33 publications

Community expectations of a village for people living with dementia

Community expectations of a village for people living with dementia

Discrete Choice Experiments in Health State Valuation: A Systematic Review of Progress and New Trends

What Quality-of-Life Dimensions Are Most Important to Older Adults from Culturally and Linguistically Diverse Backgrounds Receiving Aged Care Services? An Exploratory Study

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