Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

Yang, Winson Fu Zun; Liu, Jianlin; Chan, Yiong Huak; Griva, Konstadina; Kuparasundram, Sangita; Mahendran, Rathi

doi:10.1186/s40359-020-00445-x

Cited by 5 publications

(6 citation statements)

References 65 publications

(90 reference statements)

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“…The NAFC-C was originally developed with the United States population, which has very different population characteristics than the Singapore population ( 3 ). This was also shown in our previous validation study as FCCs may interpret items differently from their United States counterpart ( 21 ). Hence, other than differences in characteristics of needs, there may be other unexplored needs specific to the Asian population.…”

Section: Discussionsupporting

confidence: 81%

“…The scale consists of four factors (1) psychosocial unmet needs, (2) unmet medical needs, (3) unmet financial needs, and (4) daily activity unmet needs. Our previous study found acceptable validity of the NAFC-C to be used in an Asian population like Singapore ( 21 ). In this sample, Cronbach's alpha was strong (α = 0.90).…”

Section: Methodsmentioning

confidence: 98%

“…Inclusion criteria were: (1) Singapore citizens or permanent residents between 21 and 84 years of age, and (2) able to read and understand English. Details on participant recruitment are described elsewhere ( 21 ). Convenience sampling method was used as caregivers and their care recipients were most accessible at the clinics.…”

Section: Methodsmentioning

confidence: 99%

“…Convenience sampling method was used as caregivers and their care recipients were most accessible at the clinics. FCCs completed a questionnaire on socio-demography and their care recipient's cancer diagnosis and treatment, and scales to assess their mood state, quality of life, caregiving burden, and needs at home as part of a larger study ( 21 ). Four-hundred-and-five participants returned the forms.…”

Section: Methodsmentioning

confidence: 99%

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Lifestyle and Symptom Management Needs: A Network Analysis of Family Caregiver Needs of Cancer Patients

et al. 2021

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Previous research on the needs of family cancer caregivers (FCCs) have not elucidated associations between specific caregiving needs. Network analysis, a statistical approach that allows the estimation of complex relationship patterns, helps facilitate the understanding of associations between needs and provides the opportunity to identify and direct interventions at relevant and specific targets. No studies to date, have applied network analysis to FCC populations. The aim of the study is to explore the network structure of FCC needs in a cohort of caregivers in Singapore. FCCs (N = 363) were recruited and completed a self-report questionnaire on socio-demographic data, medical data on their loved ones, and the Needs Assessment of Family Caregivers-Cancer scale. The network was estimated using state-of-the-art regularized partial correlation model. The most central needs were having to deal with lifestyle changes and managing care-recipients cancer-related symptoms. The strongest associations were between (1) having enough insurance coverage and understanding/navigating insurance coverage, (2) managing cancer-related pain and managing cancer-related symptoms, (3) being satisfied with relationships and having intimate relationships, and (4) taking care of bills and paying off medical expenses. Lifestyle changes, living with cancer, and symptom management are central to FCCs in Singapore. These areas deserve special attention in the development of caregiver support systems. Our findings highlight the need to improve access to social and medical support to help FCCs in their transition into the caregiving role and handle cancer-related problems.

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Section: Discussionsupporting

confidence: 81%

Section: Methodsmentioning

confidence: 98%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Lifestyle and Symptom Management Needs: A Network Analysis of Family Caregiver Needs of Cancer Patients

et al. 2021

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“…These four factors are further divided into eight subscales. The NAFC-C has been previously validated and shown good reliability in an Asian population [25]. Of interest in this study are the subscales of the daily activity unmet needs, which examined caregiver personal care ('getting help from others in order to take time for yourself'), and role management for survivor care ('balancing work/school with caring for him/her').…”

Section: Methodsmentioning

confidence: 99%

Cancer caregivers unmet needs and emotional states across cancer treatment phases

et al. 2021

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Study objective To investigate the association between family cancer caregivers’ unmet daily needs and emotional states of depression, anxiety and stress across their care recipient’s treatment phases. Method A cross-sectional study design and self-report questionnaires were used. Family caregivers (N = 237) of cancer patients in ambulatory cancer clinics were recruited from May to December 2017, and completed a sociodemographic and medical questionnaire, the Depression Anxiety Stress Scale and Needs Assessment of Family Caregivers-Cancer Scale. Hierarchical linear regression was conducted to examine the influence of each predictor (sociodemographic variables, unmet personal care and role management needs, cancer treatment phase) on the Depression Anxiety Stress Scale total score, depression subscale, anxiety subscale, and the stress subscale. Results Family caregivers’ unmet daily activity needs, in particular higher unmet personal care needs, during the intermediate phase (6–9 months), were significantly associated (ps<0.05) with overall distress (b = 4.93) and stress (b = 2.26). In the chronic treatment phase (>9 months), the significant association of unmet personal care needs was with overall distress (b = 5.91), anxiety (b = 1.97) and stress (b = 2.53). After completing treatment, unmet role management needs were only significantly associated with stress (b = -1.59). Caregivers’ higher depression was also associated with greater unmet role management needs, regardless of treatment phases. Conclusions Intermediate and chronic cancer treatment phases were identified as having greatest effect on caregivers’ unmet daily activity needs and emotions. Unmet personal care needs played the major effect on overall negative emotional states in the intermediate treatment phase and stress in the chronic treatment phase. Close attention to caregivers needs in intermediate and chronic treatment phases, would be highly beneficial in alleviating negative emotional disturbances.

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In-hospital psychoeducation for family caregivers of Nigerian children with cancer (The RESCUE Study)

Onyeka,

Emodi,

Mohammed

et al. 2024

Pall Supp Care

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Objectives High levels of caregiver burden (CB) are experienced by informal caregivers of pediatric patients with cancer. There is increasing evidence highlighting the extent of CB across sub-Saharan African countries, although there remains lack of interventions that target improvements in their experience. This study aimed to determine the impact of a structured psychoeducation program on caregivers’ outcomes relating to preparedness to provide care, burden of caregiving, and quality of life (QoL). Methods This quasi-experimental (pre-and-posttest) design, involved family caregivers of children on admission for cancer treatment in 4 Nigerian tertiary hospitals. Eligible participants received 2 structured, psychoeducational training sessions delivered by a multidisciplinary oncology team, focusing on the management of patients’ condition, spiritual care, self-care, and support. Results Subjects were mainly female (79.5%) and mostly mothers to children undergoing cancer treatment (74.7%). Commonest cancer type was acute lymphoblastic leukemia (23.9%) with evidence of metastatic disease found in 9.6% of children. Significant improvements were observed between pre- and posttest for unmet needs (z = −9.3; p < 0.001), preparedness for caregiving in palliative care (PCPC) (z = −7.0; p < 0.001), and overall QoL (z = −7.3; p < 0.001). A significant reduction in CB was also reported (z = −8.7; p < 0.001). Significance of results This psychoeducational intervention (PEI) resulted in significant improvements in unmet needs, CB and significant improvements in PCPC. However, a reduction in QoL of the family caregivers was also observed. Findings from this study should encourage the use of well-crafted PEIs, delivered within hospital settings to promote improvements in outcomes for informal caregivers of hospitalized children suffering from cancer, in an African context. Further intervention development is required to better understand intervention components influencing changes in outcomes, while exploring feasibility testing and adaptation to similar settings in Nigeria and within Africa.

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Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

Cited by 5 publications

References 65 publications

Lifestyle and Symptom Management Needs: A Network Analysis of Family Caregiver Needs of Cancer Patients

Lifestyle and Symptom Management Needs: A Network Analysis of Family Caregiver Needs of Cancer Patients

Cancer caregivers unmet needs and emotional states across cancer treatment phases

In-hospital psychoeducation for family caregivers of Nigerian children with cancer (The RESCUE Study)

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