Validity and reliability of the EQ-5D-5 L in family caregivers of leukemia patients

Liu, Limin; Liu, George; Cai, Xiuzhi; Yu, Hongjuan; Zeng, Xueyun; Sui, Mingjie; Zheng, Erwei; Li, Yang; Xu, Jinsong; Zhou, Jin; Huang, Weidong

doi:10.1186/s12885-019-5721-2

Cited by 23 publications

(15 citation statements)

References 35 publications

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“…All 5 aspects were calculated to an index score with the maximum of 1.000 [39]. An intraclass correlation coefficient of 0.987 for the EQ-5D index score, and a significant correlation with WHOQOL-BREF were noted [40]. The study sample showed that Cronbach's alpha was 0.723.…”

Section: Eq-5dmentioning

confidence: 99%

Investigating psychometric properties of the Thai version of the Zarit Burden Interview using rasch model and confirmatory factor analysis

Pinyopornpanish

Wongpakaran

et al. 2020

BMC Res Notes

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Objective: The Zarit Burden Interview (ZBI) has been widely used to assess caregiver burden. Few research papers have investigated the Thai version of the ZBI. The study aimed to examine the psychometric properties of the Thai version of both the full length (ZBI-22) and short versions (ZBI-12) using Rasch analysis and confirmatory factor analysis among a sample of Alzheimer's disease caregivers. Results: The ZBI-22 fitted the Rasch measurement model regarding unidimensionality but not for ZBI-12. Five items from ZBI-22, and 2 items from ZBI-12 were shown to be misfitting items. Half of ZBI items were shown to be disordered category or threshold, and were locally dependent. CFA revealed three-factor and four-factor fitted the data the best for ZBI-22 and ZBI-12, respectively. Reliability was good for both forms of the ZBI (α = 0.86-0.92). Significant correlations were found with caregiver's perceived stress, anxiety/depression, pain and mobility but not with self-care and usual activity (p > 0.05), indicating convergent and discriminant validity. To conclude, the Thai version ZBI-22, but not ZBI-12, supported the reliability and unidimensional scale among Alzheimer's disease caregivers. Some misfitting items of the ZBI undermined the unidimensionality of the scale, and need revision.

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Section: Eq-5dmentioning

confidence: 99%

Investigating psychometric properties of the Thai version of the Zarit Burden Interview using rasch model and confirmatory factor analysis

Pinyopornpanish

Wongpakaran

et al. 2020

BMC Res Notes

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“…An English study examined the test-retest reliability of the EQ-5D-3L in the UK general population and reported an ICC of 0.83 in the EQ-Index scores [16]. A Chinese study of carers of cancer patients reported high test-retest reliability for EQ-VAS and EQ-Index scores of 0.87 and 0.99 respectively [17]. However, the follow-up between test and retest in that particular study was only 1 day meaning the results were likely to be heavily influenced by recall bias compared with the results of our study.…”

Section: Discussionmentioning

confidence: 99%

“…In a health economics context, the retrospective assessment of health status, gathered for the purpose of estimating healthy life expectancy has been shown to closely approximate estimates based on prospective health information [14]. Numerous studies have investigated the test-retest reliability of the EQ-5D [15][16][17][18][19][20] and other studies have supported the use of retrospective measurement of baseline data following a health event or an intervention [21][22][23], and retrospective measurement in preference to using population norms in determining baseline health status [24,25]. However, the validity of the retrospective use of the EQ-5D has not been established.…”

Section: Introductionmentioning

confidence: 99%

Is retrospective assessment of health-related quality of life valid?

Lawson

Tan

Naylor

et al. 2020

BMC Musculoskelet Disord

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Background: Health-related quality of life (HRQoL) is a commonly used health outcome. For many acute conditions (e.g. fractures), retrospective measurement of HRQoL is necessary to establish pre-morbid health status. However, the validity of retrospective measurement of HRQoL following an intervening significant health event has not been established. The aim of this study was to test the validity of retrospective measurement (recall) of HRQoL by using a test-retest design to measure reliability and agreement between prospective and retrospective patientreported HRQoL before and after an intervening health event (elective orthopaedic surgery). Method: Participants were recruited from the pre-admission clinic of a metropolitan hospital. Participants were assessed for their HRQoL using the EQ-5D-5L at two time-points; prospectively at 2 weeks prior to their date of surgery and then retrospectively (recalling their pre-operative health) following elective hip or knee joint replacement surgery. Prospective measurements were compared with retrospective measurements for the five domain scores (nominal data) using intra-class correlation and for the EQ-Index score and EQ-Visual Analogue Scale (VAS) score (continuous data), using Pearson's correlation. Agreement was tested in continuous variables using Lin's coefficient of concordance (p c) and Bland-Altman plots. Results: One hundred seventy-four patients consented to participate. Eighty-eight paired prospective and retrospective scores were collected and there was a median between-test period of 15 days. At a group level, the prospective measurements were similar to the retrospective measurements; the modes and means of the five domain scores were not different and the mean differences (MD) between the scores for EQ-Index (MD = 0.02, on a scale of 0-1) and EQ-VAS (MD = 0.53, on a scale of 1-100) were negligible. However, the correlation of paired scores was varied; the range of domain score correlations was 0.52 to 0.74, the concordance was substantial for the EQ-Index scores (p c = 0.76, 95% CI = 0.66, 0.84) and moderate for the EQ-VAS scores (p c = 0.46, 95% CI = 0.28, 0.61). Conclusion: Agreement between prospective and retrospective measurements was high at a group level and moderate to substantial at an individual level. Retrospective measurement of HRQoL using the EQ-5D-5L in an orthopaedic clinical context is a valid alternative to using reference data to estimate baseline or pre-morbid health status.

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“…Compared with its predecessor the EQ-5D-3L, the increased level of alternative answers generated less ceiling and floor effects and higher reliability and sensitivity [29]. This study adopted the validated Chinese version of the EQ-5D-5L [30]. An EQ-5Dutility index was calculated for each respondent using the value set (ranging from -0.39-1.00, "worse than death" to 1 "absence of problems") recently developed in China [31].…”

Section: Measurements and Variablesmentioning

confidence: 99%

Health-Related Quality of Life of Patients With Haemophilia - A Cross-Sectional Survey in the Northeast of China

Niu

Ning

Qiao

et al. 2021

Preprint

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Introduction: Haemophilia is a hereditary, chronic, and hemorrhagic disorder caused by a deficiency in coagulation factors. Long-term spontaneous bleeding of joints and soft tissues can seriously affect the quality of life of patients. Objectives: The study aimed to assess the health-related quality of life of patients with haemophilia and associated factors. Methods: A snowball sampling strategy was adopted to select study participants. Eligible participants were those who were 18 years or older and had mild, moderate or severe haemophilia. They were asked to self-complete a questionnaire, collecting data regarding their sociodemographic characteristics, target joint status, and health related quality of life measured by the EQ-5D-5L. Results: The respondents reported a mean EQ-5D utility score of 0.51 (SD=0.34). Those with severe haemophilia had a lower utility score than those with mild/moderate haemophilia (0.46±0.37 vs 0.56±0.30, p =0.737). The linear regression analyses showed that older age (>25 years), two or more target joints, not working, low levels of knowledge of the disease, and borrowing money to pay for medical treatments were associated with lower EQ-5D utility scores . Conclusion: Low health related quality of life of haemophilia patients is evident in China. Social support needs to be strengthened to address this issue.

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Validity and reliability of the EQ-5D-5 L in family caregivers of leukemia patients

Cited by 23 publications

References 35 publications

Investigating psychometric properties of the Thai version of the Zarit Burden Interview using rasch model and confirmatory factor analysis

Investigating psychometric properties of the Thai version of the Zarit Burden Interview using rasch model and confirmatory factor analysis

Is retrospective assessment of health-related quality of life valid?

Health-Related Quality of Life of Patients With Haemophilia - A Cross-Sectional Survey in the Northeast of China

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