Use of the Medical Research Council Framework to develop a complex intervention in pediatric occupational therapy: Assessing feasibility

Missiuna, Cheryl; Pollock, Nancy; Campbell, William E.; Bennett, Sheila; Hecimovich, Catherine; Gaines, Robin; DeCola, Cindy; Cairney, John; Russell, Dianne; Molinaro, Elizabeth

doi:10.1016/j.ridd.2012.03.018

Cited by 36 publications

(39 citation statements)

References 26 publications

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“…Previous study that piloted the English version of the DCD module reported parental satisfaction and change in knowledge and skills following completion of the website 20,29 The amount and direction of the changes reported in this study are similar to the ones found in the previous study.…”

Section: Discussionsupporting

confidence: 86%

“…These questions used a 7-point Likert scale (ranging from 1=not at all to 7=very well). All questionnaires were based on those used in previous DCD studies 20,29 please provide examples of things you changed, or tried to change), factors influencing behavioural changes (e.g., please describe anything that could have influenced, positively or negatively, your ability to implement desired changes) and perceived outcomes associated with these changes (e.g., please describe the impact of these changes on your child, your family and 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 9 your environment) were included in the follow-up questionnaire only.…”

Section: Outcome Measures and Analysismentioning

confidence: 99%

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Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Camden

Foley

Anaby

et al. 2016

Disability and Health Journal

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Background : Developmental coordination disorder (DCD) is a prevalent neurodevelopmental disorder. Best practices include raising parents' awareness and building capacity but few interventions incorporating these best practices are documented. Objective : To examine whether an evidence-based online module can increase the perceived knowledge and skills of parents of children with DCD, and lead to behavioural changes when managing their child's health condition. Methods : A mixed-methods, before-after-follow-up design guided by the theory of planned behaviour was employed. Data about the knowledge, skills and behaviours of parents of children with DCD were collected using questionnaires prior to completing the module, immediately after, and three months later. One-way repeated measures ANOVAs and thematic analyses were performed on data as appropriate. Results : Fifty-eight participants completed all questionnaires. There was a significant effect of time on self-reported knowledge [F(2.00,114.00)=16.37, p=0.00] and skills [F(1.81,103.03)=51.37, p=0.00] with higher post-and follow-up scores than pre-intervention scores. Thirty-seven (65%) participants reported an intention to change behaviour post-intervention; 29 (50%) participants had tried recommended strategies at follow-up. Three themes emerged to describe parents' behavioural change: sharing information, trialing strategies and changing attitudes. Factors influencing parents' ability to implement these behavioural changes included clear recommendations, time, and 'right' attitude. Perceived outcomes associated with the parental behavioural changes involved improvement in well-being for the children at school, at home, and for the family as a whole. Conclusions : The online module increased parents' self-reported knowledge and skills in DCD management. Future research should explore its impacts on children's outcomes long-term. Enclosed please find the research article entitled "Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder"-for consideration by Disability and Health Journal. The article consists of a mixed-method, before-after trial with a threemonth follow-up. In this trial, parents of children with Developmental Coordination Disorder (DCD) completed an online evidence-based module providing information and strategies to manage this prevalent and potentially disabling chronic health condition. This manuscript will be of interest to your journal as the families of children with motor delays, or "suspected DCD", typically visit physicians and many other health care professionals to find out "what is wrong with their child". Previous papers have suggested that providing evidence-based information to families is a key strategy in equipping families to support their children with DCD. However, no specific intervention has been tested so far to evaluate the impact of providing information to families. This study evaluated whether an evidence-based online module could inc...

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Section: Discussionsupporting

confidence: 86%

Section: Outcome Measures and Analysismentioning

confidence: 99%

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Camden

Foley

Anaby

et al. 2016

Disability and Health Journal

Self Cite

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“…; Missiuna et al . 2012a,b). DCD impacts on multiple aspects of children's lives and many authors emphasized the need for health care and education professionals to collaborate to develop holistic evaluations and interventions (Rodger & Mandich ; Salmon et al .…”

Section: Resultsmentioning

confidence: 99%

“…; Missiuna et al . 2012a,b). Salmon and colleagues stressed the importance of developing successful multi‐agency collaborations with a consistent multi‐disciplinary approach within a health care region (2006).…”

Section: Resultsmentioning

confidence: 99%

Best practice principles for management of children with developmental coordination disorder (DCD): results of a scoping review

Camden

Wilson

Kirby

et al. 2014

Child

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“…In order to fulfill this mandate, many of our research studies in the past have engaged youth with a disability or their family members as a collaborator and author (eg, The KIT “Keeping it Together,” Youth “KIT,” and Partnering for Change) [25-27]; however, we saw the opportunity to broaden our perspective by engaging a larger community of families to further address issues of importance to families, as well as create a community where there is an opportunity for ongoing meaningful dialogue.…”

Section: Discussionmentioning

confidence: 99%

Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability

Russell¹,

Sprung²,

McCauley³

et al. 2016

J Med Internet Res

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BackgroundEfforts to involve parents and families in all aspects of research, from initiating the question through to dissemination and knowledge exchange, are increasing. While social media as a method for health communication has shown numerous benefits, including increasing accessibility, interactions with others, and access to health care information, little work has been published on the use of social media to enhance research partnerships.ObjectiveOur objective was to describe the development and evaluation of a Web-based research advisory community, hosted on Facebook and connecting a diverse group of parents of special needs children with researchers at CanChild Centre for Childhood Disability Research. The goal of this community is to work together and exchange knowledge in order to improve research and the lives of children and their families.MethodsThe Web-based Parents Participating in Research (PPR) advisory community was a secret Facebook group launched in June 2014 and run by 2 parent moderators who worked in consultation with CanChild. We evaluated its success using Facebook statistics of engagement and activity (eg, number of posts, number of comments) between June 2014 and April 2015, and a Web-based survey of members.ResultsThe PPR community had 96 participants (2 parent moderators, 13 researchers, and 81 family members) as of April 1, 2015. Over 9 months, 432 original posts were made: 155 (35.9%) by moderators, 197 (45.6%) by parents, and 80 (18.5%) by researchers. Posts had a median of 3 likes (range 0-24) and 4 comments (range 0-113). Members, rather than moderators, generated 64% (277/432) of posts. The survey had a 51% response rate (49/96 members), with 40 (82%) being parent members and 9 (18%) being researchers. The initial purpose of the group was to be an advisory to CanChild, and 76% (28/37) of parents and all the researchers (9/9) identified having an impact on childhood disability research as their reason for participating. A total of 58% (23/40) of parents and 56% (5/9) of researchers indicated they felt safe to share sensitive or personal information. While researchers shared evidence-based resources and consulted with families to get guidance on specific issues, there was an unexpected benefit of gaining an understanding of what issues were important to families in their daily lives. Parents felt a sense of belonging to this community where they could share their stories but also wanted more researcher participation and clarity on the purpose of the group.ConclusionsThe PPR community grew from inception to an established community with active engagement and knowledge exchange. Both parents and researchers described valuable experiences. Researchers should consider social media as a means of engaging families in all phases of research to ensure that research and its outcomes are meaningful to those who need it most.

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Use of the Medical Research Council Framework to develop a complex intervention in pediatric occupational therapy: Assessing feasibility

Cited by 36 publications

References 26 publications

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Best practice principles for management of children with developmental coordination disorder (DCD): results of a scoping review

Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability

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