Using routinely collected data to evaluate a leaflet campaign to
increase the presentation of people with memory problems to general
practice: a locality based controlled study

Chan, Tom; Vlymen, Jeremy van; Dhoul, N; Lusignan, Simon de

doi:10.14236/jhi.v18i3.771

Cited by 8 publications

(17 citation statements)

References 16 publications

(10 reference statements)

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“…These were very heterogeneous (Table 4). Three studies evaluated the impact of introducing memory clinics (Banerjee et al, 2007;Luce et al, 2001;Ramakers and Verhey, 2011); two leaflet campaigns (Chan et al, 2010;Seabrooke and Milne, 2009) and one a geriatric liaison nurse assessment service (Perry et al, 2008).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Primary outcomes were the following: dementia diagnosed by specialists using validated measures (six studies) (Banerjee et al, 2007;Boise et al, 2010;Luce et al, 2001;Pond et al, 1994;Ramakers and Verhey, 2011;Rondeau et al, 2008); a record of cognitive impairment or dementia diagnosis in participants' medical notes (six studies) (Barton et al, 2006;Borson et al, 2007;Chan et al, 2010;Downs et al, 2006;Iliffe et al, 2013;Perry et al, 2008); and the numbers of people presenting to their GP with memory complaints (one study) (Seabrooke and Milne, 2009). In addition, two studies (Barton et al, 2006;Luce et al, 2001)…”

Section: Study Characteristicsmentioning

confidence: 99%

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A systematic review of interventions to detect dementia or cognitive impairment

Mukadam

Cooper

Kherani

et al. 2014

Int J Geriat Psychiatry

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There is good quality evidence that GP education increases the number of suspected dementia cases but not accurate or earlier dementia diagnoses. One RCT reported that multiple visits from a trained nurse increase the diagnosis rate. There is no cost effectiveness evidence. Our findings suggest good quality RCTs are needed to test the effectiveness and cost-effectiveness of interventions to increase dementia detection.

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Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

A systematic review of interventions to detect dementia or cognitive impairment

Mukadam

Cooper

Kherani

et al. 2014

Int J Geriat Psychiatry

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“…Problem titles not always entered into primary care records and the nature of the short consultation in primary care means that not all data are recorded; incompleteness of data is a considerable limitation in its interpretation. Data quality in mental health is challenging [35]. People without a mental health problem coded in their computer record may have had appropriate data recorded as free-text or have a physical health problem label (e.g.…”

Section: Discussionmentioning

confidence: 99%

Detecting referral and selection bias by the anonymous linkage of practice, hospital and clinic data using Secure and Private Record Linkage (SAPREL): case study from the evaluation of the Improved Access to Psychological Therapy (IAPT) service

Lusignan

Navarro

Chan

et al. 2011

BMC Med Inform Decis Mak

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BackgroundThe evaluation of demonstration sites set up to provide improved access to psychological therapies (IAPT) comprised the study of all people identified as having common mental health problems (CMHP), those referred to the IAPT service, and a sample of attenders studied in-depth. Information technology makes it feasible to link practice, hospital and IAPT clinic data to evaluate the representativeness of these samples. However, researchers do not have permission to browse and link these data without the patients' consent.ObjectiveTo demonstrate the use of a mixed deterministic-probabilistic method of secure and private record linkage (SAPREL) - to describe selection bias in subjects chosen for in-depth evaluation.MethodWe extracted, pseudonymised and used fuzzy logic to link multiple health records without the researcher knowing the patient's identity. The method can be characterised as a three party protocol mainly using deterministic algorithms with dynamic linking strategies; though incorporating some elements of probabilistic linkage. Within the data providers' safe haven we extracted: Demographic data, hospital utilisation and IAPT clinic data; converted post code to index of multiple deprivation (IMD); and identified people with CMHP. We contrasted the age, gender, ethnicity and IMD for the in-depth evaluation sample with people referred to IAPT, use hospital services, and the population as a whole.ResultsThe in IAPT-in-depth group had a mean age of 43.1 years; CI: 41.0 - 45.2 (n = 166); the IAPT-referred 40.2 years; CI: 39.4 - 40.9 (n = 1118); and those with CMHP 43.6 years SEM 0.15. (n = 12210). Whilst around 67% of those with a CMHP were women, compared to 70% of those referred to IAPT, and 75% of those subject to in-depth evaluation (Chi square p < 0.001). The mean IMD score for the in-depth evaluation group was 36.6; CI: 34.2 - 38.9; (n = 166); of those referred to IAPT 38.7; CI: 37.9 - 39.6; (n = 1117); and of people with CMHP 37.6; CI 37.3-37.9; (n = 12143).ConclusionsThe sample studied in-depth were older, more likely female, and less deprived than people with CMHP, and fewer had recorded ethnic minority status. Anonymous linkage using SAPREL provides insight into the representativeness of a study population and possible adjustment for selection bias.

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“…encounter data and sick notes); we have documented common difficulties across several localities. [25][26][27] Technical problems include the different ways the various brands of computer system interface with the same coding system, 28 and the use of system specific codes; no standard has ever been mandated for the recording of encounter data.…”

Section: Limitations Of the Methodsmentioning

confidence: 99%