Using Discharge Abstracts to Evaluate a Regional Perinatal Network: Assessment of the Linkage Procedure of Anonymous Data

Quantin, Catherine; Ferdynus, Cyril; Avillach, Paul; Gouyon, Béatrice; Sagot, Paul; Gouyon, Jean‐Bernard

doi:10.1155/2009/181842

Cited by 12 publications

(11 citation statements)

References 11 publications

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“… 7 Further, by linking birth certificate data on gestational age and birth weight with death certificates it is possible to calculate subgroup mortality rates which are essential for monitoring infant health status and understanding patterns of mortality over time. 3 , 6 , 65 , 69 , 70 Because vital statistics data are available everywhere in Europe, 1 basic linkage of birth and death certificates should be possible in all countries. All European countries also have hospital discharge data, 71 yet routine linkage of these data with birth certificates and other population datasets was only carried out in only a fourth of countries.…”

Section: Discussionmentioning

confidence: 99%

Linking databases on perinatal health: a review of the literature and current practices in Europe

Delnord

Szamotulska²,

Hindori-Mohangoo

et al. 2016

Eur J Public Health

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Background: International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting. Methods: We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance. Results: 516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring. Conclusion: Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.

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Section: Discussionmentioning

confidence: 99%

Linking databases on perinatal health: a review of the literature and current practices in Europe

Delnord

Szamotulska²,

Hindori-Mohangoo

et al. 2016

Eur J Public Health

View full text Add to dashboard Cite

show abstract

“…7 Further, by linking birth certificate data on gestational age and birth weight with death certificates it is possible to calculate subgroup mortality rates which are essential for monitoring infant health status and understanding patterns of mortality over time. 3,6,65,69,70 Because vital statistics data are available everywhere in Europe, 1 basic linkage of birth and death certificates should be possible in all countries. All European countries also have hospital discharge data, 71 yet routine linkage of these data with birth certificates and other population datasets was only carried out in only a fourth of countries.…”

Section: Discussionmentioning

confidence: 99%

Linking databases on perinatal health: a review of the literature and current practices in Europe

Delnord

Szamotulska²,

Monhangoo

et al. 2014

European Journal of Public Health

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“…The study population consisted of all singleton preterm births, between 24 and 36 weeks of gestation, without chromosomal aberrations, recorded in the Burgundy Perinatal Network database, between January 2000 and December 2009. This database contains information on all live births and stillbirths that occur in the French region of Burgundy at a gestational age ≥22 weeks, and is used to regularly assess the Burgundy Perinatal Network procedures . This database contains the data on more than 99.9% of all births in the region .…”

Section: Methodsmentioning

confidence: 99%

“…This database contains information on all live births and stillbirths that occur in the French region of Burgundy at a gestational age ≥22 weeks, and is used to regularly assess the Burgundy Perinatal Network procedures . This database contains the data on more than 99.9% of all births in the region . In France, gestational age is assessed on the basis of the mother's last menstrual period and confirmed or modified, when necessary, by routine early antenatal ultrasound scan, which is performed for approximately 95% of pregnant women …”

Section: Methodsmentioning

confidence: 99%

Comparison of the ability of alternative birthweight and fetal weight standards to identify preterm newborns at increased risk of perinatal death

Ferdynus

Quantin

Abrahamowicz

et al. 2013

BJOG

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Objective To compare prediction of perinatal deaths among preterm infants based on fetal weight standards versus a new subpopulation-based birthweight standard.Design Population-based cohort study.Setting France.Population A total of 9100 preterm singletons, born between 24 and 36 weeks of gestation in 2000-09, in Burgundy (France).Methods We first classified all newborns as either small for gestational age (SGA) or not, based on alternative fetal weight or birthweight standards, including a new birthweight standard that excludes infants born to mothers with disease related to the weight of a fetus. Based on discrepancies between the different classifications, we then divided the newborns into four groups, and compared their risks of stillbirth and in-hospital death, using a generalised linear model with relative risks (RR).Main outcome measures Perinatal deaths, including, in separate analyses, stillbirths and in-hospital deaths.Results The preterm infants classified as SGA by our new subpopulation-based birthweight standard but not by the conventional birthweight standard had a significantly higher risk of both stillbirth (RR = 2.6; 95% confidence interval [95% CI] = 1.9-3.6) and in-hospital death (RR = 2.8; 95% CI = 1.8-4.5). In contrast, no risk increase was found for infants classified as SGA by the fetal standard only (RR = 1.1; 95% CI = 0.7-1.7 for stillbirths, and RR = 0.5; 95% CI = 0.3-1.3 for in-hospital deaths).Conclusions Our subpopulation-based birthweight standard identified a subgroup of preterm newborns who have significantly increased risks of perinatal death but are not classified as SGA by the conventional birthweight standard. In contrast, the subgroup classified as SGA by the fetal standards only, but not by our subpopulation-based birthweight standard, had no increased risk of mortality, compared with non-SGA infants.

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Using Discharge Abstracts to Evaluate a Regional Perinatal Network: Assessment of the Linkage Procedure of Anonymous Data

Cited by 12 publications

References 11 publications

Linking databases on perinatal health: a review of the literature and current practices in Europe

Linking databases on perinatal health: a review of the literature and current practices in Europe

Linking databases on perinatal health: a review of the literature and current practices in Europe

Comparison of the ability of alternative birthweight and fetal weight standards to identify preterm newborns at increased risk of perinatal death

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