Using Patient-Generated Data to Support Cardiac Rehabilitation and the Transition to Self-Care

Tadas, Shreya; Dickson, Jane; Coyle, David

doi:10.1145/3544548.3580822

Cited by 6 publications

(1 citation statement)

References 68 publications

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“…To support the transition from hospital care to selfmanagement, Pollack et al [35] argued that patients should be provided with support to develop three necessary "self-management elements": medical knowledge related to their health condition, resources and support to manage their health, and self-efficacy to learn and manage their condition. Built upon this framework, Tadas et al [42] designed and evaluated a system that uses patients' health-tracking and self-assessment data to help connect the clinical and non-clinical settings.…”

Section: Technology For Self-management Of Health Conditionsmentioning

confidence: 99%

"It's Sink or Swim": Exploring Patients' Challenges and Tool Needs for Self-Management of Postoperative Acute Pain

Zghab,

Pagé,

Lussier

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

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Poorly managed postoperative acute pain can have long-lasting negative impacts and pose a major healthcare issue. There is limited investigation to understand and address the unique needs of patients experiencing acute pain. In this paper, we tackle this gap through an interview study with 14 patients who recently underwent postoperative acute pain to understand their challenges in pain self-management and their need for supportive tools. Our analysis identified various factors associated with the major aspects of acute pain self-management. Together, our findings indicated that tools for supporting these patients need to carefully consider information and support delivery to adapt to rapid changes in pain experiences, offer personalized and dynamic assistance that adapts to individual situations in context, and monitor emotion when promoting motivation. Overall, our work provided valuable knowledge to address the less-investigated but highly-needed problem of designing technology for the self-management of acute pain and similar health conditions. CCS CONCEPTS• Applied computing → Consumer health; Health informatics; • Human-centered computing → Empirical studies in HCI.

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Section: Technology For Self-management Of Health Conditionsmentioning

confidence: 99%

"It's Sink or Swim": Exploring Patients' Challenges and Tool Needs for Self-Management of Postoperative Acute Pain

Zghab,

Pagé,

Lussier

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

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“I think it saved me. I think it saved my heart”: The Complex Journey From Self-Tracking With Wearables To Diagnosis

Keys,

Marshall,

Stuart

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

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How Patient-generated Data Enhances Patient-Provider Communication in Chronic Care: A Field Study in Design Science Research (Preprint)

Staehelin,

Dolata,

Stöckli

et al. 2024

JMIR Medical Informatics

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Background: Modern approaches like patient-centered care ask health providers (e.g., nurses, physicians, and dietitians) to activate and include patients to participate in their healthcare. Mobile health (mHealth) is integral in this endeavor for more patient-centricity. However, structural and regulatory barriers have hindered their adoption. Existing mHealth apps often fail to activate and engage patients sufficiently. Moreover, such systems are seldom integrated well with health providers' workflow.Objective: This study investigates how patient-provider communication behaviors change when introducing patient-generated data into patient-provider communication. Methods:We adopt the design science approach to design the PatientHub, an integrated digital health system that engages patients and providers in patient-centered care for weight management. The PatientHub was developed in four iterations and was evaluated in a three-week field study with 27 patients and six physicians. We analyzed 54 video recordings of PatientHubsupported consultations and interviews with patients and physicians.Results: PatientHub introduces patient-generated data into patient-provider communication. We observed three emerging behaviors when introducing patient-generated data into consultations. We name these behaviors emotion labeling, expectation decelerating, and decision ping pong. Our findings show how these behaviors enhance patient-provider communication and facilitate patient-centered care. Introducing patient-generated data leads to behaviors that make consultations more personal, actionable, trustworthy, and equal. Conclusions:The results of this study indicate that patient-generated data facilitate patient-centered care by activating and engaging patients and providers. We propose three design principles for patient-centered communication. Patient-centered

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Using Patient-Generated Data to Support Cardiac Rehabilitation and the Transition to Self-Care

Cited by 6 publications

References 68 publications

"It's Sink or Swim": Exploring Patients' Challenges and Tool Needs for Self-Management of Postoperative Acute Pain

"It's Sink or Swim": Exploring Patients' Challenges and Tool Needs for Self-Management of Postoperative Acute Pain

“I think it saved me. I think it saved my heart”: The Complex Journey From Self-Tracking With Wearables To Diagnosis

How Patient-generated Data Enhances Patient-Provider Communication in Chronic Care: A Field Study in Design Science Research (Preprint)

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