Using biological samples for youth ATOD survey validation

Gassman, Ruth A.; Agley, Jon; Fly, Alyce D.; Beckmeyer, Jonathon J.; He, Ka; Sayegh, M. Aaron; Tidd, David

doi:10.3109/16066359.2015.1094061

Cited by 10 publications

(34 citation statements)

References 28 publications

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“…While our observed matching rate likely could have been improved by the addition of such elements, such as birth month, which had only a 1.5% mean error rate in Audette et al's (2020) meta-analysis, each additional personalized element may increase the risk of participant or observer concern with the study (Gassman et al, 2019). School and community support for research, even when it is benign and/or potentially beneficial with few possible detrimental outcomes, may rest not only on actual adherence to ethical conduct of research but also on affirmatively creating an appearance that this is so (where it may not be obvious; Gassman et al, 2016;Gassman et al, 2019). Additional research to identify other usable but nonpersonal longitudinal matching elements would be valuable and could potentially extend to other venues and populations such as military personnel, where confidentiality is key but prior attempts to link data have struggled (Wilson et al, 2010).…”

Section: Resultsmentioning

confidence: 99%

“…At least one study has raised the possibility that some students will assume that research projects are being sponsored and conducted by the school and that the school may have an interest in using data punitively, producing heightened apprehension about anonymity and concomitant reluctance to participate (Gassman et al, 2016). Furthermore, even though there appears to be a consensus that using individual letters or numbers from personal elements makes reidentification of participants highly unlikely (Audette et al, 2020), parents or students may react to the mere mention of middle initials or birthdays on a survey that is labeled anonymous and assume a breach of trust, or even malfeasance (Gassman et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

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Developing and Validating a Novel Anonymous Method for Matching Longitudinal School-Based Data

Agley

Tidd

Jun

et al. 2020

Educational and Psychological Measurement

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Prospective longitudinal data collection is an important way for researchers and evaluators to assess change. In school-based settings, for low-risk and/or likely-beneficial interventions or surveys, data quality and ethical standards are both arguably stronger when using a waiver of parental consent—but doing so often requires the use of anonymous data collection methods. The standard solution to this problem has been the use of a self-generated identification code. However, such codes often incorporate personalized elements (e.g., birth month, middle initial) that, even when meeting the technical standard for anonymity, may raise concerns among both youth participants and their parents, potentially altering willingness to participate, response quality, or generating outrage. There may be value, therefore, in developing a self-generated identification code and matching approach that not only is technically anonymous but also appears anonymous to a research-naive individual. This article provides a proof of concept for a novel matching approach for school-based longitudinal data collection that potentially accomplishes this goal.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Developing and Validating a Novel Anonymous Method for Matching Longitudinal School-Based Data

Agley

Tidd

Jun

et al. 2020

Educational and Psychological Measurement

Self Cite

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“…Researchers have long acknowledged that “public understanding of science, and of public risk perceptions, are not so much about public capabilities...but about the trust and credibility they are prepared to invest...” [37]. This may extend beyond conspiratorial or government-related concerns to the schools themselves, which may not be trusted [38] or which may, as seen in this study, be viewed solely as an adversarial government apparatus. Thus, while it may be necessary to thoroughly outline survey procedures and protocols for public consumption, it is likely not sufficient.…”

Section: Discussionmentioning

confidence: 99%

Social Media Outrage in Response to a School-Based Substance Use Survey: Qualitative Analysis

Gassman¹,

Dutta²,

Agley³

et al. 2019

J Med Internet Res

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Background School-based alcohol, tobacco, and other drug use (ATOD) surveys are a common epidemiological means of understanding youth risk behaviors. They can be used to monitor national trends and provide data, in aggregate, to schools, communities, and states for the purposes of funding allocation, prevention programming, and other supportive infrastructure. However, such surveys sometimes are targeted by public criticism, and even legal action, often in response to a lack of perceived appropriateness. The ubiquity of social media has added the risk of potential online firestorms, or digital outrage events, to the hazards to be considered when administering such a survey. Little research has investigated the influence of online firestorms on public health survey administration, and no research has analyzed the content of such an occurrence. Analyzing this content will facilitate insights as to how practitioners can minimize the risk of generating outrage when conducting such surveys. Objective This study aimed to identify common themes within social media comments comprising an online firestorm that erupted in response to a school-based ATOD survey in order to inform risk-reduction strategies. Methods Data were collected by archiving all public comments made in response to a news study about a school-based ATOD survey that was featured on a common social networking platform. Using the general inductive approach and elements of thematic analysis, two researchers followed a multi-step protocol to clean, categorize, and consolidate data, generating codes for all 207 responses. Results In total, 133 comments were coded as oppositional to the survey and 74 were coded as supportive. Among the former, comments tended to reflect government-related concerns, conspiratorial or irrational thinking, issues of parental autonomy and privacy, fear of child protective services or police, issues with survey mechanisms, and reasoned disagreement. Among the latter, responses showed that posters perceived the ability to prevent abuse and neglect and support holistic health, surmised that opponents were hiding something, expressed reasoned support, or made factual statements about the survey. Consistent with research on moral outrage and digital firestorms, few comments (<10%) contained factual information about the survey; nearly half of the comments, both supportive and oppositional, were coded in categories that presupposed misinformation. Conclusions The components of even a small online firestorm targeting a school-based ATOD survey are nuanced and complex. It is likely impossible to be fully insulated against the risk of outrage in response to this type of public health work; however, careful articulation of procedures, anticipating specific concerns, and two-way community-based interaction may reduce risk.

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“…Research on the collection of biomarker data among youth is mixed. Whereas some researchers report that the collection of biomarker data among youth is acceptable [45–46], others suggest that youth perceive the collection of these data as punitive and signals the research team’s mistrust toward the youth [47]. Therefore, more research, especially in clinic settings, is needed.…”

Section: Discussionmentioning

confidence: 99%

A multilevel mHealth drug abuse and STI/HIV preventive intervention for clinic settings in the United States: A feasibility and acceptability study

et al. 2019

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Background Drug abuse and sexually transmitted infections (STIs), including the human immunodeficiency virus (HIV), remain significant public health concerns in the United States. Youth are at disproportionate risk of drug use and STIs/HIV, yet interventions aimed at improving STI and HIV testing and reducing STI/HIV risk behaviors through technology-based engagement in clinic settings are limited. The purpose of this study was to examine the feasibility and acceptability of Storytelling 4 Empowerment (S4E), a multilevel mobile-health drug abuse and STI/HIV preventive application (app) for clinic settings. We also explored uptake of STI/HIV testing among youth immediately post-intervention. Method Employing community-based participatory research principles and a multi-method research design, we developed a clinician-facing app, and examined the feasibility and acceptability of S4E among clinicians (n = 6) and youth (n = 20) in an urban youth-centered community health clinic. S4E aimed to improve clinician–youth risk communication and youths’ drug use and STI/HIV knowledge, self-efficacy, and refusal skills. We also explored youths’ uptake of STI and HIV testing. Quantitative data were analyzed by computing mean scores and proportions, and qualitative analyses followed the tenets of content analysis. Results Among eligible participants, 86.9% of youth and 85.7% of clinicians enrolled in the study, suggesting the feasibility of recruiting participants from the targeted clinic. Most clinicians identified as non-Hispanic white (83%) and female (66.7%). Among the youth, 70% identified as non-Hispanic white, followed by 30% African American, and 50% identified as female with a mean age of 19.6 (SD = 1.5, Range = 16–21). The quantitative findings suggest that the acceptability of S4E is high, as indicated by the Client Satisfaction Questionnaire (mean score = 25.2, SD: 4.8). Immediately post-intervention, all youth who reported past 90-day condomless sex or having never been tested for STIs or HIV in their lifetime, were tested for both STIs and HIV. Qualitative themes revealed four overarching themes, including S4E: (1) faciliated timely, targeted, and tailored prevention and risk reduction strategies; (2) shaped clinician and youth communication and interaction during the clinic visit; (3) may have improved uptake of STI/HIV testing and increased STI/HIV knowledge and self-efficacy; and (4) had high feasibiliy and acceptability among youth and clninicans. Conclusions Findings suggest the feasibility and acceptability of S4E in an urban community-based health clinic setting. A next important step is to examine the efficacy of S4E in a randomized controlled trial design.

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Using biological samples for youth ATOD survey validation

Cited by 10 publications

References 28 publications

Developing and Validating a Novel Anonymous Method for Matching Longitudinal School-Based Data

Developing and Validating a Novel Anonymous Method for Matching Longitudinal School-Based Data

Social Media Outrage in Response to a School-Based Substance Use Survey: Qualitative Analysis

A multilevel mHealth drug abuse and STI/HIV preventive intervention for clinic settings in the United States: A feasibility and acceptability study

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