Using a community based participatory research model within an indigenous framework to establish an exploratory platform of investigation into obesity

Bell, Ricky; Tumilty, Steve; Kira, Geoffrey; Smith, Christopher; Hale, Leigh

doi:10.1016/j.obmed.2016.03.001

Cited by 15 publications

(17 citation statements)

References 16 publications

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“…53 Moreover, throughout the research process it is important to iteratively obtain feedback from communities, relating to data collection processes and research progress. 27 Any collected data should belong to the communities which they are derived from, 20 and any intellectual property rights generated from the research need to reflect this. 39 Community members need to be consulted for interpreting findings, through creating a safe space for knowledge exchange between Indigenous knowledge and researcher views.…”

Section: Discussionmentioning

confidence: 99%

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Community engagement approaches for Indigenous health research: recommendations based on an integrative review

et al. 2020

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ObjectiveCommunity engagement practices in Indigenous health research are promoted as a means of decolonising research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesise a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous peoples in Canada, the USA, Australia and New Zealand.DesignIntegrative review of the literature in medical (Medline, Cumulative Index to Nursing and Allied Health Literature and Embase) and Google and WHO databases (search cut-off date 21 July 2020).Article selectionStudies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full-text articles.AnalysisRecommendations for community engagement approaches were extracted and thematically synthesised through content analysis.ResultsA total of 63 studies were included in the review, with 1345 individual recommendations extracted. These were synthesised into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorised by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building and active reflection.ConclusionsWe provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect on their practices, encouraging changes in research processes that are strengths based.

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Section: Discussionmentioning

confidence: 99%

“… 53 Moreover, throughout the research process it is important to iteratively obtain feedback from communities, relating to data collection processes and research progress. 27 …”

Section: Discussionmentioning

confidence: 99%

Community engagement approaches for Indigenous health research: recommendations based on an integrative review

et al. 2020

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“…We use this whakataukī to illustrate the need to ground interventions in the community co-developed and supported by the status and self-determination of community members. CE and CEnR are advocated for by indigenous and non-indigenous researchers, community members, and public health practitioners working with indigenous communities as a method for improving health and achieving health equity [ 52 – 54 ]. CE is a process of collaborating with groups directly affected by a particular health issue or with groups who are working with those affected [ 55 ].…”

Section: Theoretical Foundationmentioning

confidence: 99%

“…CBPR involves partnership between researchers and community members/organizations in all phases of the research process and is guided by principles of action, social justice and power sharing [ 57 , 58 , 71 , 72 ]. These principles are key reasons CBPR and other CE approaches are supported by indigenous scholars [ 18 , 53 , 54 ].…”

Section: Theoretical Foundationmentioning

confidence: 99%

Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

et al. 2017

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Background: About 40% of all health burden in New Zealand is due to cancer, cardiovascular disease, and type 2 diabetes/obesity. Outcomes for Māori (indigenous people) are significantly worse than non-Maori; these inequities mirror those found in indigenous communities elsewhere. Evidence-based interventions with established efficacy may not be effective in indigenous communities without addressing specific implementation challenges. We present an implementation framework for interventions to prevent and treat chronic conditions for Māori and other indigenous communities. Theoretical framework: The He Pikinga Waiora Implementation Framework has indigenous self-determination at its core and consists of four elements: cultural-centeredness, community engagement, systems thinking, and integrated knowledge translation. All elements have conceptual fit with Kaupapa Māori aspirations (i.e., indigenous knowledge creation, theorizing, and methodology) and all have demonstrated evidence of positive implementation outcomes.

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“…44 Moreover, throughout the research process it is important to iteratively obtain feedback from communities, relating to data collection processes and research progress. 21 Any collected data should belong to the communities which they are derived from, 14 and any intellectual property rights generated from the research need to re ect this. 32 Community members need to be consulted for interpreting ndings, through creating a safe space for knowledge exchange between Indigenous knowledge and researcher views.…”

Section: Discussionmentioning

confidence: 99%

Community Engagement Approaches for Indigenous Health Research: an Integrative Review

Lin

Loyola‐Sánchez

Boyling

et al. 2020

Preprint

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Background Community engagement practices in Indigenous Health research are promoted as a means of decolonizing research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesize a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous Peoples.MethodsWe performed an integrative review of literature in medical (Medline, CINAHL and Embase), as well as Google and World Health Organization databases (search cutoff date November 17, 2018). Studies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full text articles. Recommendations for community engagement approaches were extracted and thematically synthesized through content analysis.Results A total of 52 studies were included in the review, with 1268 individual recommendations extracted. These were synthesized into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorized by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building, and active reflection.Conclusions We provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect upon their practices, encouraging changes in research processes that are strengths-based.

show abstract

Using a community based participatory research model within an indigenous framework to establish an exploratory platform of investigation into obesity

Cited by 15 publications

References 16 publications

Community engagement approaches for Indigenous health research: recommendations based on an integrative review

Community engagement approaches for Indigenous health research: recommendations based on an integrative review

Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

Community Engagement Approaches for Indigenous Health Research: an Integrative Review

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