Validation of the Spanish Version of the ICECAP-O for Nursing Home Residents with Dementia

Abstract

BackgroundMeasurement of health-related quality of life (HRQoL) is important for a chronic disease, such as dementia, which impairs the quality of life of affected patients in addition to their length of life. This is important in the context of economic evaluations when interventions do not (only) affect HRQoL and these other factors also affect overall quality of life.ObjectiveTo validate the Spanish translation of the ICECAP-O’s capability to measure Health-related quality of life in elderly with dementia who live in nursing homes.MethodCross-sectional study. For 217 residents living in 8 Spanish nursing homes, questionnaires were completed by nursing professionals serving as proxy respondents. We analyzed the internal consistency and other psychometric properties. We investigated the convergent validity of the ICECAP-O with other HRQoL instruments, the EQ-5D extended with a cognitive dimension (EQ-5D+C), the Alzheimer’s Disease Related Quality of Life (ADRQL) measures, and the Barthel Index measure of activities of daily living (ADL).ResultsThe ICECAP-O presents satisfactory internal consistency (alpha 0.820). The factorial analysis indicated a structure of five principal dimensions that explain 66.57% of the total variance. Convergent validity between the ICECAP-O, EQ-5D+C, ADRQL, and Barthel Index scores was moderate to good (with correlations of 0.62, 0.61, and 0.68, respectively), but differed between dimensions of the instruments. Discriminant validity was confirmed by finding differences in ICECAP-O scores between subgroups based on ADL scores (0.70 low, 0.59 medium, and 0.39 high level care), dementia severity (0.72 mild, 0.63 medium, and 0.50 severe), and ages (0.59 below 75 years and 0.84 above 75 years).ConclusionsThis study presented the first use of a Spanish version of the ICECAP-O. The results indicate that the ICECAP-O appears to be a reliable Health-related quality of life measurement instrument showing good convergent and discriminant validity for people with dementia.

Comparing the German Translation of the ICECAP-A Capability Wellbeing Measure to the Original English Version: Psychometric Properties across Healthy Samples and Seven Health Condition Groups

“…Cross-culturally, the ICECAP-O has demonstrated good convergent validity with existing measures in a sample of post-hospitalised older adults in the Netherlands (Makai et al 2013) and among nursing home residents with dementia in Germany (Makai et al 2014). Similar studies have demonstrated the reliability and validity of the ICECAP-O in Spain (Sarabia-Cobo et al 2017) and Sweden (Hörder et al 2016) and for the ICECAP-A in China (Tang et al 2018). However, to date, the validity of a German translation of the ICECAP-A has not been investigated.…”

ICECAP-O, the current state of play: a systematic review of studies reporting the psychometric properties and use of the instrument over the decade since its publication

“…The psychometric properties of the ICECAP-O were assessed across a range of patient and general populations: five focussed on the general population only [ 23 , 27 – 30 ]; Couzner et al included both patients (with post-acute needs) and the general population [ 31 ]. Of those studies which exclusively included patients/service users, five focused on cognitive impairment [ 15 , 32 – 35 ], three on frailty/social care needs [ 21 , 26 , 36 ] and two on those at high risk of falling [ 22 , 37 , 38 ]. Two studies focussed on patients with post-acute needs [ 39 – 41 ].…”

“…The majority of studies were undertaken in Europe with ten conducted in the UK [ 15 – 20 , 24 , 27 , 29 , 36 ], five in the Netherlands [ 21 , 26 , 30 , 34 , 39 ], and one each in Germany [ 33 ], Spain [ 35 ] and Sweden [ 23 ]. Of the remaining studies, four were carried out in Australia [ 28 , 31 , 40 – 42 ] and three in Canada [ 22 , 32 , 37 , 38 ].…”

A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries

“…This would include linguistic validation of translations of the ICECAP-O, currently being analysed in Germany and Portugal as part of the Actifcare project [21]. It would be beneficial to conduct linguistic validations in other countries where psychometric validations have been conducted [48]. Second, future studies need to confirm our results and expand on them, to increase the evidence of the validity of the ICECAP-O.…”