Use of user-centered design to create a smartphone application for patient-reported outcomes in atopic dermatitis

Gracey, Lia E.; Zan, Shiyi; Gracz, Joseph; Miner, John J.; Moreau, Jacqueline F.; Sperber, Jodi; Jethwani, Kamal; Hale, Timothy M.; Kvedar, Joseph C.

doi:10.1038/s41746-018-0042-4

Cited by 11 publications

(7 citation statements)

References 4 publications

(4 reference statements)

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“…To promote the use of VMAs in clinical settings, medical and HCI experts and regulatory agencies should work together to identify and adhere to standardised vocabulary, methods for the design [34][35][36] and evaluation 4,13,37 of digital solutions for healthcare. In the longer term, this interdisciplinarity would provide the opportunity to develop VMAs fully compliant with standards and legal aspects, as stated by the International Organization for Standardization (ISO) in the standard for Human-centred design for Interactive systems (ISO 9241-210:2019) 17,38 and by several health regulatory agencies (such as the National Institute for Health and Care Excellence, 39 the National Health Service 40 ; the Medical Research Council, 41 or the European Medicines Agency 42 ).…”

Section: Discussionmentioning

confidence: 99%

Trust and acceptance of a virtual psychiatric interview between embodied conversational agents and outpatients

et al. 2020

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Virtual agents have demonstrated their ability to conduct clinical interviews. However, the factors influencing patients' engagement with these agents have not yet been assessed. The objective of this study is to assess in outpatients the trust and acceptance of virtual agents performing medical interviews and to explore their influence on outpatients' engagement. In all, 318 outpatients were enroled. The agent was perceived as trustworthy and well accepted by the patients, confirming the good engagement of patients in the interaction. Older and less-educated patients accepted the virtual medical agent (VMA) more than younger and welleducated ones. Credibility of the agent appeared to main dimension, enabling engaged and non-engaged outpatients to be classified. Our results show a high rate of engagement with the virtual agent that was mainly related to high trust and acceptance of the agent. These results open new paths for the future use of VMAs in medicine.npj Digital Medicine (2020) 3:2 ; https://doi.

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Section: Discussionmentioning

confidence: 99%

Trust and acceptance of a virtual psychiatric interview between embodied conversational agents and outpatients

et al. 2020

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“…One of the biggest barriers to conducting remote dermatologic research is the lack of tools designed to collect patient data in a format that meets clinical research standards (10). With AD, a handful of digital applications (i.e., apps) have been published to help educate patients and manage their disease (10)(11)(12)(13)(14), but only one mobile app was specifically designed for clinical research purposes (14) and primarily collected itch severity ratings, coupled with a non-validated quality-of-life survey. In the clinical realm, the need for more comprehensive remote clinical monitoring tools for AD and other inflammatory skin diseases is particularly high, as patients often experience skin fluctuations or flares between in-person visits, meaning such encounters may not fully capture patients' clinical journeys while attempting new treatments (1).…”

Section: Introductionmentioning

confidence: 99%

Development of SkinTracker, an integrated dermatology mobile app and web portal enabling remote clinical research studies

Jin,

Hong,

Elhage

et al. 2023

Front. Digit. Health

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IntroductionIn-person dermatology clinical research studies often face recruitment and participation challenges due to travel-, time-, and cost-associated barriers. Studies incorporating virtual/asynchronous formats can potentially enhance research subject participation and satisfaction, but few mobile health tools are available to enable remote study conduct. We developed SkinTracker, a patient-facing mobile app and researcher-facing web platform, that enables longitudinal collection of skin photos, patient reported outcomes, and biometric health and environmental data.MethodsEight design thinking sessions including dermatologists, clinical research staff, software engineers, and graphic designers were held to create the components of SkinTracker. Following iterative prototyping, SkinTracker was piloted across six adult and four pediatric subjects with atopic dermatitis (AD) of varying severity levels to test and provide feedback on SkinTracker for six months.ResultsThe SkinTracker app enables collection of informed consent for study participation, baseline medical history, standardized skin photographs, patient-reported outcomes (e.g., Patient Oriented Eczema Measure (POEM), Pruritus Numerical Rating Scale (NRS), Dermatology Life Quality Index (DLQI)), medication use, adverse events, voice diary to document qualitative experiences, chat function for communication with research team, environmental and biometric data such as exercise and sleep metrics through integration with an Apple Watch. The researcher web portal allows for management and visualization of subject enrollment, skin photographs for examination and severity scoring, survey completion, and other patient modules. The pilot study requested that subjects complete surveys and photographs on a weekly to monthly basis via the SkinTracker app. Afterwards, participants rated their experience in a 7-item user experience survey covering app function, design, and desire for participation in future studies using SkinTracker. Almost all subjects agreed or strongly agreed that SkinTracker enabled more convenient participation in skin research studies compared to an in-person format.DiscussionTo our knowledge, SkinTracker is one of the first integrated app- and web-based platforms allowing collection and management of data commonly obtained in clinical research studies. SkinTracker enables detailed, frequent capture of data that may better reflect the fluctuating course of conditions such as AD, and can be modularly customized for different skin conditions to improve dermatologic research participation and patient access.

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“…We specifically aimed to collect demographic data, highlight the prescribing patterns and affordability of medications in the United States, and collect longitudinal symptom data. The design of the myEczema smartphone app was a physician-led effort, created in consultation with dermatologists, eczema researchers, and patients with eczema and their families ( Gracey et al, 2018 ). At the time of the study, myEczema was the only eczema app that collected user-entered data and securely stored the data in a de-identified manner to be used for institutional review board–approved research.…”

Section: Introductionmentioning

confidence: 99%

A feasibility study of the burden of disease of atopic dermatitis using a smartphone research application, myEczema

Shah

Kemp

Kvedar

et al. 2020

International Journal of Women's Dermatology

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Background Our understanding of chronic diseases, such as atopic dermatitis (AD), could benefit from the ability to rapidly collect patient-reported, longitudinal data from a large population. Objective This study aimed to determine whether a smartphone app can be used to collect demographic and longitudinal symptom data and recognize prescribing patterns and affordability of medications to study the burden of AD. Methods We collected data using the myEczema smartphone app between July 2017 and April 2018. The data were de-identified and analyzed. Results A total of 519 users (94.2%) completed the initial demographic survey. The majority of users were female (n = 387; 70.2%) and Caucasian (n = 358; 65.0%). A total of 335 users (60.8%) had at least a university degree and were employed (n = 348; 63.1%). A total of 189 users (29.2%) reported difficulty affording their medications, and 363 users (65.9%) took advantage of the itch score recording feature. Finally, 184 users (33.4%) logged their treatments, with the highest number of users (65.2%) listing topical steroids as one of their treatments. Limitations The operating platform was limited to iPhones, and the results were subject to reporting bias. Conclusion A smartphone-based research app can be used to rapidly collect patient-reported data to study the burden of AD and to highlight the prescribing patterns and affordability of medications.

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Use of user-centered design to create a smartphone application for patient-reported outcomes in atopic dermatitis

Cited by 11 publications

References 4 publications

Trust and acceptance of a virtual psychiatric interview between embodied conversational agents and outpatients

Trust and acceptance of a virtual psychiatric interview between embodied conversational agents and outpatients

Development of SkinTracker, an integrated dermatology mobile app and web portal enabling remote clinical research studies

A feasibility study of the burden of disease of atopic dermatitis using a smartphone research application, myEczema

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