Using a Participatory Four-Step Protocol to Develop Culturally Targeted Cancer Education Brochures

Kulukulualani, Manny; Braun, Kathryn L.; Tsark, JoAnn U.

doi:10.1177/1524839907302737

Cited by 17 publications

(22 citation statements)

References 21 publications

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“…This research also better illuminates health information needs, health literacy, and health communication challenges among rural Native Hawaiian and Filipino women, supporting existing research [8, 10] and programs [9, 15] that seek to improve cancer knowledge and address cancer disparities among these populations. Health literacy is useful to consider.…”

Section: Discussionsupporting

confidence: 67%

“…Also, little is known about this topic from the perspectives of individuals from these distinct cultures, although it is critical to understand cultural context in cancer education efforts [7]. Previous research with Native Hawaiians and Filipinos in Hawai’i suggests that these groups have distinct preferences regarding health information dissemination in general and specifically in relation to cancer screening [8, 9, 10]. Greater knowledge of health information challenges and preferences among Native Hawaiians and Filipinos can help improve and tailor cancer education for these vulnerable ethnic groups.…”

Section: Introductionmentioning

confidence: 99%

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Health Literacy, Health Communication Challenges, and Cancer Screening Among Rural Native Hawaiian and Filipino Women

et al. 2013

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Native Hawaiians and Filipinos are disproportionately impacted by cancer, and are less likely to participate in cancer screening than whites. Limited information exists about health information pathways and health communication challenges as they relate to cancer screening in these groups. Six focus groups (n=77) of Native Hawaiian and Filipino women age 40+ years were conducted to investigate these research gaps. Participants noted many health information challenges. Challenges were both practical and interpersonal and included both written and oral health communication. Practical challenges included “big” words, complexity of terms, and lack of plain English. Interpersonal issues included doctors rushing, doctors not assessing comprehension, and doctors treating respondents as patients not people. Women noted that they would often not ask questions even when they knew they did not understand because they did not want the provider to think negatively of them. Overarching themes to improve cancer communication gaps included: (1) the importance of family and community in health information dissemination; (2) the key role women play in interpreting health information for others; (3) the importance of personal experience and relationships to the salience of health information; and (4) the desire for local cultural relevance in health communication. Findings are discussed in light of the 2010 National Action Plan for Health Literacy.

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Section: Discussionsupporting

confidence: 67%

Section: Introductionmentioning

confidence: 99%

Health Literacy, Health Communication Challenges, and Cancer Screening Among Rural Native Hawaiian and Filipino Women

et al. 2013

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“…27–34 CBPR methods also informed the development of health education materials and interventions that were attractive to and welcomed by the community. 18,25,30,35–38 Many CNPs successfully employed community members in intervention delivery. 39–45 …”

Section: Resultsmentioning

confidence: 99%

The National Cancer Institute’s Community Networks Program Initiative to Reduce Cancer Health Disparities: Outcomes and Lessons Learned

Braun¹,

Stewart²,

Baquet³

et al. 2015

cpr

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Background We describe reach, partnerships, products, benefits, and lessons learned of the 25 Community Network Programs (CNPs) that applied community-based participatory research (CBPR) to reduce cancer health disparities. Methods Quantitative and qualitative data were abstracted from CNP final reports. Qualitative data were grouped by theme. Results Together, the 25 CNPs worked with more than 2,000 academic, clinical, community, government, faith-based, and other partners. They completed 211 needs assessments, leveraged funds for 328 research and service projects, trained 719 new investigators, educated almost 55,000 community members, and published 991 articles. Qualitative data illustrated how use of CBPR improved research methods and participation; improved knowledge, interventions, and outcomes; and built community capacity. Lessons learned related to the need for time to nurture partnerships and the need to attend to community demand for sustained improvements in cancer services. Implications Findings demonstrate the value of government-supported, community–academic, CBPR partnerships in cancer prevention and control research.

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“…Elements from other brochures that were particularly attractive were bulleted points, pictures, testimonials, vivid colors, and an immunization chart. Also, as reflected in other studies, parents wanted a brochure tailored to the local population, reflecting local faces in the photos and voices in the testimonials [32–33]. This brochure can supplement a physician’s recommendation and address HPV knowledge barriers.…”

Section: Discussionmentioning

confidence: 99%

Human Papillomavirus (HPV) Vaccination Motivators, Barriers, and Brochure Preferences Among Parents in Multicultural Hawai‘i: a Qualitative Study

et al. 2016

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The human papillomavirus (HPV) vaccine can prevent cervical and other cancers. Unfortunately, according to the National Immunization Survey–Teen 2014 data, completion of the HPV vaccine was only 38% for 13 to 17-year-old girls and 31% for 13 to 17-year-old boys in the US, and prevalence was similar in Hawai‘i. Parents’ acceptability of the HPV vaccine is critical for the vaccine uptake, and this can be increased by educational materials and interventions. However, HPV materials are not widely distributed in Hawai‘i. The purpose of this qualitative study was to identify HPV vaccination barriers, motivators, and brochure preferences among parents of teens in multicultural Hawai‘i. Twenty parents were interviewed in person or by telephone. Four major themes emerged: (1) the physician is critical in the decision to vaccinate; (2) parental perception of the child’s sexual activity guides the timing of their willingness to vaccinate; (3) HPV health education materials should be provided and discussed by the physician; and (4) Parents would prefer an educational brochure that features local faces and testimonials, includes an immunization chart, and addresses barriers to vaccination. These findings informed the development of HPV health education materials tailored to Asian Americans and Pacific Islanders in Hawai‘i.

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Using a Participatory Four-Step Protocol to Develop Culturally Targeted Cancer Education Brochures

Cited by 17 publications

References 21 publications

Health Literacy, Health Communication Challenges, and Cancer Screening Among Rural Native Hawaiian and Filipino Women

Health Literacy, Health Communication Challenges, and Cancer Screening Among Rural Native Hawaiian and Filipino Women

The National Cancer Institute’s Community Networks Program Initiative to Reduce Cancer Health Disparities: Outcomes and Lessons Learned

Human Papillomavirus (HPV) Vaccination Motivators, Barriers, and Brochure Preferences Among Parents in Multicultural Hawai‘i: a Qualitative Study

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