User-centred design of a mobile self-management solution for Parkinson's disease

Designing for and with People with Parkinson's

“…3,5,19,20,21,33], and research related to designing for and with Parkinson's remains even more so underexplored. Both McNaney [20] and Barros [5] took a design approach modelled on [27], which focused on developing design recommendations through a set of workshops with PwP and their caregivers, using discussion around low and high fidelity prototypes to refine design ideas. Both authors took an iterative development approach to refine their design of a wrist worn cueing device to treat drooling problems [20] and a mobile based application for the day to day selfmanagement of Parkinson's [5] respectively.…”

“…Both McNaney [20] and Barros [5] took a design approach modelled on [27], which focused on developing design recommendations through a set of workshops with PwP and their caregivers, using discussion around low and high fidelity prototypes to refine design ideas. Both authors took an iterative development approach to refine their design of a wrist worn cueing device to treat drooling problems [20] and a mobile based application for the day to day selfmanagement of Parkinson's [5] respectively. Unfortunately, the authors do not reflect on the successes and challenges of their design experiences, highlighting the need for an appraisal of design methods for Parkinson's and the construction of a set of recommendations for future designers aiming to explore the design space, particularly in relation to managing contingencies which might arise within the design process around specific Parkinson's symptoms (e.g.…”

“…Although the area of Parkinson's has received some attention [3,5,16,19,20,33], there has been minimal work related to how individuals with this condition might be engaged within a design process [3,5,20]. Parkinson's is a particularly interesting user group for investigation due to the complex and individual nature of the condition.…”

ONParkinson – Innovative mHealth to Support the Triad: Patient, Carer and Health Professional

“…Moreover, more recent studies focused on a user-centred process for the design of apps present positive results. Indeed, findings indicated that people with PD were able to achieve high task completion rates on usability tests, showing that usercentred approaches can be efficient [9].…”

“…Furthermore, most of the health services and self-management tools provided have been centred on the person with PD and in supporting clinical decisions. Thus, apps have been developed in order to improve the patients' capabilities of self-management of the PD (e.g., the REMPARK system [9] and the mPower app [10]). However, the involvement of both people with PD and their carers has been highlighted as providing benefits to them [11].…”