Use of the EQ-5D among patients suffering from dementia

Health State Valuation in Mild to Moderate Cognitive Impairment: Feasibility of Computer-Based, Direct Patient Utility Assessment

“…Similar to the findings of Ankri et al [10] using the EQ 5D, we found that standard gamble and time trade-off scores did not vary significantly with level of cognitive impairment severity. Consistent with findings by Jonsson and colleagues [11] also using the EQ 5D, self ratings of current health by patients with mild cognitive impairment in the current study tended to be higher than paired caregiver ratings when the time trade-off or rating scale assessment methods were used.…”

“…In this cross-sectional study, utility-related data were collected on 679 patient-caregiver pairs using the Health Utilities Index Mark II, a generic multiattribute, preference based system. Three recent studies used the EuroQol 5D (EQ 5D), a generic health-related quality of life instrument, to obtain health state ratings from both patients with dementia and their caregivers [9][10][11]. Coucill et al studied 64 patients with questionable to moderate dementia and found that responses across raters were "highly variable" [9].…”

“…Coucill et al studied 64 patients with questionable to moderate dementia and found that responses across raters were "highly variable" [9]. Ankri et al, [10] using a French version of the EQ 5D, found a satisfactory response rate and a moderate test-retest reliability. They also found that the EQ 5D scores did not systematically vary with their dementia severity measure among the 137 patients studied.…”

Exercise for depression in care home residents: a randomised controlled trial with cost-effectiveness analysis (OPERA)

“…Proxy data, however, has some shortcomings, as demonstrated by studies that compare self-completed quality-of-life surveys with those completed by a proxy. [138][139][140] In some homes, these surveys were completed by the care home manager due to language or literacy barriers or time constraints among the care workers working with the residents on a day-to-day basis. Although these care workers may have found it more difficult to complete the survey, they may have had a more comprehensive understanding of what life entailed for the residents.…”

“…138,139 One study in dementia found an intracluster correlation coefficient of 0.42 for the index score between health-care professionals and patients for EQ-5D index score in people suffering from dementia. 140 Whatever the absolute level of agreement between proxy and self-completed EQ-5D might be in individual cases, the proxy values should reliably identify changes in health state.…”