Validation of the medical outcomes study HIV (MOS-HIV) health survey among HIV-infected patients in Taiwan

Hsiung, Ping-Chuan; Fang, Chi-Tai; Lee, Keng-Lin; Sheng, Wang-Huei; Wu, Chia-Yun; Wang, Jung‐Der; Yao, Grace

doi:10.1007/s11136-010-9733-2

Cited by 13 publications

(12 citation statements)

References 16 publications

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“…Firstly, ceiling effects were observed in six subscales, particularly in role functioning (71.1%), social functioning (63.2%), and pain (48.8%), while a floor effect was observed in role functioning (20.9%). The observed pattern of these effects (e.g., ceiling effects for role functioning, social functioning, and pain) is line with the results obtained from validation studies of the MOS-HIV in several languages [ 16 , 19 , 42 ]. For example, ceiling effects in role functioning (79%), social functioning (76%) and floor effect in role functioning (14.5%) were reported in the Thai version of the MOS-HIV [ 22 ].…”

Section: Discussionsupporting

confidence: 85%

“…The ceiling effects observed in the present study might be related to the relatively good level of HIV-related condition of the participants, as evidenced by clinical characteristics such as 95.5% of the participants having CD4 cell counts of ≥200 cells/ml and 92% having an HIV RNA log value less than 40. In fact, majority of the participants in previous studies that reported similar patterns of ceiling or floor effects had CD4 cell counts of > 200 cells/ml [ 19 , 42 ]. On the other hand, floor effects in social functioning (21.2%) and role functioning (72.6%) were observed in the Italian version of the MOS-HIV [ 20 ], with only 7.6% of participants having CD4 cell counts of > 200 cells/ml [ 20 ].…”

Section: Discussionmentioning

confidence: 99%

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Psychometric properties of the Korean version of the medical outcomes study HIV health survey: results from a multicenter survey in Korea

Shim

Lee

et al. 2018

Health Qual Life Outcomes

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BackgroundPrecise assessment of health-related quality of life (HRQOL) with a reliable and valid measure is a prerequisite to the enhancement of HRQOL. This study examined the psychometric properties of the Korean version of the Medical Outcomes Study HIV Health Survey (K-MOS-HIV).MethodsThe reliability and validity of the K-MOS-HIV were examined in a multicenter survey involving 201 outpatients with human immunodeficiency virus (HIV)/ acquired immunodeficiency syndrome (AIDS) from four teaching hospitals throughout Korea.ResultsCeiling effects were observed in six subscales scores, particularly, for the role functioning (71.1%), social functioning (63.2%), and pain (48.8%) scores. The Cronbach’s α for the physical health summary and mental health summary were 0.90 and 0.94, respectively, and it ranged from 0.78 to 0.95 for the subscales. The results of the exploratory structural equation modeling supported the two-factor structure of the K-MOS-HIV (physical health summary and mental health summary). An examination of the mean square statistics values from the Rasch analysis showed that the information-weighted fit and outlier-sensitive fit statistics were within the acceptable ranges of 0.6–1.4 except for two items in the mental health summary. The convergent validity of the K-MOS-HIV was supported by its significant positive correlations with the World Health Organization Quality of Life-HIV-BREF subscale scores. Its known-group validity was proven with its ability to detect significant differences in several K-MOS-HIV subscale scores among participants with different sociodemographic and clinical characteristics.ConclusionsThe K-MOS-HIV health survey appears to be a reliable and valid measure of HRQOL.

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Section: Discussionsupporting

confidence: 85%

Section: Discussionmentioning

confidence: 99%

Psychometric properties of the Korean version of the medical outcomes study HIV health survey: results from a multicenter survey in Korea

Shim

Lee

et al. 2018

Health Qual Life Outcomes

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“…Primary outcomes for parent measures included the number of participants who have disclosed their HIV serostatus to their children and participants' stage status regarding parental disclosure. Other key outcomes included perceptions and plans for parental disclosure, Derlega's scales on reasons for disclosure or non-disclosure, 30 Delaney's scale for child's reaction to the disclosure, 31 depressive symptoms (Center for Epidemiologic Studies Depression Scale (CES-D)), 32,33 stress (Perceived Stress Scale), 34 substance use (tobacco use, alcohol use (alcohol use disorders identification test (AUDIT)), 35 and other drug use), sexual behavior and reproductive health, HIV-related quality of life (Medical Outcomes Study HIV Health Survey (MOS-HIV)), 36 medical adherence (treatment history, knowledge about ART and adherence, and adherence to care and medications), and HIV clinical and immunologic status (most recent CD4 count, viral load, and disease progression).…”

Section: Outcome Measuresmentioning

confidence: 99%

iCOPE, a multi-level, cluster randomized, 36-month, parallel-group study to assess the efficacy of HIV disclosure intervention in HIV parental disclosure among parents living with HIV in China

Qiao

Zhou

2020

SAGE Open Medicine

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Objectives: Parents living with HIV who disclose their HIV status to their children could benefit from the parental HIV disclosure. However, it is also very challenging because of persistent stigma and discrimination against HIV. This report describes the study design and protocol of the “Interactive Communication with Openness, Passion, and Empowerment (iCOPE)” randomized controlled trial aimed at assisting parents living with HIV in conducting culturally and developmentally appropriate disclosure to their uninfected children in China through trainings among both parents living with HIV and healthcare providers. Methods: A total of 791 parents living with HIV with children aged between 6 and 15 years and 357 healthcare providers were randomized into either the intervention group or control group. Intervention package for parents consisted of five 2-h sessions focusing on positive coping, disclosure decision making, developing a developmentally appropriate disclosure plan, and accessing social support and post-disclosure counseling. The intervention for healthcare providers was made up of two 45-min sessions organized around two primary themes: knowledge of child cognitive development and effective parent–child communication skills in the context of parental disclosure. The control group received nutritional education of either five 2-h sessions (parents) or two 45-min sessions (healthcare providers). The outcome assessments were conducted at baseline, 6, 12, 18, 24, 30, and 36 months. Conclusion: The iCOPE study is among the first efforts to develop and evaluate a theory-based and multi-level intervention to promote culturally and developmentally appropriate parental HIV disclosure in China. It has implications for healthcare providers, social workers, and policy makers as it will provide efficacy data on how to enhance appropriate parental HIV disclosure and will shed light on developing a clinical guideline regarding parental HIV disclosure in China and other low- and middle-income countries.

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“…Ainda que a aids seja considerada incurável, os avanços científicos no tratamento medicamentoso, pelo emprego da terapia antirretroviral de alta potência (TARV), proporcionaram significativo aumento da expectativa de vida do soropositivo ao HIV/com aids, que deixou de ser considerado portador de uma doença incurável, fatal e irreversível, tornando-se um indivíduo afetado por uma condição crônica potencialmente controlável (Bucciardini et al, 2006;Reis, 2008;Meirelles et al, 2010;Gaspar et al, 2011;Hsiung et al, 2011).…”

Section: Qualidade De Vida Relacionada à Saúde De Mulheres a Partir Dunclassified

“…Moçambique, Zâmbia e Botswana, se mostraram confiáveis e válidas para medir a QVRS de pessoas com HIV/aids, residentes nestas localidades (Taylor et al, 2009). (Holmes, Shea, 1997;Delate, Coons, 2000;García Ordóñez et al, 2001;Murri et al, 2003;Kohli et al, 2005;Perez et al, 2005;Nojomi, Anbary, Ranjbar, 2008;Hasanah, Zaliha, Mahiran, 2011;Hsiung et al, 2011); o uso de medicamentos antirretrovirais (García Ordóñez et al, 2001;Viswanthan, Anderson, Thomas, 2005;Mannheimer et al, 2005;Préau et al, 2006;Holmes et al, 2007;Valencia et al, 2010); maior tempo de conhecimento da infecção pelo HIV (Holmes, Shea, 1997;Globe, Hays, Cunninghan, 1999;Reis, 2008;Reynolds et al, 2009;Tsevat et al, 2009); e a percepção satisfatória do estado de saúde (Sousa et al, 1999;Phaladze et al, 2005 (Perez et al, 2005).…”

Section: Análise Logística Das Variáveis Independentes Selecionadas Cunclassified

Qualidade de vida relacionada à saúde de mulheres com 50 anos ou mais vivendo com HIV/AIDS

Orlandi¹

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The overall goal of this correlational study was to evaluate the health-related quality of life (HRQoL) of women 50 years old or older with HIV/AIDS and its association with sociodemographic, clinical and psychosocial factors. The sample comprised 200 women who were monitored clinically at three clinics of Specialized Outpatient STD/AIDS Services in the municipality of São Paulo. The study was approved by the Research Ethics Committee of the São Paulo Municipal Department of Health (Reports nos. 09/2010 and 66/2010). After signing a Free and Informed Consent Form, the women were interviewed individually in a private room and answered the following instruments: a Sociodemographic and Clinical Characterization, Medical Outcomes Study 12-Item Short-Form Health Survey (SF-12), HIV/AIDS-Targeted Quality of Life Instrument (HAT-QoL), the Rosenberg Self-Esteem Scale and the Herth Hope Index. The data were collected between February and July 2010 and were analyzed statistically, including descriptive, reliability and correlation analysis of the instruments, a comparison of averages and a logistic regression analysis. The results revealed a greater involvement of HRQoL in the domains of Disclosure Worries (30.65 ±30.22) and Financial Worries (35.50 ±35.97), and better scores in the domains: Provider Trust (79.79 ±21.27) and Medication Worries (76.49 ±21.06) of the HAT-QoL. In addition, a significant positive correlation was found between the components of the SF-12 and five domains of the HAT-QoL; between the components of the SF-12 and the hope and self-esteem scores; and between the HAT-QoL domains and hope (except for two domains) and self-esteem (except for two domains) scores. A comparison of the average values of HRQoL based on sociodemographic, clinical and psychosocial factors revealed a statistical association among sociodemographic (marital status, education and per capita income), clinical (self-perception of health status, viral load, CD4, time of awareness of the presence of HIV, current status of the disease, the use and time of antiretroviral therapy and how she feels about the treatment) and psychosocial (selfesteem and hope) factors. The logistic regression indicated that, in general, a higher monthly income per capita, a CD4 count above 200 cells/mm 3 , the use of antiretroviral medication/drugs, long-term awareness of the HIV infection, a good to excellent perceived health status, and higher levels of hope and self-esteem all contribute to improve the HRQoL of women 50 years or older suffering from HIV/AIDS. Therefore, it is concluded that sociodemographic, clinical and psychosocial factors influence the HRQoL of the women under study.

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Validation of the medical outcomes study HIV (MOS-HIV) health survey among HIV-infected patients in Taiwan

Cited by 13 publications

References 16 publications

Psychometric properties of the Korean version of the medical outcomes study HIV health survey: results from a multicenter survey in Korea

Psychometric properties of the Korean version of the medical outcomes study HIV health survey: results from a multicenter survey in Korea

iCOPE, a multi-level, cluster randomized, 36-month, parallel-group study to assess the efficacy of HIV disclosure intervention in HIV parental disclosure among parents living with HIV in China

Qualidade de vida relacionada à saúde de mulheres com 50 anos ou mais vivendo com HIV/AIDS

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