Using PROMIS for measuring recovery after abdominal surgery: a pilot study

Meij, Eva van der; Anema, Johannes R.; Huirne, Judith A F; Terwee, Caroline B.

doi:10.1186/s12913-018-2929-9

Cited by 22 publications

(18 citation statements)

References 40 publications

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“…The hypothesis for the former correlation was based on a Dutch study among 30 abdominal surgery patients that reported a correlation of 0.72 between the SF‐36 subscale Role limitations caused by physical health problems and the eight‐item PROMIS Ability to Participate in Social Roles and Activities short form. 40 Though the correlation we report is below the 0.70 threshold, it is of the same order of magnitude and the difference may be due to random variation or to differences in the underlying constructs being measured.…”

Section: Discussionmentioning

confidence: 54%

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Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Balen

Haverman

Hassan

et al. 2021

Journal of Thrombosis and Haemostasis

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Background The Patient‐Reported Outcomes Measurement Information System (PROMIS) Profile‐29 questionnaire is widely used worldwide, but it has not yet been validated in the Netherlands, nor in persons with hemophilia. Objective To validate the Dutch‐Flemish version of the PROMIS‐29 Profile v2.01 in adults with hemophilia. Methods Dutch males with hemophilia (all severities) completed questionnaires that contained sociodemographic and clinical characteristics, the PROMIS‐29, RAND‐36, and the Hemophilia Activities List (HAL). Structural validity of each subscale was assessed with confirmatory factor analysis (CFA). Internal consistency was calculated for each subscale with sufficient model fit in CFA. Construct validity was assessed by testing hypotheses about (1) correlations of each PROMIS‐29 subscale with corresponding scales of RAND‐36 and domains of HAL, and (2) mean differences in T‐scores between subgroups with different hemophilia severities, self‐reported joint impairment, and HIV infection status. We considered ≥75% of data in accordance with the hypotheses evidence for construct validity. Results In total, 770 persons with hemophilia participated in this cross‐sectional study. CFA revealed sufficient structural validity for five subscales: Physical Function, Depression, Sleep Disturbance, Ability to Participate in Social Roles and Activities, and Pain Interference. Internal consistency was high and Cronbach's alpha ranged from 0.79 for Sleep Disturbance to 0.96 for Pain Interference. Differences between clinical subgroups were in the expected direction. Construct validity was confirmed for Physical Function, Anxiety, Depression, Fatigue, Sleep Disturbance, and Pain Intensity. Conclusion This study revealed sufficient evidence for structural validity, internal consistency, and construct validity for most PROMIS Profile‐29 subscales among people with hemophilia in the Netherlands.

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Section: Discussionmentioning

confidence: 54%

“… 37 Convergent validity was assessed with Pearson's correlations. We expected strong correlations ( r ≥ .70 or r ≥ −.70) between similar subscales of PROMIS‐29 with RAND‐36 subscales and HAL domains, based on published literature 38 , 39 , 40 and expert judgment (authors E.v.B. and S.G.), as shown in Table 1 .…”

Section: Methodsmentioning

confidence: 99%

Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Balen

Haverman

Hassan

et al. 2021

Journal of Thrombosis and Haemostasis

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“…Construct validity was studied by testing hypotheses regarding the relationship of PROMIS items banks with the legacy instruments (convergent validity) as well as regarding expected differences between subgroups (known‐group validity). Hypotheses were defined a priori based on the literature 13 , 14 , 31 , 36 , 37 , 38 , 39 and expert opinion (KF, MT, MP, MC, SG, MHC, MK) and are presented in Supporting Information.…”

Section: Methodsmentioning

confidence: 99%

Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance

Kuijlaars

Teela

Vulpen

et al. 2021

Research and Practice in Thrombosis and Haemostasis

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“…Research into the feasibility and usefulness of PROMIS in many specialties has consistently found it to be of benefit when utilized appropriately. 10,11 The utility of PROMIS has not been documented in the eye care setting. Prior studies have described several vision-oriented questionnaires, some of which have been shown to reliably correlate vision-specific medical diagnoses with visual function and detriments to vision-related quality of life; 4,[12][13][14][15][16][17][18][19][20][21][22][23][24][25][26][27] however, few studies have used nonvision-specific PROs in the eye care setting, [28][29][30][31] and the use of general PROs to identify individuals at greater risk for comorbid medical or psychosocial life disturbances due to visual impairment, or of visual impairment due to other medical or psychosocial factors, remains less certain.…”

Section: Introductionmentioning

confidence: 99%

Implementation of PROMIS® in an Optometry Clinic

Porter

Holt

Ramchandran

2021

PROM

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Purpose: The full utility of general health Patient-Reported Outcomes Measurement Information System ® (PROMIS) surveys in the eye care setting has not been previously demonstrated. This report demonstrates the feasibility of implementing PROMIS in an eye care clinic. Patients and Methods: Over 2 months, general health and functioning PROMIS surveys were offered to all patients in an optometric clinic in Rochester, NY. Demographic and clinical variables were recorded along with percent completion and time to completion of the survey. Results: Across 651 patients, 258 chose to attempt PROMIS. Patients with low visual acuity were less likely to attempt the survey (p=0.049), and younger patients were more likely to complete the survey (p=0.025); no other patient characteristics were found to differ between those who did and did not participate in, nor complete, PROMIS. A total of 193 patients completed the survey (74.8%) in a mean time of 6.36 minutes (range = [1.43, 51.92] minutes; standard deviation = 5.62 minutes). Time to completion did not vary significantly across any groups. Conclusion: Our relatively high completion rate among those who attempted PROMIS indicates that PROMIS surveys are feasible to implement in an optometry clinic. While most patients completed the survey in little time, the large range of time to completion may indicate that some patients had difficulty completing the survey. Furthermore, the significant difference in visual acuity between those who participated in the survey and those who did not highlights the need to address the way PROMIS is delivered in order to foster greater inclusion.

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Using PROMIS for measuring recovery after abdominal surgery: a pilot study

Cited by 22 publications

References 40 publications

Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance

Implementation of PROMIS® in an Optometry Clinic

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