Validation of a Self‐efficacy Scale for Adolescents and Young Adults With Inflammatory Bowel Disease

Izaguirre, Marisa R.; Taft, Tiffany; Keefer, Laurie

doi:10.1097/mpg.0000000000001552

Cited by 41 publications

(70 citation statements)

References 21 publications

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“…In this way, self-esteem may be threatened by experiencing illness-related consequences or by decreased coping with everyday life challenges. To account for the variability in disease-related demands and illness-related concerns between different chronic diseases, an IBD-specific self-efficacy scale has been developed and validated for patients in both adult and adolescent populations [36][37][38].…”

Section: Discussionmentioning

confidence: 99%

Self-esteem in patients with inflammatory bowel disease

et al. 2020

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Purpose The purpose of this study was to explore self-esteem and associations between self-esteem and sociodemographic, clinical, and psychological factors in patients with inflammatory bowel disease (IBD), a disease of chronic relapsing inflammation of the gastrointestinal tract. IBD symptoms, including pain, fatigue, and diarrhea, as well as potential lifelong medical treatment and surgery, may be demanding, cause significant challenges, and influence self-esteem. Methods In this cross-sectional multicenter study, participants were recruited from nine hospitals in the southeastern and western regions of Norway from March 2013 to April 2014. Data were collected using self-report questionnaires. Selfesteem was assessed by the Rosenberg Self-Esteem Scale, fatigue was assessed by the Fatigue Questionnaire, self-efficacy was assessed by the General Self-Efficacy Scale, and disease activity was assessed by the Simple Clinical Colitis Activity Index for ulcerative colitis (UC) and Harvey Bradshaw Index for Crohn's disease (CD). Multiple linear regression analysis was applied to examine associations between self-esteem and sociodemographic, clinical, and psychological factors. Results In total, 411 of 452 (91%) patients had evaluable data and were included in this study. The mean scores on selfesteem, self-efficacy, total fatigue, anxiety, and depression were similar between UC patients and CD patients. Male gender, being employed, and higher self-efficacy were independently associated with higher self-esteem, whereas anxiety and depression were independently associated with lower self-esteem. Neither disease activity nor fatigue were associated with self-esteem in the final multiple regression analyses. Conclusion Patient-centered interventions that improve self-esteem and reduce anxiety and depression seem to be important to optimize IBD management.

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Section: Discussionmentioning

confidence: 99%

Self-esteem in patients with inflammatory bowel disease

et al. 2020

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“…[6][7][8] However, increasing their knowledge in isolation is insufficient, and this should be addressed as part of a multi-modal approach. Any method should include support for developing disease-specific skills such as self-efficacy, 9,10 selfregulation skills 11 and patient activation, 12 as well as enhancing family support. 13,14 By improving treatment outcomes in this way, it will have the benefit of optimising growth and healthrelated quality of life, minimising school absenteeism and reducing health-care utilisation and therefore cost to the healthcare service.…”

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confidence: 99%

Response pattern analysis of IBD‐KID: A knowledge assessment tool for children with inflammatory bowel disease

Vernon‐Roberts

Otley

Frampton

et al. 2019

J Paediatrics Child Health

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Aim: Paediatric inflammatory bowel disease (IBD) is a chronic relapsing condition requiring adherence to complex treatment regimens to achieve best outcomes. Adherence is frequently low in this population but can be improved by increasing disease-and treatment-related knowledge. The IBD-knowledge inventory device (IBD-KID) is a knowledge assessment tool specifically developed and validated for children with IBD. To analyse IBD-KID participant response patterns in order to review the strength of the tool. Methods: A cohort of children with IBD completed IBD-KID, and their responses were used to assess the tool's validity and feasibility. Item response analysis assessed the item difficulty and the ability of items to discriminate between high/low scorers. The analysis considered item structure, readability and the effectiveness of multiple choice items. Results: A total of 105 completed IBD-KID assessments showed that 12 items (52%) had an acceptable difficulty level, and 17 (74%) were effective at discriminating between high/low scorers. Nine (61%) had good readability, but comprehension levels ranged from 5 to 18 years. Seven (30%) had elevated 'don't know' responses, highlighting the need for content and construction review. Of the 10 multiple choice items, 9 were complex and not functioning efficiently. Internal consistency was acceptable but could be improved by removing two items. Conclusions: The response analysis metrics were reviewed by an expert panel and provided a framework for IBD-KID improvements with the aim of increasing discrimination and reducing difficulty without adversely affecting reliability. The proposed revisions will address components that may have caused children to answer incorrectly due to confusion rather than lack of knowledge. Knowledge tool response pattern analysis A Vernon-Roberts et al.

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“…Our study showed that actual behaviour could be associated with transition success. As the publication of the IBD‐yourself, another self‐efficacy scale for adolescents and young adults has been developed and validated, but studies using this scale have not yet been published .…”

Section: Discussionmentioning

confidence: 99%