Validity Testing of the Head and Neck Lymphedema and Fibrosis Symptom Inventory

Deng, Jie; Murphy, Barbara A.; Niermann, Kenneth J.; Sinard, Robert J.; Cmelak, Anthony J.; Rohde, Sarah L.; Ridner, Sheila H.; Dietrich, Mary S.

doi:10.1089/lrb.2021.0041

Cited by 3 publications

(2 citation statements)

References 45 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The 64-item Lymphedema Symptom Intensity and Distress Survey -Head & Neck (LSIDS-HN) was initially designed to characterize the symptom burden specific to those with HNL and fibrosis. 17,18 Patients are asked to indicate the level of "intensity" as well as "distress" associated with each symptom, using two separate 5-point Likert scales. During validation testing, the test length was raised as a concern by $60% of those studied.…”

Section: Introductionmentioning

confidence: 99%

“…Given the unique functions of the head and neck region in respect to appearance, communication, intimacy, and consumption of food and liquid, it is imperative that these issues are addressed in any specific PROM used to measure QoL in patients with HNL. The 64‐item Lymphedema Symptom Intensity and Distress Survey – Head & Neck (LSIDS‐HN) was initially designed to characterize the symptom burden specific to those with HNL and fibrosis 17,18 . Patients are asked to indicate the level of “intensity” as well as “distress” associated with each symptom, using two separate 5‐point Likert scales.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck

Starmer,

Patterson,

Young

et al. 2024

Head & Neck

View full text Add to dashboard Cite

PurposeTo develop a head and neck lymphoedema (HNL) specific quality of life (QoL) instrument to assess physical, functional, and social/emotional impacts of HNL.MethodsInstrument candidate items were reviewed by patients with HNL and clinicians and rated for importance, clarity, and invasiveness. The Content Validity Ratio was applied for item reduction. Three‐step cognitive interviews were conducted with HNL patients to validate the items, survey format, and instructions.ResultsInitially, 130 candidate questions were developed. Following item reduction, 52 items progressed to three‐step cognitive interviews. Following cognitive interviews, the Comprehensive Assessment of Lymphoedema Impact in Head and Neck (CALI‐HaN) included 33 items; 1 global, 10 physical, 7 functional, and 15 emotional.ConclusionsPhysical, functional, and socioemotional effects need to be considered when measuring QoL in patients with HNL. This study describes initial development of the CALI‐HaN, an instrument that shows promise for clinical and research applications following future validation.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%