Validation of self-reported epilepsy for purposes of community surveillance

Section: 0 Materials and Methodsmentioning

confidence: 99%

Tracking psychosocial health in adults with epilepsy—Estimates from the 2010 National Health Interview Survey

Kobau

Cui

Kadima³

et al. 2014

“…"Epilepsy or Seizure disorder" was one of 23 conditions asked about in the survey; an affirmative response to this question identified those with epilepsy for this study. Questions on self-reported epilepsy have been shown to have good validity for identifying individuals diagnosed with epilepsy [27]. The third section of the survey asked questions on behavioral risk factors, nutrition and physical activity.…”

Section: Porter Novelli's Healthstyles Surveymentioning

confidence: 99%

Satisfaction with life domains in people with epilepsy

Kobau

Luncheon

Zack

et al. 2012

While commonly used quality-of-life instruments assess perceived epilepsy-associated limitations in life domains and formally document patient concerns, less is known of community-dwelling adults with epilepsy about their satisfaction with broader life domains, such as satisfaction with housing, education, neighborhood, ability to help others, and achievement of goals. The purpose of this study was to examine satisfaction with life domains in a representative sample of community-dwelling adults with self-reported epilepsy from the 2008 HealthStyles survey. Following adjustment for sex, age group, race/ethnicity, education, and income, people with epilepsy were more likely to report frustration in the domains of achievement (e.g., dissatisfaction with education and life goals), compromised social interactions (dissatisfaction with family life, friends, and social life), and compromised physical capability (dissatisfaction with health and energy level). Life satisfaction and other well-being domains can supplement health indicators to guide treatment and program services for people with epilepsy to maximize their well-being.

“…Adults who answered "Yes" to the first two questions or if they reported one or more seizures during the past year in response to the third question were considered as having active epilepsy. The case-ascertainment questions and case-classification definitions follow standards for epidemiologic studies of epilepsy and have acceptable positive predictive value for identifying clinical cases of epilepsy [6]. 3 Estimates are based on household interviews of a nationally representative sample of the noninstitutionalized US civilian population in the 2013 National Health Interview Survey.…”

Section: Discussionmentioning

confidence: 99%

Internet use and looking up information online in adults with epilepsy varies by epilepsy status — 2013 National Health Interview Survey

2016

We estimated US national prevalences of Internet use and looking up health information online among adults with epilepsy and those without, overall (age-standardized) and by three age groups (18-44, 45-59, and ≥60years) using the 2013 National Health Interview Survey. Results showed that both overall and across all age groups, a significantly lower percentage of adults with active epilepsy reported using the Internet compared with that of adults without epilepsy. However, among Internet users, the percentage of looking up health information online did not differ by epilepsy status or age. Ensuring access to the Internet and encouraging use of quality, secure, and easy-to-access resources and e-tools might help adults with epilepsy to optimize their self-management and improve their quality of life.