Validated questionnaires on intimacy in patients who have had cancer

Hoole, J.; Kanatas, Anastasios; Calvert, Aaron; Rogers, Simon N.; Smith, Adam B.; Mitchell, David A.

doi:10.1016/j.bjoms.2015.05.003

Cited by 9 publications

(4 citation statements)

References 36 publications

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“…55 At the same time, no validated tool exists to address sexual function and intimacy among individuals specifically treated for HNC. 56 At this time, several oncologic and HNC-related quality of life instruments do include items that pertain to sex and intimacy (e.g., FACT-HN) 56 ; these may be utilized as screening tools until a validated head and neck-specific intimacy questionnaire is created. Referral for psychosexual therapy may be beneficial in some circumstances.…”

Section: Sexual Dysfunction and Intimacymentioning

confidence: 99%

Head and neck cancer survivorship consensus statement from the American Head and Neck Society

Goyal

Day

Epstein

et al. 2021

Laryngoscope Investig Oto

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Objectives: To provide a consensus statement describing best practices and evidence regarding head and neck cancer survivorship.Methods: Key topics regarding head and neck cancer survivorship were identified by the multidisciplinary membership of the American Head and Neck Society Survivorship, Supportive Care & Rehabilitation Service. Guidelines were generated by combining expert opinion and a review of the literature and categorized by level of evidence.Results: Several areas regarding survivorship including dysphonia, dysphagia, fatigue, chronic pain, intimacy, the ability to return to work, financial toxicity, lymphedema, psycho-oncology, physical activity, and substance abuse were identified and discussed. Additionally, the group identified and described the role of key clinicians in survivorship including surgical, medical and radiation oncologists; dentists; primary care physicians; psychotherapists; as well as physical, occupational, speech, and respiratory therapists. Conclusion:Head and neck cancer survivorship is complex and requires a multidisciplinary approach centered around patients and their caregivers. As survival related to head and neck cancer treatment improves, addressing post-treatment concerns appropriately is critically important to our patient's quality of life. There continues to be a need to define effective and efficient programs that can coordinate this multidisciplinary effort toward survivorship.

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Section: Sexual Dysfunction and Intimacymentioning

confidence: 99%

Head and neck cancer survivorship consensus statement from the American Head and Neck Society

Goyal

Day

Epstein

et al. 2021

Laryngoscope Investig Oto

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“…Two researchers (AK, CV) analyzed the data using a grounded theory approach and constant comparative analysis. 17,18 Researchers independently read the transcripts serially to develop a holistic view of the responses. The researchers used inductive coding and each open-coded half of the responses and then discussed findings to develop a provisional list of codes.…”

Section: Methodsmentioning

confidence: 99%

Sexuality and Intimacy Needs Within a Hospitalized Palliative Care Population: Results From a Qualitative Study

Kelemen

Gerven

Mullins

et al. 2021

Am J Hosp Palliat Care

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Background: Palliative care (PC) clinicians are well trained to address physical, psychosocial and spiritual needs of patients who have a serious illness. However, one area that is often overlooked is intimacy and sexuality. Objective: To explore patient concerns regarding intimacy as it relates to illness, family reactions, physician conversations, and coping strategies and challenges. Methods: Eligible subjects (at least 18 years old, capacitated, receiving PC consultation at the lead author’s institution) participated in semi-structured interviews between November and December 2017. Transcripts were open-coded and analyzed using Dedoose 3.5.35 software. A constant comparative method was used to identify patterns in the data. Results: 21 interviews were analyzed and several themes emerged. Participants described the effect of physical and mental/emotional changes on their relationships. Family relationships, romantic relationships, and sexuality were prominent in patients’ experiences of intimacy and how it changed as the illness progressed. Relationships were often noted to strengthen during the course of illness, while sexual activity was frequently reported to be negatively impacted. Patients consistently reported little provider communication on the impact of illness on intimacy beyond instructions about what sexual activities they could or could not engage in. Conclusion: This study underlines the significant impact of serious, progressive illness on relationships, sexuality, and physical and emotional intimacy. It highlights that these topics continue to be priorities for patients with serious illness, and that medical teams frequently fail to address them at all. Future research should further explore these issues across diverse patient populations.

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“…There are numerous tools for assessing sexual functioning but well-validated measures are lacking (15). Most questionnaires have limited multicultural applicability and were initially developed as screening and outcome measures limited to sexual functioning (16)(17)(18). However, SH is a much broader concept comprising a psychosexual and socio-behavioral component (19).…”

Section: Introductionmentioning

confidence: 99%

Psychometric validation of the European Organisation for Research and Treatment of Cancer–Quality of Life Questionnaire Sexual Health (EORTC QLQ-SH22)

Greimel

Nagele

Lanceley

et al. 2021

European Journal of Cancer

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Validated questionnaires on intimacy in patients who have had cancer

Cited by 9 publications

References 36 publications

Head and neck cancer survivorship consensus statement from the American Head and Neck Society

Head and neck cancer survivorship consensus statement from the American Head and Neck Society

Sexuality and Intimacy Needs Within a Hospitalized Palliative Care Population: Results From a Qualitative Study

Psychometric validation of the European Organisation for Research and Treatment of Cancer–Quality of Life Questionnaire Sexual Health (EORTC QLQ-SH22)

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