Utilizing Technology to Manage Symptoms

Oldenmenger, Wendy H; Hurk, Corina van den; Howell, Doris

doi:10.1007/978-3-030-60697-8_5

Cited by 5 publications

(9 citation statements)

References 58 publications

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“…ePROMs are completed online or via a (telephone-based) interactive voice response system [ 5 ]. ePRO data collection is labeled to be active when the patient self-reports and passive when using devices such as wearables and monitoring tools on smartphones (e.g., sleep registration applications).…”

Section: Epro Methodology and Implementationmentioning

confidence: 99%

“…Worldwide, many ePRO-symptom monitoring applications for cancer patients have been developed and tested in studies [ 5 , 49 , 50 ]. A recent rapid review showed mostly randomized trials and feasibility studies from Europe and North America to report these applications [ 5 ]. They had different content but contained essentially similar features and served similar purposes.…”

Section: Epro-symptom Monitoringmentioning

confidence: 99%

“…Some applications were enhanced with self-management advice and patient education or an eConsult function, or with additional triage questions. Triage automatically distinguishes between low-grade symptoms that only require reassurance or self-management advice and the higher-grade symptoms that need to be followed up by a HCP [ 5 ]. Most symptom monitoring infrastructures also captured other ePROs, such as HRQOL.…”

Section: Epro-symptom Monitoringmentioning

confidence: 99%

“…In the literature, various measures are used for ePRO-symptom monitoring. The most common are the Patient-Reported Common Terminology Criteria for Adverse Events (PRO-CTCAE), the Edmonton Symptom Assessment Scale/System (ESAS), and the Memorial Symptom Assessment Scale (MSAS) [ 5 , 49 ]. The ESAS represents one of the first symptom batteries, originated for usage in palliative care in 1991 [ 53 ].…”

Section: Epro-symptom Monitoringmentioning

confidence: 99%

See 3 more Smart Citations

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

et al. 2022

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Electronic patient-reported outcome (ePRO) applications promise great added value for improving symptom management and health-related quality of life. The aim of this narrative review is to describe the collection and use of ePROs for cancer survivorship care, with an emphasis on ePRO-symptom monitoring. It offers many different perspectives from research settings, while current implementation in routine care is ongoing. ePRO collection optimizes survivorship care by providing insight into the patients’ well-being and prioritizing their unmet needs during the whole trajectory from diagnosis to end-of-life. ePRO-symptom monitoring can contribute to timely health risk detection and subsequently allow earlier intervention. Detection is optimized by automatically generated alerts that vary from simple to complex and multilayered. Using ePRO-symptoms during in-hospital consultation enhances the patients’ conversation with the health care provider before making informed decisions about treatments, other interventions, or self-management. ePRO(-symptoms) entail specific implementation issues and complementary ethics considerations. The latter is due to privacy concerns, digital divide, and scarcity of adequately representative data for particular groups of patients.

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Section: Epro Methodology and Implementationmentioning

confidence: 99%

Section: Epro-symptom Monitoringmentioning

confidence: 99%

Section: Epro-symptom Monitoringmentioning

confidence: 99%

Section: Epro-symptom Monitoringmentioning

confidence: 99%

See 2 more Smart Citations

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

et al. 2022

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“…This alert is forwarded to the patient and/or health-care provider to introduce more timely intervention. This is known to result in lower symptom grades, improved HRQOL and survival, and fewer hospital admissions ( 68 ). In PROFILES, we can monitor side effects using the integrated SYMPRO web application that is linked to a website with the latest systemic therapies and their known side effects ( 69 ).…”

Section: Study Measuresmentioning

confidence: 99%

Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry

Poll-Franse

Horevoorts

Schoormans

et al. 2022

JNCI: Journal of the National Cancer Institute

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To take cancer survivorship research to the next level, it’s important to gain insight in trajectories of changing patient (reported) outcomes and impaired recovery after cancer. This is needed as the number of survivors is increasing and a large proportion is confronted with changing health after treatment. Mechanistic research can facilitate the development of personalized risk-stratified follow-up care and tailored interventions to promote healthy cancer survivorship. We describe how these trajectories can be studied by taking the recently extended Dutch population-based PROFILES (Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship) registry as an example. PROFILES combines longitudinal assessment of patient-reported outcomes with novel, ambulatory and objective measures (e.g., activity trackers; blood draws; hair samples; online food diaries; online cognitive tests; weighing scales; online symptoms assessment), and cancer registry and pharmacy databases. Furthermore, we discuss methods to optimize the use of a multidomain data collection like return of individual results to participants which may not only improve patient empowerment but also long-term cohort retention. Also, advanced statistical methods are needed to handle high-dimensional longitudinal data (with missing values) and provide insight into trajectories of changing patient (reported) outcomes after cancer. Our coded data can be used by academic researchers around the world. Registries like PROFILES, that go beyond boundaries of disciplines and institutions, will contribute to better predictions of who will experience changes and why. This is needed to prevent and mitigate long-term and late effects of cancer (treatment) and to identify new interventions to promote health.

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A common infrastructure for real-world patient-reported symptoms: one size fits many

Hurk

Sonis

Epstein

2022

Support Care Cancer

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Utilizing Technology to Manage Symptoms

Cited by 5 publications

References 58 publications

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring

Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry

A common infrastructure for real-world patient-reported symptoms: one size fits many

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