Valuing Black lives and the ‘Good Death’ in the United States

Cain, Cindy

doi:10.1111/1467-9566.13310

Cited by 5 publications

(4 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Only 20% of White respondents and 18% of college graduates felt clinicians “should always do everything possible to save a patient’s life”—but 59% of Hispanic respondents, 52% of Black respondents, and 43% of respondents with a high school degree or less favored that ( Pew Research Center 2013 ). Qualitative studies on EOL planning highlight differences in advance care planning and preferences stemming from differences in attitudes about death, religious beliefs, and fears about discriminatory treatment ( Blackhall et al 1999 ; Cain 2021 ). Rosoff (2013) found that hospital futility policies and related state laws disproportionally constrained decision-making for minority patients and families.…”

mentioning

confidence: 99%

Whose Good Death? Valuation and Standardization as Mechanisms of Inequality in Hospitals

Hauschildt

2022

J Health Soc Behav

View full text Add to dashboard Cite

Although most clinicians have come to perceive invasive life-sustaining treatments as overly aggressive at the end of life, some of the public and greater proportions of some socially disadvantaged groups have not. Drawing on 1,500+ hours of observation in four intensive care units and 69 interviews with physicians and patients’ family members, I find inequality occurs through two mechanisms complementary to the cultural health capital and fundamental causes explanations prevalent in existing health disparities literature: in valuation, as the attitudes and values of the socially disadvantaged are challenged and ignored, and in standardization, as the outcomes preferred by less advantaged groups are defined as inappropriate and made harder to obtain by the informal and formal practices and policies of racialized organizations. I argue inequality is produced in part because wealthier and White elites shape institutional preferences and practices and, therefore, institutions and clinical standards to reflect their cultural tastes.

show abstract

mentioning

confidence: 99%

Whose Good Death? Valuation and Standardization as Mechanisms of Inequality in Hospitals

Hauschildt

2022

J Health Soc Behav

View full text Add to dashboard Cite

show abstract

“…Additionally, some respondents from racial/ethnic minority communities, such as those expressed in the quotes above, may not fully trust medical authorities to carry out their wishes due to structural and institutionalised racism (Cain & McCleskey, 2019). Thus, historical and contemporary medical racism may substantially impact how trans people of colour perceive whether medical providers and staff would fully honour their wishes through formal ACP (Cain, 2021). Thus, the importance of Summer and Miguel both primarily relying on family members to informally carry out their end‐of‐life wishes reflects broader ACP inequities within trans communities of colour.…”

Section: Resultsmentioning

confidence: 99%

“…Cultural humility in care (or lack thereof) can influence medically underserved patients’ perceptions of having a good death (Thomeer et al., 2017). For example, cultural humility gaps in end‐of‐life care settings often shape how patients from marginalised communities (e.g., LGBTQIA+ people) perceive their death and dying experiences (Cain, 2021; Candrian & Cloyes, 2021). Formalising ACP documentation can also become a means to resist sociocultural values or choices in achieving a good death.…”

Section: A Good Deathmentioning

confidence: 99%

“…Ideologies of and strategies for better cultivating a good death among patient communities vary and are influenced by broader patterns of inequity. As Cain (2021, p. 2) notes, ‘what is considered a good death is patterned by institutional and generational experiences of inequality’, meaning how marginalised communities conceptualise what a good death means is influenced by how their circumstances are exacerbated by cumulative disadvantage.…”

Section: A Good Deathmentioning

confidence: 99%

See 1 more Smart Citation

SATISFICING DEATH: Ageing and end‐of‐life preparation among transgender older Americans

Lampe

2023

Sociology Health & Illness

View full text Add to dashboard Cite

A good death—a normative ideology of living and dying well that may allow an individual to gain awareness, acceptance, and preparation for death—has captured the attention of researchers, clinicians, and policymakers in recent years. Prior sociological research has uncovered nuanced perspectives of a good death, yet there has been minimal exploration into how marginalised communities reconstruct their own ideals of a good death in response to structural and institutional inequities. Utilising data from 47 in‐depth interviews, I examine how transgender older adults perceive and plan for ageing and end‐of‐life experiences through advance care planning. My analysis reveals transgender older adults’ reevaluated notions of a normatively desirable good death for themselves due to existing inequities. Consequently, they actively reconstruct a personalised ideology of death that is adequate enough to meet their end‐of‐life needs. I further offer the conceptualisation of SATISFICING DEATH, as a process of individuals from marginalised communities reevaluating and reconstructing their own ideologies of a good death that is adequate enough while using resourceful strategies to improve existing social conditions for themselves. These findings highlight the critical need to provide affirming end‐of‐life care, support, and resources to transgender communities.

show abstract

“The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care

Gengler

2023

SSM - Qualitative Research in Health

View full text Add to dashboard Cite

Valuing Black lives and the ‘Good Death’ in the United States

Cited by 5 publications

References 28 publications

Whose Good Death? Valuation and Standardization as Mechanisms of Inequality in Hospitals

Whose Good Death? Valuation and Standardization as Mechanisms of Inequality in Hospitals

SATISFICING DEATH: Ageing and end‐of‐life preparation among transgender older Americans

“The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care

Contact Info

Product

Resources

About