User Perspective on Palliative Care Services: Experiences of Middle-aged Partners Bereaved through Cancer Known to Social Work Services in Northern Ireland

Agnew, Audrey; Manktelow, Roger; Donaghy, Kevin

doi:10.1080/09503150802341400

Cited by 7 publications

(8 citation statements)

References 37 publications

(34 reference statements)

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“…In parallel with the finding that positive support from others was the most helpful post-loss experience, lacking or unhelpful support from family, friends, and formal sources such as therapists, was the post-loss experience most frequently associated with poor bereavement outcomes (family and friends cited in 22 studies and formal sources cited in 15 studies). Characteristics that made individuals less helpful sources of support included their lack of personal experience with death [ 37 ], their underestimation of the significance of the loss [ 25 , 38 ], their pressure on the caregiver to “move on” [ 22 , 27 , 39 ], or conversely their pressure on the caregiver to talk about the loss when it was not desired [ 32 ].…”

Section: Resultsmentioning

confidence: 99%

“…Another factor found to negatively impact caregivers’ grieving process was intrinsic, rather than extrinsic: caregivers’ own reluctance to access bereavement support, mentioned in 13 studies. For some, this reluctance was present even before accessing services and was founded on skepticism regarding the usefulness of services [ 25 , 29 ] perceived stigma surrounding mental health support [ 32 , 37 ], or the belief that healing was a task one had to do alone [ 29 , 42 ]. For others, this reluctance emerged after unhelpful experiences with professional support [ 22 , 34 , 37 , 43 ]).…”

Section: Resultsmentioning

confidence: 99%

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Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

et al. 2017

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BackgroundFamily caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had cared for a person requiring palliative care, a comprehensive qualitative understanding of the impact of caregiving on bereavement has not been articulated. The purpose of this study was to conduct a qualitative metasummary to explore the experiences of bereaved family caregivers of people who received palliative care services, regardless of their underlying disease.MethodsSandelowski and Barroso’s qualitative metasummary method was utilized: 1287 articles were identified through extensive database searches (i.e. – MEDLINE, PsychINFO, and CINAHL) and reviewed to determine if they fit the criteria. Those included in the review were assessed for study quality. Findings from each study were then thematically coded and a frequency of themes was calculated.ResultsThe sample consisted of 47 qualitative studies. A total of 15 themes emerged. In descending order of frequency, the 15 themes were: the individual emotions of serenity, sadness, guilt, uncertainty, trauma, escape, and anger; post-loss experiences that helped the caregiver in bereavement; post-loss experiences that hindered; practical life changes; caregiver role identity; pre-loss experiences that helped; pre-loss experiences that hindered; caregiver context; and a need for different kinds of supports. Three key findings emerged from the themes: (1) many different aspects of the caregiving experience impact the bereavement experience, (2) every bereavement experience is unique, and (3) a variety of supports must be developed and made available to caregivers to meet these unique needs.ConclusionsBased on the metasummary findings, changes are needed in practice and policy to ensure the health and well-being of the family caregiver is maintained by offering support both during caregiving and bereavement.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

et al. 2017

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“…Efficacy studies suggests that clinical interventions should be delivered by specifically trained professionals, and targeted at the 5-20% of people experiencing complex grief (Walsh et al, 2008). In order to appropriately target interventions, a risk assessment model is needed (Agnew et al, 2008), as informal models have been found to promote ad hoc or inconsistent practice (Payne & Relf, 1994). While this represents an important gap in the service, it is not unique to this study; a survey of GP referrals for bereavement counseling found that risk assessment procedures were not undertaken (Wiles, Jarrett, Payne, & Field, 2002).…”

Section: Discussionmentioning

confidence: 99%

“…While there is no universally agreed-upon bereavement model of care, Agnew, Manktelow, and Donaghy (2008) suggested that the traditional models proposed by Freud (1915), Lindemann (1944), Bowlby (1969), Kubler-Ross, (1969), Parkes (1986), and Worden (1991) have been superseded by a dual process model (Stroebe & Schut, 1999). This model emphasizes the dynamic nature of coping with bereavement in which the bereaved person will oscillate in time between loss-orientated and restoration-orientated behaviors.…”

Section: Bereavement Carementioning

confidence: 97%

A Qualitative Evaluation of the Provision of Bereavement Care Accessed by Service Users Living in a Health and Social Care Trust Area in Northern Ireland

Montgomery

Campbell²

2012

Journal of Social Work in End-Of-Life & Palliative Care

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Within the health and social care sector in the United Kingdom, the management of death and bereavement has become increasingly challenging. This service evaluation sought to explore the bereavement care offered to individuals living in one Health and Social Care Trust catchment area of Northern Ireland. Qualitative interviews were conducted with key government and voluntary agency staff. The findings indicated that much of the bereavement provision is based on the interest and initiative of individual staff members, with few processes to assess the level of bereavement care needed and those best skilled to provide it. Recommendations are made for a bereavement care strategy that outlines a bereavement needs assessment process, identifying the scope of interventions and protocols for practice.

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“…Palliative care extends beyond patient care to continuing support for bereaved family relatives (Payne and Relf, 1994;NICE, 2004;Department of Health, 2005;WHO, 2008) and it has been argued by key authors that bereavement services should be available to promote health or reduce the risk of distress, dysfunction or complicated grief (Walshe, 1997;Kelly et al, 1999;NICE, 2004;Agnew et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

Bereavement Assessment Practice in Hospice Settings: Challenges for Palliative Care Social Workers

Agnew¹,

Manktelow²,

Haynes³

et al. 2010

British Journal of Social Work

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User Perspective on Palliative Care Services: Experiences of Middle-aged Partners Bereaved through Cancer Known to Social Work Services in Northern Ireland

Cited by 7 publications

References 37 publications

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

A Qualitative Evaluation of the Provision of Bereavement Care Accessed by Service Users Living in a Health and Social Care Trust Area in Northern Ireland

Bereavement Assessment Practice in Hospice Settings: Challenges for Palliative Care Social Workers

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