Validation of the Symptom and Problem Checklist of the German Hospice and Palliative Care Evaluation (HOPE)

Stiel, Stephanie; Pollok, Anne; Elsner, Frank; Lindena, G.; Ostgathe, Christoph; Nauck, Friedemann; Radbruch, Lukas

doi:10.1016/j.jpainsymman.2011.04.021

Cited by 56 publications

(83 citation statements)

References 26 publications

(19 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Demographic and clinical data were collected with the Hospice and Palliative Care Evaluation (HOPE), 17,18 which is part of the clinical standard documentation of the three participating services.…”

Section: Methodsmentioning

confidence: 99%

The desire to hasten death: Using Grounded Theory for a better understanding “When perception of time tends to be a slippery slope”

et al. 2015

Self Cite

View full text Add to dashboard Cite

Background: Some patients with advanced and progressive diseases express a desire to hasten death. Aim: This study evaluated the motivations of patients expressing such a desire in a country with prohibitive legislation on euthanasia and physician-assisted suicide. Design: A modified form of Grounded Theory was used. Setting/participants: Patients from the departments of palliative medicine in three hospitals in Germany were recruited when they had made a statement or request to hasten death. Participants were interviewed face to face. Recruitment was stopped with 12 participants because of data saturation. Results: Thematic analysis revealed three main motivational themes: self-determination, agony, and time. Expectations toward health professionals, attitudes toward death, and secureness related to the end of life were additional main themes emerging from the analysis. Conclusions:The desire to hasten death may be used as an extreme coping strategy to maintain control against anticipated agony. Patients expected health professionals to listen to and respect their experiences. Emerging hypotheses included the following: (a) patients try to balance life time and anticipated agony, and the perception of time is distressing in this balancing act; (b) anticipated images of agony and suffering in the dying process occur frequently and are experienced by patients as intrusive; (c) patients expressing a desire to hasten death are in need of more information about the dying process; and (d) patients wanted their caregivers to listen to and respect their wish to hasten death, and they did not expect the caregivers to understand this as an order to actually hasten their death.

show abstract

Section: Methodsmentioning

confidence: 99%

The desire to hasten death: Using Grounded Theory for a better understanding “When perception of time tends to be a slippery slope”

et al. 2015

Self Cite

View full text Add to dashboard Cite

show abstract

“…This checklist was recently validated [24]. Its characteristics and content are similar to those of widely accepted and validated PC self-assessment questionnaires such as the Edmonton Symptom Assessment System [25,26].…”

Section: Study Design and Data Collectionmentioning

confidence: 99%

“…Its characteristics and content are similar to those of widely accepted and validated PC self-assessment questionnaires such as the Edmonton Symptom Assessment System [25,26]. This checklist consists of 17 items including: (a) eight physical symptoms (pain, nausea, vomiting, dyspnea, constipation, weakness, loss of appetite, tiredness), (b) four psychological symptoms (feeling depressed, anxiety, tension, disorientation/confusion), (c) two nursing issues (wound care, assistance with activities of daily living), (d) two social problems (organization of care, overburdening of family), and (e) one free-text entry [17,24,27]. The 17 items are rated on a four-point grading scale: 0, no; 1, mild; 2, moderate; 3, severe.…”

Section: Study Design and Data Collectionmentioning

confidence: 99%

“…The 17 items are rated on a four-point grading scale: 0, no; 1, mild; 2, moderate; 3, severe. A global sum score was calculated for each patient, ranging from a minimum of 0 (all 17 items rated as 0) to a theoretically possible maximum of 51 (all 17 items rated as 3) [24]. Additionally, the following categories were subsumed [24]: (a) physical suffering (nausea, vomiting, constipation, and pain), (b) psychological burden (anxiety, feeling depressed, and tension), and (c) complexity of patient care (organization of care, overburdening of family, disorientation/confusion, and wound care).…”

Section: Study Design and Data Collectionmentioning

confidence: 99%

See 1 more Smart Citation

Palliative Care Consultation Service and Palliative Care Unit: Why Do We Need Both?

et al. 2012

Self Cite

View full text Add to dashboard Cite

Background. Palliative care (PC) infrastructure has developed differently around the globe. Whereas some institutions consider the palliative care unit (PCU) a valuable component, others report that the sole provision of a stateof-the art palliative care consultation service (PCCS) suffices to adequately care for the severely ill and dying.Objective. To aid institutional planning, this study aimed at gathering patient data to distinguish assignments of a concomitantly run PCU and PCCS at a large hospital and academic medical center.Methods. Demographics, Eastern Cooperative Oncology Group performance status, symptom/problem burden, discharge modality, and team satisfaction with care for all 601 PCU and 851 PCCS patients treated in 2009 and 2010 were retrospectively analyzed.Results. Patients admitted to the PCU versus those con-

show abstract

“…However, with the aid of a Delphi survey of experts, criteria were defined [55] as to when and in what form palliative care (GPC/SPC) should be initiated in the care of MS patients. Criteria included the EDSS score, the onset of treatment with mitoxantrone, the initial use of treatment aids, transfer to a nursing home, or onset of severe palliative care symptoms as measured by HOPE, such as pain, nausea, vomiting, lack of appetite and constipation [56,57].…”

Section: Neuropalliative Care Approaches and Concepts In The Literaturementioning

confidence: 99%

Untitled

2017

Neurology International Open

View full text Add to dashboard Cite

AbSTR AC TAlthough patients with incurable neurological diseases suffer from a variety of distressing symptoms and may die from their neurological condition and associated complications, palliative and hospice care for these patients to date remains rare. Initial estimates indicate that on average 10 % of all patients suffering from a neurological disease need palliative and hospice care. However, within German neurology departments, only few physicians (on average 1.3/department) and nurses (on average 2.2./department) are specialized in palliative and hospice care and only about 3 % of patients cared for in palliative or hospice care structures suffer from neurological diseases (in contrast to the approximately 80 % of patients suffering from oncological diseases). This rather low number is due to the gradual increase in the awareness of palliative and hospice care needs for neurological patients and a currently predominant supply of oncological patients in palliative and hospice care structures that are primarily aimed at these patients. Correspondingly, the special aspects of neurological patients are currently not adequately addressed in the palliative training curricula of healthcare professionals. Rather, patients with advanced neurological conditions are medically cared for by general practitioners and by the existing inpatient and outpatient neurology structures, which may also offer sub-specialty services. Consequently, adequate care for severely affected neurological patients becomes difficult as soon as these patients are hardly able to visit these structures because home-based specialist treatment is currently rendered and financed only to a limited degree. Novel yet to date rare approaches, mostly of international origin, suggest that these patients may benefit from specialized home-based services, combining neurological and palliative care expertise. At present, data that characterizes the situation of neuro-palliative care in Germany remains scarce. In addition to the already known supply gaps (e. g., low rate of neurologists trained in palliative medicine as well as of nurses working in neurology E117

show abstract

Validation of the Symptom and Problem Checklist of the German Hospice and Palliative Care Evaluation (HOPE)

Abstract: Analyses of reliability and validity of the HOPE-SP-CL showed satisfactory to good psychometric properties; therefore, the HOPE-SP-CL can be recommended for standard implementation in German hospice and palliative care institutions.

Cited by 56 publications

References 26 publications

The desire to hasten death: Using Grounded Theory for a better understanding “When perception of time tends to be a slippery slope”

The desire to hasten death: Using Grounded Theory for a better understanding “When perception of time tends to be a slippery slope”

Palliative Care Consultation Service and Palliative Care Unit: Why Do We Need Both?

Untitled

Contact Info

Product

Resources

About