Validation of Electronic Data Capture of the Irritable Bowel Syndrome—Quality of Life Measure, the Work Productivity and Activity Impairment Questionnaire for Irritable Bowel Syndrome and the EuroQol

Bushnell, Donald M.; Reilly, Margaret C.; Galani, Carmen; Martin, Mona L.; Ricci, J.F.; Patrick, Donald L.; McBurney, Christopher R.

doi:10.1111/j.1524-4733.2006.00087.x

Cited by 69 publications

(71 citation statements)

References 23 publications

(19 reference statements)

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“…Test-retest reliability of the PSI-SF was evaluated in a six months test-retest interval and the values found were 0,84 (Parental Distress), 0,85 (Parent-Child Dysfunctional Interaction) 0,68 (Difficult Child) and 0,78 (Total Score) 10 . Other studies compared the administration of different questionnaires in electronic and pencil-and-paper formats and, for none of them, a statistically significant difference was found between the results of the first and second administration 11,12 .…”

Section: Resultsmentioning

confidence: 99%

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

2014

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16 (2): [413][414][415][416][417][418][419][420][421] aids and auditory rehabilitation. Pediatric hearing healthcare programs have emphasized the importance of a family centered approach, since family's participation on the early diagnosis and intervention brings better results to children 1 .In general, after a child is diagnosed with hearing impairment, the family goes through a difficult period, having to deal with strong feelings of inadequacy, anger, guilt, vulnerability and confusion 2 . Besides, the need of restructuring their roles and learning new values and skills to deal with a hearing impairment may also be a potential source of stress for the family. Parents of hearing impaired children were more stressed than those of normal hearing children and such stress occurred due to different reasons in different stages of their children's lives 3 . In two different occasions, seven to ten days apart, participants completed the PSI-SF in the formats: paper-pencil/paper-pencil (PP), paper-pencil/electronic (PE), electronic/electronic (EE) and electronic/ paper-pencil (PE). The PSI-SF has 36 statements, divided into three subscales: Parental Distress, Parent-Child Dysfunctional Interaction, and Difficult Child. Pearson's correlations and comparison of the PSI-SF scores within and between groups were obtained. Results: strong positive correlations were found between PSI-SF subscales and total scores in the first and second administration, for all groups. Significant differences were observed between the mean scores for the PP group (subscale "Difficult Child") and EE group (subscale "Difficult Child" and the total score). Such differences in scores, however, did not alter in any means the interpretation of the results. Participants' stress fell into normal values, for all subscales. Conclusion: the electronic format of the PSI-SF questionnaire yields similar results to the standard paper-and-pencil administration of the test. Observed stress levels were considered normal. COMPARISON OF ELECTRONIC AND PAPER AND PENCIL ADMINISTRATION OF THE PARENTING STRESS INDEX -SHORT FORM (PSI-SF)

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Section: Resultsmentioning

confidence: 99%

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

2014

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“…Electronic forms of data collection may offer advantages in terms of speed of completion, decreasing patient burden and enhancing acceptability. 68,69 The appropriateness of different data collection modes may vary by patient group -for example, with impaired response ability due to sensory loss. 70 Health researchers need to balance a consideration of mode feature effects with other possible mode constraints when making decisions about data collection methods.…”

Section: Particular Antecedent Featuresmentioning

confidence: 99%

Mode of data elicitation, acquisition and response to surveys: a systematic review.

Hood

Robling²,

Ingledew³

et al. 2012

Health Technol Assess

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTAMode of data elicitation, acquisition and response to surveys: a systematic review NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service' . The HTA programme is needs led in that it fills gaps ...

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“…A wide variety of studies have previously shown good equivalence between electronic and paper questionnaires [2,8,9,10,11,12,13,14,15,16,17], but it is still generally recommended to evaluate measurement properties of the electronic version separately, rather than expecting validations of the paper version to a priori be extrapolated to the electronic version [1,3]. Thus, the aim of the present study was to assess the equivalence between the paper version and the electronic version of the ThyPRO questionnaire [1].…”

Section: Introductionmentioning

confidence: 99%

High Level of Agreement between Electronic and Paper Mode of Administration of a Thyroid-Specific Patient-Reported Outcome, ThyPRO

Rasmussen¹,

Rejnmark²,

Ebbehøj³

et al. 2016

Eur Thyroid J

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Introduction and Purpose: Use of electronic questionnaires to collect health-related quality-of-life data has evolved as an alternative to paper questionnaires. For the electronic questionnaire to be used interchangeably with the validated paper questionnaire, measurement properties similar to the original must be demonstrated. The aim of the present study was to assess the equivalence between the paper version and the electronic version of the thyroid-related quality-of-life questionnaire ThyPRO. Methods: Patients with Graves' hyperthyroidism or autoimmune hypothyroidism in a clinically stable phase were included. The patients were recruited from two endocrine outpatient centers. All patients completed both versions in a randomized test-retest set-up. Scores were compared using intraclass correlation coefficients (ICCs), paired t tests and Bland-Altman plots. Limits of agreement were compared with data from a previous paper-paper test-retest study. Results: 104 patients were included. ICCs were generally high for the 13 scales, ranging from 0.76 to 0.95. There was a small but significant difference in the scale score between paper and electronic administration for the Cosmetic complaints scale, but no differences were found for any other scale. Bland-Altman plots showed similar limits of agreement compared to the earlier test-retest study of the paper version of ThyPRO. Conclusion: Based on our analyses using ICCs, paired t tests and Bland-Altman plots, we found adequate agreement between the paper and electronic questionnaires. The statistically significant difference in score found in the Cosmetic complaints scale is small and probably clinically insignificant.

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Validation of Electronic Data Capture of the Irritable Bowel Syndrome—Quality of Life Measure, the Work Productivity and Activity Impairment Questionnaire for Irritable Bowel Syndrome and the EuroQol

Abstract: EDC versions of the IBS-QOL, EQ-5D, and WPAI:IBS are comparable to paper questionnaires in internal consistency and test-retest reliability, and have greater patient acceptability.

Cited by 69 publications

References 23 publications

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

Mode of data elicitation, acquisition and response to surveys: a systematic review.

High Level of Agreement between Electronic and Paper Mode of Administration of a Thyroid-Specific Patient-Reported Outcome, ThyPRO

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