Using a participatory evaluation design to create an online data collection and monitoring system for New Mexico's Community Health Councils

Andrews, Mark; Sánchez, Victoria; Carrillo, Cristihan; Allen-Ananins, B.; Cruz, Y.B.

doi:10.1016/j.evalprogplan.2013.09.003

Cited by 9 publications

(6 citation statements)

References 24 publications

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“…CHC size ranged from 7-42 members, SNA response rate ranged from 50%-91%, and CSAS response rate ranged from 32%-89%. The CSAS has been used extensively across coalition evaluation work (e.g., (Hasnain-Wynia et al, 2003, Andrews et al, 2014 ., , Peterson et al, 2006), and the response rates we obtained are consistent with work by Hasnain-Wynia, et al (2003) (28%-83% across partnerships) (Hasnain-Wynia et al, 2003).…”

Section: Response Ratessupporting

confidence: 73%

A mixed-methods evaluation using effectiveness perception surveys, social network analysis, and county-level health statistics: A pilot study of eight rural Indiana community health coalitions

Ken-Opurum

Lynch

Vandergraff

et al. 2019

Evaluation and Program Planning

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Community health coalitions (CHCs) are a promising approach for addressing disparities in rural health statistics. However, their effectiveness has been variable, and evaluation methods have been insufficient and inconsistent. Thus, we propose a mixed-methods evaluation framework and discuss pilot study findings. CHCs in our pilot study partnered with Purdue Extension. Extension links communities and land grant universities, providing programming and support for community-engaged research. We conducted social network analysis and effectiveness perception surveys in CHCs in 8 rural Indiana counties during summer 2017 and accessed county-level health statistics from 2015-16. We compared calculated variables (i.e., effectiveness survey k-means clusters, network measures, health status/outcomes) using Pearson's correlations. CHC members' positive perceptions of their leadership and functioning correlated with interconnectedness in their partnership networks, while more centralized partnership networks correlated with CHC members reporting problems in their coalitions. CHCs with highly rated leadership and functioning developed in counties with poor infant/maternal health and opioid outcomes. Likewise, CHCs reporting fewer problems for participation developed in counties with poor infant/maternal health, poor opioid outcomes, and more people without healthcare coverage. This pilot study provides a framework for iterative CHC evaluation. As the evidence grows, we will make recommendations for best practices that optimize CHC partnerships to improve local health in rural areas.

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Section: Response Ratessupporting

confidence: 73%

A mixed-methods evaluation using effectiveness perception surveys, social network analysis, and county-level health statistics: A pilot study of eight rural Indiana community health coalitions

Ken-Opurum

Lynch

Vandergraff

et al. 2019

Evaluation and Program Planning

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“…With regard to external accountability, there are generally two sub-clusters: one focusing on the creation of spaces for user involvement and citizen engagement/decision-making [23,110,[127][128][129], usually measuring performance using quantitative approaches. The second sub-cluster focuses on the degree and quality of engagement and participation [130][131][132][133], and these tend to apply mixed method approaches [12,134,135], described as necessary for the complexity involved in this assessment.…”

Section: Description Of Categorization 3: Responsiveness As Accountabilitymentioning

confidence: 99%

Health system responsiveness: a systematic evidence mapping review of the global literature

Khan

Kagwanja

Whyle

et al. 2021

Int J Equity Health

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Background The World Health Organisation framed responsiveness, fair financing and equity as intrinsic goals of health systems. However, of the three, responsiveness received significantly less attention. Responsiveness is essential to strengthen systems’ functioning; provide equitable and accountable services; and to protect the rights of citizens. There is an urgency to make systems more responsive, but our understanding of responsiveness is limited. We therefore sought to map existing evidence on health system responsiveness. Methods A mixed method systemized evidence mapping review was conducted. We searched PubMed, EbscoHost, and Google Scholar. Published and grey literature; conceptual and empirical publications; published between 2000 and 2020 and English language texts were included. We screened titles and abstracts of 1119 publications and 870 full texts. Results Six hundred twenty-one publications were included in the review. Evidence mapping shows substantially more publications between 2011 and 2020 (n = 462/621) than earlier periods. Most of the publications were from Europe (n = 139), with more publications relating to High Income Countries (n = 241) than Low-to-Middle Income Countries (n = 217). Most were empirical studies (n = 424/621) utilized quantitative methodologies (n = 232), while qualitative (n = 127) and mixed methods (n = 63) were more rare. Thematic analysis revealed eight primary conceptualizations of ‘health system responsiveness’, which can be fitted into three dominant categorizations: 1) unidirectional user-service interface; 2) responsiveness as feedback loops between users and the health system; and 3) responsiveness as accountability between public and the system. Conclusions This evidence map shows a substantial body of available literature on health system responsiveness, but also reveals evidential gaps requiring further development, including: a clear definition and body of theory of responsiveness; the implementation and effectiveness of feedback loops; the systems responses to this feedback; context-specific mechanism-implementation experiences, particularly, of LMIC and fragile-and conflict affected states; and responsiveness as it relates to health equity, minority and vulnerable populations. Theoretical development is required, we suggest separating ideas of services and systems responsiveness, applying a stronger systems lens in future work. Further agenda-setting and resourcing of bridging work on health system responsiveness is suggested.

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“…A good example for such a strategy is the online data collection and monitoring system for New Mexico’s Community Health Councils (USA), which was developed collectively by applying a participatory evaluation design. The result is a system which has relevance for both public health professionals and the wider community [ 82 ]. Participatory planning and other dialogical methods ensured the development of locally suitable and relevant indicators.…”

Section: Discussion: Advancing Participatory Epidemiologymentioning

confidence: 99%

“…Interestingly, another study in the same context reported that the commitment among the stakeholders applying a participatory approach clearly outweighed these conflicts. By acknowledging the value of intermediate outcomes the collaboration can be sustained [ 82 ].…”

Section: Methodsmentioning

confidence: 99%

Participatory epidemiology: the contribution of participatory research to epidemiology

Bach

Jordan

Härtung

et al. 2017

Emerg Themes Epidemiol

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BackgroundEpidemiology has contributed in many ways to identifying various risk factors for disease and to promoting population health. However, there is a continuing debate about the ability of epidemiology not only to describe, but also to provide results which can be better translated into public health practice. It has been proposed that participatory research approaches be applied to epidemiology as a way to bridge this gap between description and action. A systematic account of what constitutes participatory epidemiology practice has, however, been lacking.MethodsA scoping review was carried out focused on the question of what constitutes participatory approaches to epidemiology for the purpose of demonstrating their potential for advancing epidemiologic research. Relevant databases were searched, including both the published and non-published (grey) literature. The 102 identified sources were analyzed in terms of comparing common epidemiologic approaches to participatory counterparts regarding central aspects of the research process. Exemplary studies applying participatory approaches were examined more closely.ResultsA highly diverse, interdisciplinary body of literature was synthesized, resulting in a framework comprised of seven aspects of the research process: research goal, research question, population, context, data synthesis, research management, and dissemination of findings. The framework specifies how participatory approaches not only differ from, but also how they can enhance common approaches in epidemiology. Finally, recommendations for the further development of participatory approaches are given. These include: enhancing data collection, data analysis, and data validation; advancing capacity building for research at the local level; and developing data synthesis.ConclusionThe proposed framework provides a basis for systematically developing the emergent science of participatory epidemiology.

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Using a participatory evaluation design to create an online data collection and monitoring system for New Mexico's Community Health Councils

Cited by 9 publications

References 24 publications

A mixed-methods evaluation using effectiveness perception surveys, social network analysis, and county-level health statistics: A pilot study of eight rural Indiana community health coalitions

A mixed-methods evaluation using effectiveness perception surveys, social network analysis, and county-level health statistics: A pilot study of eight rural Indiana community health coalitions

Health system responsiveness: a systematic evidence mapping review of the global literature

Participatory epidemiology: the contribution of participatory research to epidemiology

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