Using online resources in health co-inquiry: A bifurcated method for analyzing stakeholder narratives

Seifert, Lauren S.; Kaelber, Kara; Flaherty, Kathleen; Kromer-Edwards, Cory

doi:10.1007/s12144-019-00474-9

Cited by 6 publications

(25 citation statements)

References 35 publications

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“…As noted, we utilized the Bifurcated Method that originated with Seifert (2015) and which has been further delineated by Seifert et al (2019). As part of this method, we conducted thematic analyses of posts on Internet sites related to AD, and we used a program to "crawl" those URLs ("Uniform Resource Locators", also called "web addresses").…”

Section: Methodsmentioning

confidence: 99%

“…The current study may be a first step in understanding how online experience could be part of Health Co-Inquiry for stakeholders in AD and related dementias. One goal was to discern themes (using the Bifurcated Method; Seifert et al, 2019) in order to establish whether AD stakeholders are taking part in Health Co-Inquiry online.…”

Section: Using the Internet As A Cooperative Mechanism For Ad And/or mentioning

confidence: 99%

“…Because we utilize the Health Co-Inquiry approach we are especially interested in the cooperative and socialsupporting functions of online posts among stakeholders in AD and other chronic illnesses. In our view, both online and offline behaviors may be part of Health Co-Inquiry (i.e., activating stakeholders, regarding all stakeholder views, using evidence-based practice, and striving for integrated care; Seifert et al, 2019). As was noted above, as a chronic disease, AD presents some of the same challenges as other chronic conditions (e.g., self management, management of the condition, and case management), although individual persons and illnesses have unique characteristics (Rogers et al, 2011).…”

Section: Cooperative Engagement and "Illness Work"mentioning

confidence: 99%

“…Others have relied on inductive analyses in order to discover key themes (Coulson & Greenwood, 2011;Paulus & Varga, 2015). We did both, adopting the Bifurcated Method (Seifert et al, 2019) so that we might discern key themes in AD stakeholder posts and add rigour to our analyses with quantitization of themes using a web-crawling computer program. Our approach is consistent with Greene's (2007) argument that the two techniques (i.e., inductive analysis and quantitization of themes) can complement each other.…”

Section: The Current Studymentioning

confidence: 99%

“…Because our goal was to uncover the specific disease management (and, perhaps, other) purposes of AD stakeholder posts by way of the themes expressed in them, we adopted the Bifurcated Method of Seifert et al (2019). It utilizes qualitative, thematic, inductive analysis along with quantitization of themes via a computer program.…”

Section: Introductionmentioning

confidence: 99%

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Experiences in Alzheimer’s disease: What do stakeholders post on the Internet?

et al. 2020

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Alzheimer’s disease (AD) is a neurodegenerative condition that is chronic, progressive and terminal across an interval of approximately five to ten years from the time of diagnosis. Disease management in AD and other illnesses has been conceptualized in a number of ways, including the Health Co-Inquiry approach (a cooperative endeavor that activates stakeholders, regards all stakeholder views, uses evidence-based practice, and strives for integrated care). With growth of Internet use, Health Co-Inquiry may occur online as stakeholders in chronic disease management search for and give information and support. The current study is a first look at the online posts of all AD stakeholders. Our goal is to shed light on their experiences by characterizing the themes in their posts. A Bifurcated Method was used with quantitization of information through a web-crawling program in order to corroborate or refute the findings from an inductive, thematic (qualitative) analysis. Results indicate that AD stakeholders utilize the Internet for: information, assistance, emotional support or relief, and advice about decision-making and behaviour challenges. Persons with AD posted little compared to caregivers and were prone to report subjective cognitive impairment (SCI) and ask for help regarding diagnosis. Caregivers were apt to divulge personal stories, ask whether they should deceive a person with AD, and request information about coping or note that posting online was a coping mechanism. Providers’, agencies’ and companies’ posts were likely to give information and offer technical advice, answer specific caregiver questions, and offer paid services/clinical trials. As a first study of all AD stakeholder online narratives, data indicate that more than half of sites and posts are dedicated to the concerns of caregivers and persons with AD, indicating that they are engaging in some aspects of Health Co-Inquiry online.

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Section: Methodsmentioning

confidence: 99%

Section: Using the Internet As A Cooperative Mechanism For Ad And/or mentioning

confidence: 99%

Section: Cooperative Engagement and "Illness Work"mentioning

confidence: 99%

Section: The Current Studymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Experiences in Alzheimer’s disease: What do stakeholders post on the Internet?

et al. 2020

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Chronic Pain Online: Delineating Stakeholders’ Posts with the Bifurcated Method

Seifert,

Ray,

Kaelber

et al. 2024

Springer Proceedings in Behavioral &Amp; Health Sciences

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“A Feeling of Safeness and Freedom”: The Promotion of Mental Health Recovery Through Co-Production in an Italian Community Organization

Guarino,

Negrogno,

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et al. 2024

Community Ment Health J

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In mental health promotion, recovery is a process that leads to personal strengthening, control over crucial life decisions, and participation in communities through relevant professional, educational, or family social roles. Co-production, a key aspect of the recovery-oriented approach, emphasizes collaboration and active participation of people with mental health first-hand experience, family members, and citizens. Even though studies on co-production are limited and fragmented, there is evidence that co-production leads to positive outcomes, including improved well-being, empowerment, social connectedness, inclusion, and personal competencies. This study aimed to contribute to the limited literature on co-production in mental health by evaluating the co-production process in a non-profit mental health organization and its impact on empowerment processes and personal recovery outcomes. The research team adopted a collaborative approach and conducted qualitative research, including 13 individual semi-structured interviews and four focus groups. Results showed how the different dimensions of empowerment are promoted in and by the organization: (a) co-production processes supported empowered outcomes on an individual level, such as self-awareness; (b) the organization was perceived to promote empowering processes, such as a sense of safeness and protection; (c) co-production was a mean to build and maintain a network with mental health services that acknowledges the dignity and value of each subjectivity and promotes participation and recovery. Peer support workers were seen as facilitators of mental illness management, and the organization as a place for sharing mental health experiences and fostering individual recovery journeys.

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Using online resources in health co-inquiry: A bifurcated method for analyzing stakeholder narratives

Cited by 6 publications

References 35 publications

Experiences in Alzheimer’s disease: What do stakeholders post on the Internet?

Experiences in Alzheimer’s disease: What do stakeholders post on the Internet?

Chronic Pain Online: Delineating Stakeholders’ Posts with the Bifurcated Method

“A Feeling of Safeness and Freedom”: The Promotion of Mental Health Recovery Through Co-Production in an Italian Community Organization

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