Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach

Maramis, Christos; Payne, Sheila; Pospı́šilová, Šárka; Rosenquist, Richard; Pontikoglou, Charalampos; Sander, Annette; Doubek, Michael; Graf, Norbert; Ling, Julie; Downing, Julia; Karamanidou, Christina; Pavi, Elpida; Koutkias, Vassilis; Schera, Fatima; Kiefer, Stephan; Koumakis, Lefteris; Marias, Kostas; Hoffmann, Stefan; Parker, Heather; Reston, Jonathan

doi:10.1109/bibe.2019.00079

Cited by 11 publications

(24 citation statements)

References 6 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…MyPal [ 8 ] aims to foster palliative care for people with cancer by leveraging patient-reported outcome (PROM) systems through their adaptation to the personal needs of the person with cancer and his or her caregivers [ 9 ]. In this regard, MyPal designed two novel eHealth interventions based on electronic PROMs to offer advanced palliative care services to adult patients with cancer and children with cancer.…”

Section: Methodsmentioning

confidence: 99%

Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study

Kondylakis¹,

Axenie²,

Bastola³

et al. 2020

J Med Internet Res

Self Cite

View full text Add to dashboard Cite

Background The status of the data-driven management of cancer care as well as the challenges, opportunities, and recommendations aimed at accelerating the rate of progress in this field are topics of great interest. Two international workshops, one conducted in June 2019 in Cordoba, Spain, and one in October 2019 in Athens, Greece, were organized by four Horizon 2020 (H2020) European Union (EU)–funded projects: BOUNCE, CATCH ITN, DESIREE, and MyPal. The issues covered included patient engagement, knowledge and data-driven decision support systems, patient journey, rehabilitation, personalized diagnosis, trust, assessment of guidelines, and interoperability of information and communication technology (ICT) platforms. A series of recommendations was provided as the complex landscape of data-driven technical innovation in cancer care was portrayed. Objective This study aims to provide information on the current state of the art of technology and data-driven innovations for the management of cancer care through the work of four EU H2020–funded projects. Methods Two international workshops on ICT in the management of cancer care were held, and several topics were identified through discussion among the participants. A focus group was formulated after the second workshop, in which the status of technological and data-driven cancer management as well as the challenges, opportunities, and recommendations in this area were collected and analyzed. Results Technical and data-driven innovations provide promising tools for the management of cancer care. However, several challenges must be successfully addressed, such as patient engagement, interoperability of ICT-based systems, knowledge management, and trust. This paper analyzes these challenges, which can be opportunities for further research and practical implementation and can provide practical recommendations for future work. Conclusions Technology and data-driven innovations are becoming an integral part of cancer care management. In this process, specific challenges need to be addressed, such as increasing trust and engaging the whole stakeholder ecosystem, to fully benefit from these innovations.

show abstract

Section: Methodsmentioning

confidence: 99%

Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study

Kondylakis¹,

Axenie²,

Bastola³

et al. 2020

J Med Internet Res

Self Cite

View full text Add to dashboard Cite

show abstract

“…Regarding the geographical-and nation-wide interest for the adoption of telemedicine, several such telemedicine projects have been tested in the last two decades only in Greece [25][26][27][28][29]. Being a country with an intermediate level of integrated care maturity [30,31], a large number of low population density areas (for example, islands and regions near the borders) [32] and access to healthcare services care that has become worse in the past decade due to economic reasons and COVID-19 [33][34][35], make Greece quite suitable for the implementation and wide adoption of telemedicine across its national healthcare system.…”

Section: Introductionmentioning

confidence: 99%

Translation, cultural adaptation and pilot testing of a questionnaire measuring the factors affecting the acceptance of telemedicine by Greek cancer patients

Papachristou

Vasileios²,

Sarafis³

et al. 2023

PLoS ONE

View full text Add to dashboard Cite

The emergency presented through the COVID-19 pandemic exposed the need to adopt remote, technology-driven solutions and make healthcare services more resilient. To do so, we need technological applications (i.e., telemedicine) that are designed and tailored to the end-users (i.e., chronic patients) needs and the type of healthcare service they get (i.e., cancer care). The requirements above are especially relevant to Greece, being a country with numerous sparsely populated regions (e.g., islands, regions at the borders) and a deteriorating access to healthcare for all citizens. Trying to address such diverse problems and needs, there have been multiple, different telemedicine and telecare projects in Greece in the past years. To support the future design and implementation of such endeavours, in this study we translated a questionnaire measuring the acceptance of telemedicine by patients and adapted it to the Greek context. We continued by running a small-scale pilot with 73 Greek women with breast cancer to assess the adapted instrument for its reliability and construct validity. The created questionnaire had good overall and internal reliability scores for most sub-scales. Factor analysis did not identify the same number of latent dimensions as the original theoretical model. Reverse wording items needing to be recoded were identified, and items that could be omitted in future versions of the questionnaire. Increasing the sample size for the purposes of a longitudinal study, the construct, convergent, and discriminant validity are elements to be further examined in future studies. It is envisaged that the creation of this questionnaire will support the adoption of telemedicine by Greek healthcare services into more routine areas of patient care provision.

show abstract

“…In this paper, we present a mobile notification scheme that was conceptualized, designed, and deployed as part of a mobile app used in the context of the MyPal project's 2 adult study [3] and is used to prompt patient input along the paradigm of electronic Patient Reported Outcomes (ePROs) for palliative care [4] and the delivery of personalized motivational messages.…”

Section: Introductionmentioning

confidence: 99%

Co-Designing Smartphone Notifications According to the Clinical Routine of Cancer Patients

Bonotis

Schera²,

Karamanidou

et al. 2022

Studies in Health Technology and Informatics

Self Cite

View full text Add to dashboard Cite

Although smartphone-based notifications offer a promising tool to support patient engagement and data collection via mobile health apps, attention must be given to the burden caused by frequent notifications and notification timing. This study presents a personalized mobile notification scheme, designed and developed to optimize reachability, and thus data collection from patients. Engineers, psychologists, oncologists, and patients were involved in various stages of a co-design approach and the presented implementation is currently used in the context of a clinical study.

show abstract

Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach

Cited by 11 publications

References 6 publications

Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study

Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study

Translation, cultural adaptation and pilot testing of a questionnaire measuring the factors affecting the acceptance of telemedicine by Greek cancer patients

Co-Designing Smartphone Notifications According to the Clinical Routine of Cancer Patients

Contact Info

Product

Resources

About