Validity and Reliability of Sickle Cell Self-efficacy Scale

Javadipour, Sheyda; Javadipour, Shiva; Keikhaeidehdezi, Bijan; Akbari, Meymanat

doi:10.3126/ijls.v8i4.10931

Cited by 3 publications

(2 citation statements)

References 12 publications

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“…The score of the scale is categorized into three levels of low SE (9–20.99), moderate SE (21–32.99), and high SE (33–45). This scale was translated and validated into the Persian language [ 32 ]. In the present study, the reliability of the SCSES was satisfactory using Cronbach’s alpha coefficient (0.80).…”

Section: Methodsmentioning

confidence: 99%

Sense of coherence or self-efficacy as predictors of health-related quality of life in sickle cell disease patients

et al. 2022

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Patients with sickle cell disease (SCD) suffer from impaired health-related quality of life (HRQoL). This study aimed to determine the level of HRQoL, sense of coherence (SOC), and self-efficacy (SE) in a sample of SCD patients, and to explore predictors of their physical and mental HRQoL. A cross-sectional descriptive study was conducted on 83 SCD patients of one university hospital. The data of the study was collected through Persian versions of the Short-Form Health Survey SF-36 (RAND 36-item), the Sense of Coherence Scale (SOC-13), and the Sickle Cell Self-Efficacy Scale (SCSES). The mean age of the patients was 26.34 ± 8.19 years old. Patients’ mean scores for the Physical Component Summary (PCS), Mental Component Summary (MCS), SOC, and SCSES were 40.57 ± 17.18 (range: 0–100), 50.44 ± 17.95 (range: 0–100), 52.40 ± 15.35 (range: 13–91), 26.40 ± 6.96 (range: 9–45), respectively. Regression models showed that the level of the patients’ SOC, was the main predictor of the MCS (β = 0.37, p < 0.001). However, the level of the patients’ SE was the main predictor of the PCS (β = 0.30, p = 0.004). Also, “blood transfusion history” in patients was a common predictor for both the PCS (β = − 0.28, p = 0.008) and the MCS (β = − 0.29, p = 0.003). These results can assist nurses and clinicians to plan clinical interventions for SCD patients by focusing on increasing the level of the SOC and SE and improving SCD patients’ HRQoL. Furthermore, measuring the level of the SOC and self-efficacy as screening tests are useful to find patients with a greater risk of impaired HRQoL.

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Section: Methodsmentioning

confidence: 99%

Sense of coherence or self-efficacy as predictors of health-related quality of life in sickle cell disease patients

et al. 2022

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“…Also, adolescents (aged 12–17) completed the SCSES, a nine‐item scale developed specifically to assess adolescents’ and adults’ self‐appraisals of their ability, related to SCD, to participate in everyday activities 34 . The SCSES is widely used in sickle cell research and has shown high reliability and validity, 34–36 with a Cronbach alpha of .77 in the present study.…”

Section: Methodsmentioning

confidence: 73%

Intraindividual pain variability metrics for youth with sickle cell disease: Relations to health outcomes

Pascale

Sisler

Smith

et al. 2023

Pediatric Blood & Cancer

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Background While the majority of pediatric sickle cell disease (SCD) research has used mean pain intensity as the only pain metric, recent evidence suggests this metric alone is inadequate in describing the intraindividual variability in SCD pain experiences and subsequent impact. There is limited information on other intraindividual pain metrics in youth with SCD, or how they relate to health outcomes in this population. The aims of this study were to describe differing patterns of intraindividual pain metrics derived from ecological momentary assessments (EMAs) of youth with SCD and to characterize the unique relationships between these metrics and health outcomes. Methods Eighty‐eight youth with SCD, aged 8–17 (mean age = 11.6), were recruited from three regional pediatric SCD clinics in the United States. At baseline, youth and their guardians reported on demographic and disease information. Then youth completed twice daily EMAs for up to 4 weeks. Pain metrics derived from EMA data were calculated including mean daily pain intensity (DP), SD‐DP (standard deviation of DP), proportion of pain days (PPD), and 90th percentile of DP (p90). Pearson correlations were calculated between pain metrics and health outcomes. Results High DP and SD‐DP were correlated with more anxiety symptoms, while high SD‐DP and p90 were correlated with more depression symptoms. High SD‐DP was correlated with low self‐esteem, and high DP and PPD were correlated with low sickle cell self‐efficacy. For healthcare utilization due to pain, high p90 was correlated with more emergency department visits, while high DP, p90, and PPD were correlated with more healthcare contacts. Conclusion There are distinct associations between pain variability metrics beyond DP and health outcomes. Collectively, the patterns of associations suggest the utility of these pain metrics for determining risk in relation to specific health outcomes for youth with SCD.

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Translation, cross-cultural adaptation and validation of the sickle cell self-efficacy scale (SCSES)

Sousa

Reis

Pagano

et al. 2023

Hematology, Transfusion and Cell Therapy

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Validity and Reliability of Sickle Cell Self-efficacy Scale

Cited by 3 publications

References 12 publications

Sense of coherence or self-efficacy as predictors of health-related quality of life in sickle cell disease patients

Sense of coherence or self-efficacy as predictors of health-related quality of life in sickle cell disease patients

Intraindividual pain variability metrics for youth with sickle cell disease: Relations to health outcomes

Translation, cross-cultural adaptation and validation of the sickle cell self-efficacy scale (SCSES)

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