User-driven prioritization of features for a prospective InterPersonal Health Record: Perceptions from the Italian context

Cabitza, Federico; Simone, Carla; Michelis, Giorgio De

doi:10.1016/j.compbiomed.2014.03.009

Cited by 29 publications

(24 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Utility refers to the availability of needed features. Utility and usability are equally important and together determine whether something is useful [ 99 ]; 76 studies focused in some way on patient portal utility [ 5 , 12 , 13 , 15 , 19 , 22 , 23 , 25 - 27 , 30 , 34 , 37 , 41 , 44 , 47 , 52 , 53 , 56 , 57 , 59 , 60 , 64 , 65 , 69 , 70 , 79 , 82 , 84 - 87 , 89 , 90 , 92 , 96 , 98 , 100 - 137 ]. The majority of descriptive, qualitative, and mixed-method studies focused on eliciting patient preferences for specific functions.…”

Section: Resultsmentioning

confidence: 99%

Patient Portals and Patient Engagement: A State of the Science Review

Irizarry

Dabbs²,

Curran³

2015

J Med Internet Res

670

519

View full text Add to dashboard Cite

BackgroundPatient portals (ie, electronic personal health records tethered to institutional electronic health records) are recognized as a promising mechanism to support greater patient engagement, yet questions remain about how health care leaders, policy makers, and designers can encourage adoption of patient portals and what factors might contribute to sustained utilization.ObjectiveThe purposes of this state of the science review are to (1) present the definition, background, and how current literature addresses the encouragement and support of patient engagement through the patient portal, and (2) provide a summary of future directions for patient portal research and development to meaningfully impact patient engagement.MethodsWe reviewed literature from 2006 through 2014 in PubMed, Ovid Medline, and PsycInfo using the search terms “patient portal” OR “personal health record” OR “electronic personal health record”. Final inclusion criterion dictated that studies report on the patient experience and/or ways that patients may be supported to make competent health care decisions and act on those decisions using patient portal functionality.ResultsWe found 120 studies that met the inclusion criteria. Based on the research questions, explicit and implicit aims of the studies, and related measures addressed, the studies were grouped into five major topics (patient adoption, provider endorsement, health literacy, usability, and utility). We discuss the findings and conclusions of studies that address the five topical areas.ConclusionsCurrent research has demonstrated that patients’ interest and ability to use patient portals is strongly influenced by personal factors such age, ethnicity, education level, health literacy, health status, and role as a caregiver. Health care delivery factors, mainly provider endorsement and patient portal usability also contribute to patient’s ability to engage through and with the patient portal. Future directions of research should focus on identifying specific populations and contextual considerations that would benefit most from a greater degree of patient engagement through a patient portal. Ultimately, adoption by patients and endorsement by providers will come when existing patient portal features align with patients’ and providers’ information needs and functionality.

show abstract

Section: Resultsmentioning

confidence: 99%

Patient Portals and Patient Engagement: A State of the Science Review

Irizarry

Dabbs²,

Curran³

2015

J Med Internet Res

670

519

View full text Add to dashboard Cite

show abstract

“…In Germany and Austria, a user study found similar levels of general low familiarity with the related concept of EHR, as the 68,3% ignored its exis-tence and meaning (Hoerbst et al, 2010). A similar study conducted in 2013 in Italy (Cabitza et al, 2014) reported that only 4 out of 10 respondents claimed to know what a PHR is, despite the fact they were from a great metropolitan area where a Region-wide PHR had existed since the mid-2000s; moreover, whilst for the same Region the National Bureau of Statistics reports that 70 out of 100 used the Internet regularly 1 , the aforementioned study showed that only 2 out of 100 used to manage their health documents on line. The same official report shows that while healthrelated activities are the least performed by Internet users, 81% communicate by exchanging emails, and 51% engage in social interactions with friends and acquaintances in some social media (e.g., Facebook, Twitter, Forums).…”

Section: Motivations and Backgroundmentioning

confidence: 82%

Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record

Cabitza

Gesso

2014

Proceedings of the International Conference on Health Informatics

View full text Add to dashboard Cite

In this paper, we discuss the concept of InterPersonal Heath Record and its role in the most recent models of health service delivery: such a health record should integrate health-related information with communication and collaboration capabilities that could allow both patients and caregivers co-produce information and knowledge toward prevention and illness treatment and management. We then present MedIcona, a fullfledged demonstrator of the IPHR notion developed as free, open-source installation profile of Drupal 7. Its functionalities are aimed at enabling higher levels of user tailoring, content sharing and annotation among patients and their caregivers. 1

show abstract

“…Providing patients access to their personal health record during periods of down time, such as during a hospital stay or clinic wait, may be one way to reduce the barrier of initial engagement with the PHR. Despite the lack of strong evidence that PHRs improve clinical care outcomes, increase patient engagement, and/or provide better care coordination, the concept of PHRs is still strongly favored by both clinicians and patients [31][32][33][34]. More studies are still needed to connect PHR use to patient-centered process measures and clinical outcomes.…”

Section: Personal Health Recordsmentioning

confidence: 99%

Informatics Systems and Tools to Facilitate Patient-centered Care Coordination

Demiris¹,

Kneale²

2015

Yearb Med Inform

View full text Add to dashboard Cite

SummaryIntroduction: There is a growing international focus on patient-centered care. A model designed to facilitate this type of care in the primary care setting is the patient-centered medical home. This model of care strives to be patient-focused, comprehensive, team-based, coordinated, accessible, and focused on quality and safety of care. Objective: The objective of this paper is to identify the current status and future trends of patient-centered care and the role of informatics systems and tools in facilitating this model of care. Methods: In this paper we review recent scientific literature of the past four years to identify trends and state of current evidence when it comes to patient-centered care overall, and more specifically medical homes. Results: There are several studies that indicate growth and development in seven informatics areas within patient-centered care, namely clinical decision support, registries, team care, care transitions, personal health records, telehealth, and measurement. In some cases we are still lacking large randomized clinical trials and the evidence base is not always solid, but findings strongly indicate the potential of informatics to support patient-centered care. Conclusion: Current evidence indicates that advancements have been made in implementing and evaluating patient-centered care models. Technical, legal, and practical challenges still remain. Further examination of the impact of patient-centered informatics tools and systems on clinical outcomes is needed.

show abstract

User-driven prioritization of features for a prospective InterPersonal Health Record: Perceptions from the Italian context

Cited by 29 publications

References 28 publications

Patient Portals and Patient Engagement: A State of the Science Review

Patient Portals and Patient Engagement: A State of the Science Review

Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record

Informatics Systems and Tools to Facilitate Patient-centered Care Coordination

Contact Info

Product

Resources

About