Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy

Zalmstra, Trees A. L.; Elema, Agnes; Boonstra, Albert; Maathuis, Karel G. B.; Narayanan, Unni G.; Putten, Annette A. J. v. d.; Reinders-Messelink, Heleen A.; Vlaskamp, Carla; Lindeboom, Robert

doi:10.3109/09638288.2014.923524

Cited by 19 publications

(22 citation statements)

References 26 publications

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“…A growing body of evidence suggests the need for condition‐specific measures for use in clinical trials in order to create health state utility values and determine cost effectiveness. Research examining children who have cerebral palsy (Waters et al ; Carlon et al ; Zalmstra et al ) or attention‐deficit hyperactivity disorder (Payakachat et al ) has shown that symptom‐based measures perform as well as, or better than, traditional measures of health status with regard to reliability and validity. Research in the areas of adults with schizophrenia (Waters et al ) and other mental health conditions (Brazier et al ; Roberts et al ) or multiple sclerosis (Kuspinar & Mayo, ) has shown the need for more sensitive measures of disease burden.…”

Section: Discussionmentioning

confidence: 99%

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist‐utility index

Raspa

Sacco

Candrilli

et al. 2016

J intellect Disabil Res

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Section: Discussionmentioning

confidence: 99%

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist‐utility index

Raspa

Sacco

Candrilli

et al. 2016

J intellect Disabil Res

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“…HRQoL was measured with the CPCHILD‐DV, which was validated in a previous study . The CPCHILD‐DV questionnaire consists of 37 items across six domains: activities of daily life, personal care; positioning, transferring and mobility; comfort and emotions; communication and social interaction; health; overall quality of life.…”

Section: Methodsmentioning

confidence: 99%

“…The CPCHILD has been shown to be a reliable and valid parental proxy measure. The Dutch version of this instrument, the CPCHILD‐DV, was developed and validated in 2012 .…”

Section: Introductionmentioning

confidence: 99%

Pain and hospital admissions are important factors associated with quality of life in nonambulatory children

Elema

Zalmstra²,

Boonstra

et al. 2016

Acta Paediatrica

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“…Sample size recommendations for such a study is between 50–100 participants (13, 15). The two original validation studies of the CPCHILD were conducted with 52 and 67 participants (7, 16).…”

Section: Methodsmentioning

confidence: 99%

Bakım Veren Öncelikleri ve Engelli Çocuk Yaşam Sağlık Endeksi (CPCHILD)’nin yürüyemeyen Türk beyin felçli çocuklarda geçerlilik ve güvenilirlik çalışması

et al. 2019

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Aim: The aim of this study was to translate and transculturally adapt the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire into the Turkish language and test the reliability and validity. Material and Methods: Eighty-two children with cerebral palsy and their parents were included in the study. The majority of children had spastic cerebral palsy. According to the Gross Motor Function Classification System, 26 children were level III, 30 children were level IV, and 26 children were level V. International accepted guidelines were used in the transcultural adaptation and validation process. Reliability was assessed through statistical analysis of the test results for test-retest and internal consistency. To assess construct validity, Caregiver Priorities and Child Health Index of Life with Disabilities was compared with the Child Health Questionnaire Parent Form. Concurrent validity was assessed by examining how Caregiver Priorities and Child Health Index of Life with Disabilities scores changed according to Gross Motor Function Classification System levels. Results: The mean total score of Caregiver Priorities and Child Health Index of Life with Disabilities was 58.34±26.39. The intraclass correlation coefficient for the total questionnaire score was 0.75, ranging from 0.43 to 0.89 for six domains. Cronbach’s alpha was above 0.80 in all domains of Caregiver Priorities and Child Health Index of Life with Disabilities, except the health domain. The construct validity was good because there was a positive correlation between total Child Health Questionnaire Parent Form and Caregiver Priorities and Child Health Index of Life with Disabilities scores (r=0.58, p<0.01) according to the Pearson correlation analysis. Caregiver Priorities and Child Health Index of Life with Disabilities scores were found to be different between Gross Motor Function Classification System levels (p<0.05). Conclusion: This study showed that the Caregiver Priorities and Child Health Index of Life with Disabilities appears to be easy to administer, seems to have significant validity and reliability, and may be useful in the evaluation of health-related quality of life of children with cerebral palsy.

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Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy

Abstract: The CPCHILD-DV has sufficient reliability and validity as a proxy measure of health status and well-being of non-ambulatory children with CP.

Cited by 19 publications

References 26 publications

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist‐utility index

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist‐utility index

Pain and hospital admissions are important factors associated with quality of life in nonambulatory children

Bakım Veren Öncelikleri ve Engelli Çocuk Yaşam Sağlık Endeksi (CPCHILD)’nin yürüyemeyen Türk beyin felçli çocuklarda geçerlilik ve güvenilirlik çalışması

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