Using a Flexible Diary Method Rigorously and Sensitively With Family Carers

Herron, Rachel; Dansereau, Lisette; Wrathall, Meghan; Funk, Laura; Spencer, Dale

doi:10.1177/1049732318816081

Cited by 30 publications

(49 citation statements)

References 37 publications

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“…Writing presents an opportunity to improve the well-being of caregivers and qualitative data collection methods for researchers. 20 Journaling promotes awareness and emotional regulation, develops insight, and allows the writer to conduct deeper reflection and introspection regarding their feelings and relationships. 21 Relatedly, journal entry methods offer a contactless option for data collection and can leverage technology such as audio recordings and email for contact-less data collection.…”

Section: Methodsmentioning

confidence: 99%

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Home Care Aide Safety Concerns and Job Challenges During the COVID-19 Pandemic

et al. 2021

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Home care aides are on the frontlines providing care to vulnerable individuals in their homes during the COVID-19 pandemic yet are often excluded from policies to protect health care workers. The goal of this study was to examine experiences of agency-employed home care aides during the COVID-19 pandemic and to identify ways to mitigate concerns. We used an innovative journaling approach with thirty-seven aides as well as in-depth interviews with fifteen aides and leadership representatives from nine home health agencies in New York and Michigan. Workers described a range of concerns around workplace safety including uncertainty around whether a client had COVID-19, inadequate access to personal protective equipment and safe transportation, as well as fundamental changes to interactions with clients. Agencies also faced challenges acquiring personal protective equipment for their aides. This research points to needed resources to support home care aides and home health agencies both during a public health crisis and in the future.

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Section: Methodsmentioning

confidence: 99%

“…21 Relatedly, journal entry methods offer a contactless option for data collection and can leverage technology such as audio recordings and email for contact-less data collection. 20…”

Section: Methodsmentioning

confidence: 99%

Home Care Aide Safety Concerns and Job Challenges During the COVID-19 Pandemic

et al. 2021

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“…In our study, the fact that hypertension was not perceived to be a serious and/or chronic condition requiring constant attention, partly due to local conceptions of the illness (Lasco et al, 2020), may have resulted in low levels of engagement. Nonetheless, for situations or conditions that do have a major impact on the day-today experiences of participants, digital diaries may provide promising insights from individuals as they deal with symptomatic episodes, chronic pain, stress, or discrimination (Alaszewski, 2006;Bernays et al, 2014;Furness & Garrud, 2010;Hensel et al, 2012;Herron et al, 2019;Sargeant & Gross, 2011). The experiences of OOR using digital diaries in different settings are interesting, but insufficiently documented.…”

Section: Lessons For Future Researchmentioning

confidence: 99%

Strengths and Weaknesses of Digital Diaries as a Means to Study Patient Pathways: Experiences With a Study of Hypertension in the Philippines

Mendoza

Seguin

Lasco

et al. 2021

International Journal of Qualitative Methods

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The rise of digital mobile communications has made possible novel research methods that can provide a better understanding of patients’ experience of non-communicable diseases. This study explores the opportunities and challenges in employing “digital diaries” via mobile phones to track the lived experiences of people with hypertension in the Philippines. Following in-depth interviews, 40 hypertensive adults were invited to submit digital diaries over 12 months. Mobile phones were found to be an efficient way of reaching participants, although it was difficult to collect in-depth narratives about their experiences using the medium beyond nominal responses about symptoms and treatment. Possible explanations include the asymptomatic nature of hypertension, which limited the participants’ experiences of the illness, as well as the platform itself, which our mostly-elderly, low-income participants may not be comfortable with. Despite these challenges, “digital diaries” hold potential for the study of other chronic conditions, provided that researchers engage in extensive co-production with participants to understand their preferences. Researchers also need more training in the use of these methods appropriately as part of a suite of methods for capturing the experience of people living with chronic illness.

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“…For some, diary writing may lead participants to reveal more private insights into situations that they are less willing to discuss in an interview context 13 . Conversely, however, this aspect of diary keeping also raises ethical considerations 14,15 . Bartlett and Milligan point out that while diary keeping can have therapeutic and positive benefits, the recollection of negative situations also risks psychological distress 16 …”

Section: Introductionmentioning

confidence: 99%

‘A lot of small things make a difference’. Mental health and strategies of coping during the COVID‐19 pandemic

Halliday

Holt

Khan

et al. 2021

Health Expectations

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Introduction The social and economic consequences of COVID‐19 have the potential to affect individuals and populations through different pathways (e.g., bereavement, loss of social interaction). Objective This study adopted a solicited diary method to understand how mental health was affected during England's first lockdown. We also considered the experiences of diary keeping during a pandemic from the perspective of public participants. Methods Fifteen adults older than 18 years of age were recruited from northwest England. Diarists completed semistructured online diaries for 8 weeks, which was combined with weekly calls. A focus group captured participants' experiences of diary keeping. Findings Four key factors influenced mental health, which fluctuated over time and in relation to diarists' situations. These concerned navigating virus risk, loss of social connections and control and constrictions of the domestic space. Diarists also enacted a range of strategies to cope with the pandemic. This included support from social networks, engagement with natural environments, establishing normality, finding meaning and taking affirmative action. Conclusion Use of diary methods provided insights into the lived experiences of the early months of a global pandemic. As well as contributing evidence on its mental health effects, diarists' accounts illuminated considerable resourcefulness and strategies of coping with positive effects for well‐being. While diary keeping can also have therapeutic benefits during adversity, ethical and practical issues need to be considered, which include the emotional nature of diary keeping. Public Contribution Members of the public were involved in interpretation of data as well as critiquing the overall diary method used in the study.

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Using a Flexible Diary Method Rigorously and Sensitively With Family Carers

Cited by 30 publications

References 37 publications

Home Care Aide Safety Concerns and Job Challenges During the COVID-19 Pandemic

Home Care Aide Safety Concerns and Job Challenges During the COVID-19 Pandemic

Strengths and Weaknesses of Digital Diaries as a Means to Study Patient Pathways: Experiences With a Study of Hypertension in the Philippines

‘A lot of small things make a difference’. Mental health and strategies of coping during the COVID‐19 pandemic

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