Validation studies of rheumatoid arthritis patient-reported outcome measures in populations at risk for inequity: A systematic review and analysis using the OMERACT summary of measurement properties equity table

Barnabe, Cheryl; Wattiaux, Aimée; Petkovic, Jennifer; Beaton, Dorcas; Shea, Beverley; Greer-Smith, Regina; Humphreys, Jennifer; Bartels, Christie M.; Tugwell, Peter; Umaefulam, Valerie

doi:10.1016/j.semarthrit.2022.152029

Cited by 5 publications

(5 citation statements)

References 22 publications

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“…In the clinical context of recent-onset disease, several biomedical factors had been consistently associated with long-term outcomes; however, there is currently an increasing focus on patient-centered care, 39 and PROMs are time-and cost-efficient tools for monitoring chronic diseases, which can easily be incorporated into patient assessments in different health care systems and facilitate the shared-decision process. 14 Some limitations need to be addressed. First, the cross-sectional study design cannot establish a cause-effect relationship between predictors and HOWL.…”

Section: Discussionmentioning

confidence: 99%

“…This particular finding has practical implications as it identifies early during patients' follow-up, a subset of female RA patients at risk of long-term unfavorable outcomes, who might benefit from a closer follow-up and more aggressive treatment. In the clinical context of recent-onset disease, several biomedical factors had been consistently associated with long-term outcomes; however, there is currently an increasing focus on patient-centered care, 39 and PROMs are time- and cost-efficient tools for monitoring chronic diseases, which can easily be incorporated into patient assessments in different health care systems and facilitate the shared-decision process 14 …”

Section: Discussionmentioning

confidence: 99%

“…12,13 Patient-reported outcomes measures included (at least) disability as per the Health Assessment Questionnaire (HAQ), quality of life (QoL) as per the Short-Form 36 (SF-36), pain (as per pain-VAS), and overall disease status (overall-VAS). 14 In 2020, we incorporated the HOWL-Q into PROMs twice a year.…”

Section: Setting and Study Population: The Recent-onset Ra Cohortmentioning

confidence: 99%

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Factors Associated With Household Work Limitations in Mexican Patients With Rheumatoid Arthritis

Ortiz-Haro¹,

Contreras-Yáñez²,

Guaracha-Basáñez

et al. 2023

J Clin Rheumatol

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BackgroundLittle attention has been given to the impact of rheumatoid arthritis (RA) on domestic work, which remains the domain of women, particularly in the Latin American region. The study identified factors associated with RA-related household work limitations (HOWL) in Mexican for women with long-standing disease.MethodsThis cross-sectional study was performed between September 2020 and April 2022, in patients from the recent-onset RA cohort (initiated in 2004). At study entry, patients had standard rheumatic assessments and were administered the HOWL questionnaire, a survey to assess family responsibilities, household work characteristics, and the patient's economic dependency, and the family APGAR index to assess family function. Multiple logistic regression analysis identified variables associated with RA-related HOWL.ResultsData from 114 female RA patients were analyzed. Overall, at cohort entry, patients were middle-aged (median, 37.5 years), with 12 years of education, and the minority (n = 42 [39.3%]) were married or living together. Patients were representative of typical patients with recent-onset disease and had significant disease activity. At study entry, the patients had 12 (7–16) years of disease duration, and their disease was under control. The median (interquartile range) HOLW-Q score was 0.67 (0–3.33), and 33 patients (28.9%) had RA-related HOWL. Receiving financial support for family living expenses, requiring assistance for activities of daily living, and DAS28 (Disease Activity Score, 28 joints evaluated) were associated with RA-related HOWL; meanwhile, a better Short-Form 36 score at disease onset was protective.ConclusionsDomestic work in Mexican RA women might be impacted by social determinants, health-related quality of life at disease onset, and current disease activity status.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Setting and Study Population: The Recent-onset Ra Cohortmentioning

confidence: 99%

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Factors Associated With Household Work Limitations in Mexican Patients With Rheumatoid Arthritis

Ortiz-Haro¹,

Contreras-Yáñez²,

Guaracha-Basáñez

et al. 2023

J Clin Rheumatol

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“…At the baseline evaluation, the primary rheumatologist recorded the patient’s real-world referral path/journey to the cohort and a complete medical history, including demographic data, RF, and ACPA. At baseline and follow-ups, all the patients had standardized rheumatic assessments (66/68 swollen/tender joint counts, DAS28-ESR [ 22 ], and physician-overall disease visual analog scale [VAS]), patient-reported outcomes measures (PROMs) recorded (disability as per the Health Assessment Questionnaire disability index [HAQ-DI], quality of life (QoL) as per the Short-Form 36 [SF-36], fatigue [as per SF-36], pain [as per a pain-VAS], and patient overall disease status [overall-VAS]) [ 23 ], assessment of comorbidities [ 24 ], medication behavior [ 21 ] and treatment; in addition, laboratory parameters were obtained.…”

Section: Methodsmentioning

confidence: 99%

Differences in referral path, clinical and radiographic outcomes between seronegative and seropositive rheumatoid arthritis Mexican Mestizo patients: A cohort study

Guaracha-Basáñez,

Contreras-Yáñez,

Ortiz-Haro

et al. 2024

PLoS ONE

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Background The study compared the referral path, the first two-year clinical outcomes, and the first five-year radiographic outcomes between seronegative patients (SNPs) from a recent-onset rheumatoid arthritis dynamic cohort initiated in 2004 and seropositive patients (SPPs). Predictors of incidental erosive disease were investigated. Patients and methods Up to March 2023, one independent observer reviewed the charts from 188 patients with at least two years of clinical assessments and up to five years of annual radiographic assessments. SNPs were defined when baseline RF and ACPA serum titers were within local normal ranges. The erosive disease was defined on hand and/or foot radiographs when at least one unequivocal cortical bone defect was detected. The incidental erosive disease was defined in baseline erosive disease-free patients who developed erosions at follow-ups. Multivariate Cox regression analyses identified hazard ratios (95% confidence interval) for factors to predict incidental erosive disease. Results There were 17 (9%) SNPs, and they had a shorter time from symptoms onset to first physician evaluation, visited a lower number of physicians, and received less intensive treatment at referral and during the first years of follow-up than SPPs. Also, they had fewer 0–66 swollen joints and were less frequently persistent on therapy. The erosive disease was detected only in SPPs, and its frequency increased from 10.1% at baseline to 36.1% at the five-year radiographic assessment. There were 53 (31.4%) patients with incidental erosive disease, and differences between SPPs and SNPs were statistically significant at the feet location. Incidental erosive disease was predicted by baseline ACPA, ESR, substantial morning stiffness, and cumulative CRP. Conclusions SNPs showed mild differences in their referral path and clinical outcomes compared to SPPs. However, erosive disease was detected only in SPPs and was predicted by baseline and cumulative clinical and serologic variables.

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“…Such patients reported occupational sustainability considerations, which are highlighted in quantitative investigations demonstrating significant associations between long-term unemployment and impaired quality of life [ 7 , 8 , 9 ]. Therefore, with the Outcome Measures in Rheumatology (OMERACT) initiative, the importance of considering occupational impairment has been emphasized [ 10 ]. Thereafter, various epidemiological surveys investigated the predictors of occupational sustainability among such patients.…”

Section: Introductionmentioning

confidence: 99%

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

Louati

Mouelhi

Kabuth

et al. 2022

IJERPH

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Background. Chronic inflammatory arthritis (IA) is known to be involved in declining work outcomes and increased risk of experiencing unemployment. The aim of this study is to qualitatively identify the levers for the employment of patients with IA and AI-like conditions. Methods. To accomplish this task, a multi-centered, exploratory qualitative design involving one-on-one semi-directed interviews and a focus group was performed among 18 IA French patients to deepen our understanding of what enables patients to maintain employment despite the limiting, chronic, and expanding nature of their symptoms. Results. Analysis revealed five clusters of levers for the employment of chronic IA patients: The first cluster of levers was based on a set of verbatim records mentioning an overall improvement in the management of the disease. The second cluster of levers was based on a set of verbatim records mentioning the perceived added value of one’s occupation at a personal, familial, or societal scale. The third cluster of levers was based on a set of verbatim records mentioning the perceived interpersonal supportiveness of the professional sphere. The fourth cluster of levers was based on a set of verbatim records mentioning the micro-, meso-, and macro-characteristics of the working environment. The fifth cluster of levers was based on a set of verbatim records mentioning intrapersonal attributes. Conclusions. This study deepens and updates the current knowledge on what empowers patients dealing with chronic AI. These results provide valuable insights for stakeholders involved in designing or deploying employment initiatives for patients with AI.

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Validation studies of rheumatoid arthritis patient-reported outcome measures in populations at risk for inequity: A systematic review and analysis using the OMERACT summary of measurement properties equity table

Cited by 5 publications

References 22 publications

Factors Associated With Household Work Limitations in Mexican Patients With Rheumatoid Arthritis

Factors Associated With Household Work Limitations in Mexican Patients With Rheumatoid Arthritis

Differences in referral path, clinical and radiographic outcomes between seronegative and seropositive rheumatoid arthritis Mexican Mestizo patients: A cohort study

“Without Them, I Would Never Have Been Able to Carry on” Levers for the Sustained Employment of Patients with Chronic Inflammatory Arthritis: A French Qualitative Study

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