Use of Storytelling to Increase Navigation Capacity Around the Affordable Care Act in Communities of Color

Patel, Minal R.; TerHaar, Lindsay; Alattar, Zaineb; Rubyan, Michael; Tariq, Madiha; Worthington, Katherine; Pettway, Joslyn; Tatko, Julie; Lichtenstein, Richard

doi:10.1353/cpr.2018.0055

Cited by 5 publications

(22 citation statements)

References 8 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…CBPR partnering practices, or the steps research partners take to sustain their collaboration, play a foundational role in the research process by supporting efforts to: establish trust with communities; enhance culture-centeredness of research methods and interventions, and build community and university capacity in research equity outcomes (Khodyakov et al, 2013; Lucero, 2013; Miranda et al, 2013). Notably, CEnR’s focus on equitably engaging with communities has been particularly effective among vulnerable populations and communities of color (Patel et al, 2018; Salinas-Miranda et al, 2017), groups that have historically experienced considerable harm from research. However, the lack of standardized, yet flexible approaches to strengthening partnering can present a major challenge to research partnerships questioning how and whether to expand and sustain a research partnership in the long term.…”

mentioning

confidence: 99%

Engage for Equity: Development of Community-Based Participatory Research Tools

et al. 2020

View full text Add to dashboard Cite

We developed a set of four community-based participatory research (CBPR) partnership tools aimed at supporting community–academic research partnerships in strengthening their research processes, with the ultimate goal of improving research outcomes. The aim of this article is to describe the tools we developed to accomplish this goal: (1) the River of Life Exercise; (2) a Partnership Visioning Exercise; (3) a personalized Partnership Data Report of data from academic and community research partners; and (4) a Promising Practices Guide with aggregated survey data analyses on promising CBPR practices associated with CBPR and health outcomes from two national samples of CBPR projects that completed a series of two online surveys. Relying on Paulo Freire’s philosophy of praxis, or the cycles of collective reflection and action, we developed a set of tools designed to support research teams in holding discussions aimed at strengthening research partnership capacity, aligning research partnership efforts to achieve grant aims, and recalling and operationalizing larger social justice goals. This article describes the theoretical framework and process for tool development and provides preliminary data from small teams representing 25 partnerships who attended face-to-face workshops and provided their perceptions of tool accessibility and intended future use.

show abstract

mentioning

confidence: 99%

Engage for Equity: Development of Community-Based Participatory Research Tools

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Description of the CBPR partnership is available elsewhere (Patel, TerHaar, et al, 2018). In 2015, researchers at the University of Michigan (MRP, RL) reached out to eight organizations to form the Insure Detroit Steering Committee (SC).…”

Section: Methodsmentioning

confidence: 99%

“…Adopted principles included co-learning and capacity building among all partners, shared power and decision making, and balance of research and action for the mutual benefit of all partners. A more detailed description of the CBPR partnership is available elsewhere (Patel, TerHaar, et al, 2018).…”

Section: Methodsmentioning

confidence: 99%

“…It includes eight, high-quality, animated videos of superhero characters who navigate a health insurance/health care issue. The SC liked the theme of superheroes as a familiar concept across cultures, and a way of providing collective identity to the characters (Patel, TerHaar, et al, 2018). In collaboration with the SC, surface structure tailoring was used to foster connections to the website with different racial/ethnic groups of interest, including physical appearance of the characters and offering multiple language modalities for engaging with the website.…”

Section: Methodsmentioning

confidence: 99%

“…A media production and consulting firm was hired to develop a creative concept and story to communicate learning objectives through a series of short videos. Description of the development of Insuring Good Health is available elsewhere (Patel, TerHaar, et al, 2018).…”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Insuring Good Health: Outcomes and Acceptability of a Participatory Health Insurance Literacy Intervention in Diverse Urban Communities

et al. 2019

Self Cite

View full text Add to dashboard Cite

Background. The U.S. uninsured rate has dropped significantly since the passage of the Affordable Care Act (ACA), yet insurance coverage remains lower in historically marginalized communities than in the overall population. New consumer engagement approaches that involve these populations are needed. The purpose of this study was to evaluate the effectiveness of the Insuring Good Health Intervention, a website and video series designed to improve engagement with health insurance and ACA reforms. The study was designed and implemented using a community-based participatory research approach. Method. We conducted a lagged-control cluster randomized controlled trial to evaluate Insuring Good Health with racially and ethnically diverse adults seeking services in medically underserved areas within the Detroit, Michigan metropolitan area. Outcomes were assessed at baseline and at 6 and 9 months postintervention, and including self-efficacy, knowledge, beliefs, and intention to seek help with insurance navigation and care. Results. Among 243 participants, mean age was 43.4 (SD = 13) years, and all participants met federal guidelines for poverty. The study had an 86% response rate at 9-month follow-up (n = 209). Compared with the lagged-control group, intervention participants had more positive beliefs concerning preventive care (estimate 0.51, standard error 0.16; p < .01), and intention to seek help with insurance navigation and care (estimate 0.43, standard error 0.17; p < .001) at 9-month follow-up. Hispanic participants benefitted the most from the intervention, including improved knowledge of health insurance eligibility over 9 months compared with other racial/ethnic groups (estimate −0.97, standard error 0.40, p < .01). Discussion. Insuring Good Health was associated with increased intention to seek help with insurance navigation and care, and improved beliefs around preventive care. Conclusions. Insuring Good Health has the potential to be an important consumer engagement tool to reduce disparities in health insurance coverage and care seeking.

show abstract