Validity and reliability of the Finnish version of the Multiple Sclerosis Impact Scale‐29

Rosti-Otajärvi, Eija; Hämäläinen, Päivi; Wiksten, Anna; Hakkarainen, Tanja; Ruutiainen, Juhani

doi:10.1002/brb3.725

Cited by 18 publications

(11 citation statements)

References 28 publications

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“…The MSIS‐29 is a 29‐item questionnaire structured in two subscales – a 20‐item scale for physical impairment and a nine‐item scale for psychological impairment. The Finnish version of the MSIS‐29 has been found to have satisfactory psychometric properties (Rosti‐Otajärvi, Hämäläinen, Wiksten, Hakkarainen, & Ruutiainen, ).…”

Section: Methodsmentioning

confidence: 99%

Validity and reliability of the Fatigue Severity Scale in Finnish multiple sclerosis patients

et al. 2017

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BackgroundFatigue is one of the most debilitating symptoms in multiple sclerosis (MS) considerably interfering with patients’ daily functioning. Both researchers and clinicians need psychometrically robust methods to evaluate fatigue in MS.ObjectivesThe objective of this study was (i) to evaluate the psychometric properties of the Finnish version of the Fatigue Severity Scale (FSS) and (ii) to describe the results among patients with MS.MethodsIn total, 553 patients with MS (mean age, 53.8 years; standard deviation [SD], 11.4; 79% women: mean patient‐defined disease severity, Expanded Disability Status Scale [EDSS] 4.0, SD, 2.5) completed the self‐administered questionnaires including the FSS. A standard procedure was used for the translation of the FSS.ResultsThe mean (SD) score for the FSS was 4.5 (1.7); in 65% of the patients, the score was ≥4.0. The data quality of the FSS was excellent, with 99.6% of computable scale scores. Floor and ceiling effects were minimal. The FSS showed high internal consistency (Cronbach's alpha, 0.95). Unidimensionality was supported based on confirmatory factor analysis with the comparative fit index being 0.94. The FSS showed moderate/high correlations with the perceived burden of the disease, quality of life and disease severity, whereas, age or gender did not have a significant effect on the FSS score.ConclusionsThe Finnish version of the FSS showed satisfactory reliability and validity and thus can be regarded as a feasible measure of self‐reported fatigue.

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Section: Methodsmentioning

confidence: 99%

Validity and reliability of the Fatigue Severity Scale in Finnish multiple sclerosis patients

et al. 2017

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“…Interestingly, in this study, patients with SPMS and PPMS also reported higher psychological burden compared to those with RRMS. We have reported earlier that MSIS-29 psychological scores tend to increase at the low level of disability (EDSS 0-3) and then plateau and eventually decrease along with increasing disability 21 . Although no cognitive impairment evaluations were done in our study, recent findings are suggesting that cognitive problems may be more pronounced and severe in the progressive forms of MS than in RRMS 22 .…”

Section: Discussionmentioning

confidence: 90%

Impact of multiple sclerosis phenotypes on burden of disease in Finland

Purmonen¹,

Hakkarainen²,

Tervomaa

et al. 2019

Journal of Medical Economics

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Aims: The aim of this study was to quantify how multiple sclerosis (MS) phenotypes differ from each other in respect of costs and quality-of-life. Materials and methods: The study is based on survey data from Finnish patients with MS (n ¼ 553). The information contained disease type, disease severity according to self-reported Expanded Disease Severity Scale (EDSS), healthcare resource use, and medication use. In addition, information related to employment and early retirement was collected. EQ-5D-VAS and Multiple Sclerosis Impact Scale-29 (MSIS-29) instruments were used to collect quality-of-life data, and Fatigue Severity Scale (FSS) instrument for evaluating fatigue. Patients were stratified based on their disease type (relapsing-remitting MS (RRMS), secondary progressive MS (SPMS), primary progressive MS (PPMS)) and disease severity. The data were primarily analyzed using summary statistics. Results: SPMS had the highest annual total cost (71,177e) followed by PPMS (51,082e) and RRMS (36,492e). Early retirement covered the greatest share of costs in RRMS (39%) and SPMS (43%). In PPMS, early retirement and professional care were the two most equally important cost drivers, contributing together 56% of the total costs. Direct healthcare costs were responsible for 33%, 19%, and 18% of total costs in RRMS, SPMS, and PPMS. The mean EDSS in RRMS, SPMS, and PPMS were 2.5, 5.5, and 5.9, respectively. Differences in the quality-of-life were observed with both disease specific (MSIS-29) and generic (EQ-5D-VAS) instruments. The mean utility value from EQ-5D among patients with RRMS, SPMS, and PPMS was 0.76, 0.52, and 0.49, respectively. In addition, patients with SPMS and PPMS were more likely to report fatigue than patients with RRMS. Conclusions: MS phenotype has an impact on costs and quality-of-life of the patients. Early retirement seems to be one of the most important contributors to MS-related costs.

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“…The psychometric properties of the Turkish version of the PFS were obtained using standard methods [21] and based on previous studies. [22,23] The missing data (%) and computable scores (%) were identified for data quality. Missing data rates <5% were considered adequate and acceptable.…”

Section: Discussionmentioning

confidence: 99%

Turkish version of Parkinson Fatigue Scale: Validity and reliability study of binary scoring method

Öztürk¹

2018

Turk J Phys Med Rehab

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Objectives: The aim of the present study was to translate and cross-culturally adapt the Parkinson Fatigue Scale (PFS) into Turkish and to evaluate its reliability and validity. Patients and methods: Between September 2015 and May 2016, a total of 138 patients (84 males, 54 females; mean age 62.8±9.3 years; range, 42 to 83 years) with Parkinson's disease (PD) were included in this study. The Turkish version of the PFS was analyzed for data quality, scaling assumptions, acceptability, reliability, and validity. We used the binary scoring method of the Parkinson Fatigue Scale. Results: The data quality for the Turkish version of the PFS was excellent. The scaling assumption was acceptable. The scale provided an acceptable internal consistency (Cronbach's alpha was 0.955 for a test and 0.941 for a retest, and corrected item-to-total correlations were ranged from 0.478 to 0.849. The test-retest reliability (correlation coefficients were ranged from 0.650 to 0.875) was adequate. Although the total binary score of the PFS was not associated with demographic and clinical data, it was significantly correlated with some of the clinical rating scale scores, including the

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Validity and reliability of the Finnish version of the Multiple Sclerosis Impact Scale‐29

Cited by 18 publications

References 28 publications

Validity and reliability of the Fatigue Severity Scale in Finnish multiple sclerosis patients

Validity and reliability of the Fatigue Severity Scale in Finnish multiple sclerosis patients

Impact of multiple sclerosis phenotypes on burden of disease in Finland

Turkish version of Parkinson Fatigue Scale: Validity and reliability study of binary scoring method

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