Using the concept of activity space to understand the social health of older adults living with memory problems and dementia at home

Sturge, Jodi; Klaassens, Mirjam; Lager, Debbie; Weitkamp, Gerd; Vegter, Daan; Meijering, Louise

doi:10.1016/j.socscimed.2020.113208

Cited by 34 publications

(40 citation statements)

References 43 publications

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“…Participation in activities and places outside home is known to be an important contributor to the social health of people living with dementia ( Sturge et al, 2020 ). Through the maintenance of out-of-home activity and participation, people living with dementia are known to experience normality and continuity ( Chen et al, 2019 ) as well as autonomy, mastery, freedom, and enhanced well-being ( Odzakovic et al, 2018 ; Phinney et al, 2016 ).…”

Section: Background and Objectivesmentioning

confidence: 99%

Out-of-home participation among people living with dementia: A study in four countries

et al. 2022

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Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada ( n = 29), Sweden ( n = 35), Switzerland ( n = 35) and the UK ( n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 ( Median) places out of a possible total of 24, and they had abandoned 5 ( Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher’s exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist’s office, Cemetery, Garden, and Forest (Fisher’s exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.

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Section: Background and Objectivesmentioning

confidence: 99%

Out-of-home participation among people living with dementia: A study in four countries

et al. 2022

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“…While such approaches are acceptable given the low accuracy of GPS indoors, relying on patients to remember to put/power the device back on may not be practical in patients with dementia. Although outside the scope of this review, several methodologically rigorous studies which used non-wearable-GPS devices with longer battery lives were identified during the study selection [65][66][67][68]. The acceptability of GPS devices to patients may also present a barrier to use, aspects such as the size, shape, and materials used, in addition to the location on the body where it is worn and the robustness given the prevalence of symptoms of, for example, agitation in dementia and dyskinesia in Parkinson's disease.…”

Section: Strengths Limitations and Acceptability Of Wearable Gpsmentioning

confidence: 99%

Wearable GPS and Accelerometer Technologies for Monitoring Mobility and Physical Activity in Neurodegenerative Disorders: A Systematic Review

Breasail

Biswas

Smith

et al. 2021

Sensors

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Neurodegenerative disorders (NDDs) constitute an increasing global burden and can significantly impair an individual’s mobility, physical activity (PA), and independence. Remote monitoring has been difficult without relying on diaries/questionnaires which are more challenging for people with dementia to complete. Wearable global positioning system (GPS) sensors and accelerometers present a cost-effective and noninvasive way to passively monitor mobility and PA. In addition, changes in sensor-derived outcomes (such as walking behaviour, sedentary, and active activity) may serve as potential biomarkers of disease onset, progression, and response to treatment. We performed a systematic search across four databases to identify papers published within the past 5 years, in which wearable GPS or accelerometers were used to monitor mobility or PA in patients with common NDDs (Parkinson’s disease, Alzheimer’s disease, motor neuron diseases/amyotrophic lateral sclerosis, vascular parkinsonism, and vascular dementia). Disease and technology-specific vocabulary were searched singly, and then in combination, identifying 4985 papers. Following deduplication, we screened 3115 papers and retained 28 studies following a full text review. One study used wearable GPS and accelerometers, while 27 studies used solely accelerometers in NDDs. GPS-derived measures had been validated against current gold standard measures in one Parkinson’s cohort, suggesting that the technology may be applicable to other NDDs. In contrast, accelerometers are widely utilised in NDDs and have been operationalised in well-designed clinical trials.

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“…Dit onderzoek is onderdeel van een groter onderzoek naar de woonomgeving van oudere mensen met geheugenproblemen. 22 Onze studiepopulatie bestaat uit zeven oudere deelnemers woonachtig in het noorden van het land die geheugenproblemen ervaren (tabel 1). Bij drie deelnemers was een vorm van dementie vastgesteld.…”

Section: Studiepopulatieunclassified

‘Even een rondje wezen wandelen, want dan kom ik weer mensen tegen’. Kwalitatief onderzoek naar de participatie van ouderen met geheugenproblemen

2021

TGG

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Veel thuiswonende ouderen krijgen te maken met geheugenproblemen, wat hun deelname aan de maatschappij bemoeilijkt. Dit kan leiden tot sociale isolatie en een lager welbevinden. In dit kwalitatieve onderzoek zijn de ervaringen met fysieke en sociale participatie van zeven thuiswonende ouderen met geheugenproblemen onderzocht om belemmeringen en copingstrategieën te achterhalen. Er zijn verschillende onderzoeksmethoden gebruikt: 1) wandelinterviews, 2) activiteiten logboeken en 3) diepte-interviews. Fysieke en sociale participatie van de deelnemers vindt voornamelijk zelfstandig plaats in de directe woonomgeving. Zij ervaren daarbij verschillende belemmeringen, die sterk worden beïnvloed door de vervoerswijze die ze gebruiken: lopen versus fietsen. De resultaten geven vernieuwende inzichten in de strategieën die de deelnemers ontwikkelen om te blijven participeren. Het gebruiken van vaste routes helpt bij navigeren, oriënteren en anticiperen op verkeerssituaties. Korter meedoen aan sociale activiteiten is een strategie die sociale participatie minder belastend maakt. Niet de duur, maar de ervaring is van belang. De conclusie van het artikel is dat ouderen met geheugenproblemen controle uitoefenen over het vormgeven van hun activiteiten, passend bij hun persoonlijke behoeften, mogelijkheden en woonomgeving. Het is daarom belangrijk dat ouderen met geheugenproblemen niet alleen worden ondersteund in het vermijden van risico’s, maar ook in het ontwikkelen van passende copingstrategieën.

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Using the concept of activity space to understand the social health of older adults living with memory problems and dementia at home

Cited by 34 publications

References 43 publications

Out-of-home participation among people living with dementia: A study in four countries

Out-of-home participation among people living with dementia: A study in four countries

Wearable GPS and Accelerometer Technologies for Monitoring Mobility and Physical Activity in Neurodegenerative Disorders: A Systematic Review

‘Even een rondje wezen wandelen, want dan kom ik weer mensen tegen’. Kwalitatief onderzoek naar de participatie van ouderen met geheugenproblemen

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