Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Schaller, Sandra; Marinova-Schmidt, Velislava; Setzer, Manuela; Kondylakis, Haridimos; Griebel, Lena; Sedlmayr, Martin; Graessel, Elmar; Maler, Juan Manuel; Kirn, Stefan; Kolominsky-Rabas, Peter

doi:10.2196/resprot.4354

Cited by 47 publications

(76 citation statements)

References 58 publications

(76 reference statements)

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“…) should be resolved, whereas consistent linkage between clinical research and clinical practice will also help to significantly reduce the need for double data entry, which is currently often common practice. Specific attention should be paid to the fact that different professionals and organizations that participate in the patient's journey have different priorities (Schaller et al 2016). Mass scale: For long-term data collection of health-related data, individual participation at a mass scale is important.…”

Section: Conclusion and Guidelines For Future Developmentmentioning

confidence: 99%

Participatory Aspects of ICT Infrastructures for Cancer Management

Kondylakis

Koumakis

Mazzocco

et al. 2019

P5 eHealth: An Agenda for the Health Technologies of the Future

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Significant improvements in cancer research have led to more cancer patients being cured, and many more enabled to live with their cancer. As the disease is now managed as a chronic illness, it requires long-term surveillance and maintenance treatment. This requires a transformation in the nature of healthcare from reactive to preventive, personalized and participatory. To this direction, in this chapter we present relevant approaches developed within five European funded projects and we report on experiences and lessons learnt. More specifically, we describe the eHealth solutions developed, enabling patients to actively participate in their disease management, the results out of those projects towards the P5 vision and more especially on the participatory aspect and we present a set of requirements and guidelines for future technological solutions.

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Section: Conclusion and Guidelines For Future Developmentmentioning

confidence: 99%

Participatory Aspects of ICT Infrastructures for Cancer Management

Kondylakis

Koumakis

Mazzocco

et al. 2019

P5 eHealth: An Agenda for the Health Technologies of the Future

Self Cite

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“…A German pilot study reported on the development of a tailored e-health service for caregivers/carers of people living with dementia and HSCPs. 186,187 The aim of the tool was to facilitate communication between HCPs and informal carers and to empower the carers. Although not aimed at SDM, the intervention included an element related to preparation for doctors' visits.…”

Section: Family-centred Approachesmentioning

confidence: 99%

Supporting shared decision-making for older people with multiple health and social care needs: a realist synthesis

Bunn

Goodman

Russell

et al. 2018

Health Serv Deliv Res

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BackgroundHealth-care systems are increasingly moving towards more integrated approaches. Shared decision-making (SDM) is central to these models but may be complicated by the need to negotiate and communicate decisions between multiple providers, as well as patients and their family carers; this is particularly the case for older people with complex needs.ObjectivesTo provide a context-relevant understanding of how models to facilitate SDM might work for older people with multiple health and care needs and how they might be applied to integrated care models.DesignRealist synthesis following Realist and Meta-narrative Evidence Syntheses: Evolving Standards (RAMESES) publication standards.ParticipantsTwenty-four stakeholders took part in interviews.Data sourcesElectronic databases including MEDLINE (via PubMed), The Cochrane Library, Scopus, Google and Google Scholar (Google Inc., Mountain View, CA, USA). Lateral searches were also carried out. All types of evidence were included.Review methodsIterative stakeholder-driven, three-stage approach, involving (1) scoping of the literature and stakeholder interviews (n = 13) to develop initial programme theory/ies, (2) systematic searches for evidence to test and develop the theories and (3) validation of programme theory/ies with stakeholders (n = 11).ResultsWe included 88 papers, of which 29 focused on older people or people with complex needs. We identified four theories (context–mechanism–outcome configurations) that together provide an account of what needs to be in place for SDM to work for older people with complex needs: understanding and assessing patient and carer values and capacity to access and use care; organising systems to support and prioritise SDM; supporting and preparing patients and family carers to engage in SDM; and a person-centred culture of which SDM is a part. Programmes likely to be successful in promoting SDM are those that create trust between those involved, allow service users to feel that they are respected and understood, and engender confidence to engage in SDM.LimitationsThere is a lack of evidence on interventions to promote SDM in older people with complex needs or on interprofessional approaches to SDM.ConclusionsModels of SDM for older people with complex health and care needs should be conceptualised as a series of conversations that patients, and their family carers, may have with a variety of different health and care professionals. To embed SDM in practice requires a shift from a biomedical focus to a more person-centred ethos. Service providers are likely to need support, both in terms of the way services are organised and delivered and in terms of their own continuing professional development. Older people with complex needs may need support to engage in SDM. How this support is best provided needs further exploration, although face-to-face interactions and ongoing patient–professional relationships are key.Future workThere is a need for further work to establish how organisational structures can be better aligned to meet the requirements of older people with complex needs. This includes a need to define and evaluate the contribution that different members of health and care teams can make to SDM for older people with complex health and care needs.Study registrationThis study is registered as PROSPERO CRD42016039013.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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“…Az egyre intenzívebb kutatások során számos olyan terület körvonalazódott, melyben az IKT-megközelítés segíthet az időseknek, úgymint az önállóság biztosítása, az elesés rizikójának mérséklése, a krónikus testi és men-tális betegségek (például a dementia vagy a depresszió) negatív következményeinek enyhítése és a gyógyszeres kezeléssel való együttműködés biztosítása, valamint a szociális izoláció oldása és az életminőség javítása [8,13]. Az idősek körében végzett, a különböző információs és kommunikációs eszközök hatását felmérő vizsgálatokat, randomizált-kontrollált vizsgálatokat (RKV) és metaanalíziseket a 3. táblázatban foglaltuk össze [13][14][15][16][17][18][19][20][21][22][23][24][25][26][27][28][29].…”

Section: Infokommunikációs Eszközök Alkalmazása a Dementiával éLők Kounclassified

Információs és kommunikációs technológiák alkalmazása dementiában szenvedők komplex ellátásában

et al. 2018

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Modern information and communication tools have increasingly become an indispensable part of our everyday life. Research data demonstrate that it can be used effectively to preserve and restore health, not just among young people but also among the elderly, as for nowadays the use of the internet is widespread among the elderly, but healthcare applications are less well-known. This supports the significance of our project since it is important to develop and introduce disease-specific healthcare applications. Our preliminary results also indicated that men are less open to these new technologies, so in their case, specific methods are needed to facilitate the use of electronic devices. The high level of internet activity and the interest in information and communication technologies provide a reliable basis for applying these new technologies to the elderly. Thus, based on our research, we can develop a complex model of care based on the bio-psycho-social principles, which can be a significant advance in the prevention and early detection of age-related mental disorders and in alleviating the physical and psychological burdens of people with dementia and their families. Orv Hetil. 2018; 159(24): 965-973.

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Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Cited by 47 publications

References 58 publications

Participatory Aspects of ICT Infrastructures for Cancer Management

Participatory Aspects of ICT Infrastructures for Cancer Management

Supporting shared decision-making for older people with multiple health and social care needs: a realist synthesis

Információs és kommunikációs technológiák alkalmazása dementiában szenvedők komplex ellátásában

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